{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,9]],"date-time":"2026-09-09T15:45:42Z","timestamp":1788968742895,"version":"build-2803163510"},"reference-count":91,"publisher":"Wiley","issue":"5","license":[{"start":{"date-parts":[[2023,11,2]],"date-time":"2023-11-02T00:00:00Z","timestamp":1698883200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Intl J Eating Disorders"],"published-print":{"date-parts":[[2024,5]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>Research indicates that parents experience distress while caring for a child with anorexia nervosa. Applying the Common Sense Model of Self\u2010Regulation (CSM), a framework to describe responses to illness may help to understand the antecedents of parental distress, which could inform how to support parents in treatment. The aim of this systematic review was to synthesize outcomes from qualitative research in relation to parents' experiences of caring for a child with anorexia nervosa using the CSM.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Method<\/jats:title>\n                    <jats:p>Systematic search of four electronic databases (psychINFO, MEDLINE, EMBASE, ProQuest Dissertation, and Theses Database) alongside a two\u2010way screening process was used to identify eligible studies. Qualitative themes were synthesized using a \u201cbest fit\u201d framework analysis and reported according to CSM dimensions of cognitive and emotional illness representations.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>A total of 32 studies published between 1970 and 2023 were eligible for inclusion for review. Parents perceived their child's anorexia nervosa as a major health threat observable by illness representations that anorexia nervosa was uncontrollable, incomprehensible, chronic, and associated with negative consequences. The themes also suggested parents take responsibility for causing anorexia nervosa. These illness representations were linked with emotional representations of fear, anxiety, shame, guilt, loneliness, and depression.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>The findings provide evidence of the utility of using the CSM to understand the antecedents of parents' distress and negative impacts of caring for a child with anorexia nervosa. Recommendations for future research and clinical practice are discussed emphasizing the need to understand parents' perceptions of their child's illness to putatively maximize treatment benefits for families.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Public Significance<\/jats:title>\n                    <jats:p>This review emphasizes the salience of understanding parents distress while caring for a child with anorexia nervosa. The findings present opportunities to best support parents in treatment, with a focus on addressing their cognitive and emotional representations of their child's illness. A multicomponent treatment regimen may be required to support parents if they present with illness representations that negatively affect their well\u2010being and ability to cope with distress.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1002\/eat.24081","type":"journal-article","created":{"date-parts":[[2023,11,2]],"date-time":"2023-11-02T09:46:06Z","timestamp":1698918366000},"page":"1049-1068","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":19,"title":["Parents' illness representations of their child with anorexia nervosa: A systematic review of qualitative studies using the common\u2010sense model"],"prefix":"10.1002","volume":"57","author":[{"given":"Doriana","family":"Marchetti","sequence":"first","affiliation":[{"name":"School of Health in Social Science University of Edinburgh  Edinburgh UK"},{"name":"Department of Clinical Psychology NHS Grampian  UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8160-0232","authenticated-orcid":false,"given":"Vilas","family":"Sawrikar","sequence":"additional","affiliation":[{"name":"School of Health in Social Science University of Edinburgh  Edinburgh UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2023,11,2]]},"reference":[{"key":"e_1_2_10_2_1","doi-asserted-by":"crossref","first-page":"298","DOI":"10.1176\/appi.books.9780890425596","volume-title":"Diagnostic and statistical manual of mental disorders","author":"American Psychiatric Publishing","year":"2013"},{"key":"e_1_2_10_3_1","doi-asserted-by":"publisher","DOI":"10.1080\/13557858.2019.1625872"},{"key":"e_1_2_10_4_1","doi-asserted-by":"publisher","DOI":"10.3389\/fpsyg.2021.584565"},{"key":"e_1_2_10_5_1","doi-asserted-by":"publisher","DOI":"10.1111\/papt.12345"},{"key":"e_1_2_10_6_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10882-019-09715-y"},{"key":"e_1_2_10_7_1","doi-asserted-by":"publisher","DOI":"10.1080\/10640266.2014.925760"},{"key":"e_1_2_10_8_1","doi-asserted-by":"publisher","DOI":"10.1002\/erv.2196"},{"key":"e_1_2_10_9_1","doi-asserted-by":"publisher","DOI":"10.2147\/JMDH.S115934"},{"key":"e_1_2_10_10_1","doi-asserted-by":"publisher","DOI":"10.3390\/ijerph20054075"},{"key":"e_1_2_10_11_1","doi-asserted-by":"publisher","DOI":"10.1186\/1471-2288-11-29"},{"key":"e_1_2_10_12_1","doi-asserted-by":"publisher","DOI":"10.1186\/1471-2288-13-37"},{"key":"e_1_2_10_13_1","doi-asserted-by":"publisher","DOI":"10.1186\/s40337-021-00449-x"},{"key":"e_1_2_10_14_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.appsy.2005.07.001"},{"key":"e_1_2_10_15_1","doi-asserted-by":"publisher","DOI":"10.1002\/erv.560"},{"key":"e_1_2_10_16_1","doi-asserted-by":"publisher","DOI":"10.1080\/10640261003719443"},{"key":"e_1_2_10_17_1","unstructured":"Critical Appraisal Skills Programme. (2018).CASP qualitative checklist.https:\/\/casp-uk.net\/wp-content\/uploads\/2018\/01\/CASP-Qualitative-Checklist-2018.pdf"},{"key":"e_1_2_10_18_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ctcp.2018.11.012"},{"key":"e_1_2_10_19_1","doi-asserted-by":"publisher","DOI":"10.1080\/10640266.2015.1034053"},{"key":"e_1_2_10_20_1","doi-asserted-by":"publisher","DOI":"10.1186\/s40337-021-00447-z"},{"key":"e_1_2_10_21_1","doi-asserted-by":"publisher","DOI":"10.1002\/cpp.1984"},{"key":"e_1_2_10_22_1","doi-asserted-by":"publisher","DOI":"10.1177\/09593535221074802"},{"key":"e_1_2_10_23_1","doi-asserted-by":"publisher","DOI":"10.1192\/bjp.bp.110.088401"},{"key":"e_1_2_10_24_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00127-008-0364-7"},{"key":"e_1_2_10_25_1","doi-asserted-by":"publisher","DOI":"10.1186\/s40337-022-00719-2"},{"key":"e_1_2_10_26_1","doi-asserted-by":"publisher","DOI":"10.1037\/bul0000118"},{"key":"e_1_2_10_27_1","doi-asserted-by":"publisher","DOI":"10.1080\/088704403100081321"},{"key":"e_1_2_10_28_1","unstructured":"Hanson. (2019).Family\u2010based treatment for young people's eating disorders: Aan interpretative phenomenological analysis of parental perspectives and clinical research portfolio."},{"key":"e_1_2_10_29_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.eurpsy.2019.02.001"},{"key":"e_1_2_10_30_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.chiabu.2019.104136"},{"key":"e_1_2_10_31_1","doi-asserted-by":"publisher","DOI":"10.1080\/10640260591005245"},{"key":"e_1_2_10_32_1","doi-asserted-by":"publisher","DOI":"10.1177\/1049732305285511"},{"issue":"2","key":"e_1_2_10_33_1","first-page":"157","article-title":"The impact of daughters' eating disorders on mothers' sense of self: Contextualizing mothering experiences [Eating Disorders 3260]","volume":"35","author":"Hoskins M. L.","year":"2001","journal-title":"Canadian Journal of Counselling"},{"key":"e_1_2_10_34_1","doi-asserted-by":"publisher","DOI":"10.1111\/1467-6427.12055"},{"key":"e_1_2_10_35_1","doi-asserted-by":"publisher","DOI":"10.1177\/1049732305276687"},{"key":"e_1_2_10_36_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10826-017-0676-x"},{"key":"e_1_2_10_37_1","doi-asserted-by":"publisher","DOI":"10.1080\/17437199.2018.1437550"},{"key":"e_1_2_10_38_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12888-021-03345-5"},{"key":"e_1_2_10_39_1","first-page":"278","article-title":"The person with an eating disorder","volume":"32","author":"Keaschuk R. A.","year":"2009","journal-title":"Psychiatric and Mental Health Nursing"},{"key":"e_1_2_10_40_1","doi-asserted-by":"publisher","DOI":"10.1080\/10640266.2010.511937"},{"key":"e_1_2_10_41_1","doi-asserted-by":"publisher","DOI":"10.1080\/08870446.2020.1859113"},{"key":"e_1_2_10_42_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00127-007-0165-4"},{"key":"e_1_2_10_43_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jocn.2020.07.071"},{"key":"e_1_2_10_44_1","first-page":"7","article-title":"The common sense representation of illness danger","volume":"2","author":"Leventhal H.","year":"1980","journal-title":"Contributions to Medical Psychology"},{"key":"e_1_2_10_45_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10865-016-9782-2"},{"key":"e_1_2_10_46_1","volume-title":"Illness representations and coping with health threats","author":"Leventhal H.","year":"2020"},{"key":"e_1_2_10_47_1","doi-asserted-by":"publisher","DOI":"10.7326\/0003-4819-151-4-200908180-00136"},{"key":"e_1_2_10_48_1","doi-asserted-by":"publisher","DOI":"10.1177\/1359105315613132"},{"key":"e_1_2_10_49_1","volume-title":"Treatment manual for anorexia nervosa: A family\u2010based approach","author":"Lock J.","year":"2015"},{"issue":"3","key":"e_1_2_10_50_1","first-page":"179","article-title":"Qualitative research synthesis: methodological guidance for systematic reviewers utilizing meta\u2010aggregation","volume":"13","author":"Lockwood C.","year":"2015","journal-title":"JBI Evidence Implementation"},{"key":"e_1_2_10_51_1","doi-asserted-by":"publisher","DOI":"10.1002\/eat.23958"},{"key":"e_1_2_10_52_1","doi-asserted-by":"publisher","DOI":"10.1192\/bjo.2021.27"},{"key":"e_1_2_10_53_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12888-015-0507-9"},{"key":"e_1_2_10_54_1","doi-asserted-by":"publisher","DOI":"10.11613\/bm.2012.031"},{"key":"e_1_2_10_55_1","doi-asserted-by":"publisher","DOI":"10.1111\/jocn.16013"},{"key":"e_1_2_10_56_1","unstructured":"McMullen D. M.(2018).Managing a daughter's eating disorder: The mothers' experiences [Health Psychology & Medicine 3360]. Dissertation Abstracts International: Section B: The Sciences and Engineering 78(11\u2010B(E)) No\u2010Specified.http:\/\/ovidsp.ovid.com\/ovidweb.cgi?T=JS&PAGE=reference&D=psyc15&NEWS=N&AN=2017-36665-238(Dissertation Abstracts International)"},{"key":"e_1_2_10_57_1","doi-asserted-by":"publisher","DOI":"10.1093\/schbul\/sbu040"},{"key":"e_1_2_10_58_1","doi-asserted-by":"publisher","DOI":"10.1023\/A:1021807106455"},{"key":"e_1_2_10_59_1","doi-asserted-by":"publisher","DOI":"10.1080\/08870440290001494"},{"key":"e_1_2_10_60_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10597-010-9325-1"},{"key":"e_1_2_10_61_1","unstructured":"National Institute for Health and Care Excellence. (2017).Eating disorders: Recognition and treatment [NICE guide\u2010lines].www.nice.org.uk\/guidance\/ng69"},{"key":"e_1_2_10_62_1","doi-asserted-by":"publisher","DOI":"10.1080\/0075417X.2021.1934717"},{"key":"e_1_2_10_63_1","unstructured":"Ott E. E.(2021).Parents caring for a son with anorexia: Stress coping and the marital relationship [Health & Mental Health Treatment & Prevention 3300]. Dissertation Abstracts International: Section B: The Sciences and Engineering 82(2\u2010B) No\u2010Specified.http:\/\/ovidsp.ovid.com\/ovidweb.cgi?T=JS&PAGE=reference&D=psyc18&NEWS=N&AN=2020-67315-245(Dissertation Abstracts International)"},{"key":"e_1_2_10_64_1","doi-asserted-by":"publisher","DOI":"10.1002\/erv.2780"},{"key":"e_1_2_10_65_1","doi-asserted-by":"publisher","DOI":"10.1111\/eip.13224"},{"key":"e_1_2_10_66_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10567-017-0243-4"},{"key":"e_1_2_10_67_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11136-018-2009-y"},{"key":"e_1_2_10_68_1","doi-asserted-by":"publisher","DOI":"10.1186\/1472-6963-9-171"},{"key":"e_1_2_10_69_1","doi-asserted-by":"publisher","DOI":"10.1080\/10810730802281627"},{"key":"e_1_2_10_70_1","doi-asserted-by":"publisher","DOI":"10.1177\/1063426614532832"},{"key":"e_1_2_10_71_1","doi-asserted-by":"publisher","DOI":"10.1080\/10640269908251191"},{"key":"e_1_2_10_72_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0207692"},{"key":"e_1_2_10_73_1","first-page":"1","article-title":"Qualitative psychology: A practical guide to research methods","author":"Smith J. A.","year":"2015","journal-title":"Qualitative Psychology"},{"key":"e_1_2_10_74_1","doi-asserted-by":"publisher","DOI":"10.3109\/02770903.2015.1116088"},{"key":"e_1_2_10_75_1","doi-asserted-by":"publisher","DOI":"10.1080\/10640266.2014.940790"},{"key":"e_1_2_10_76_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijnurstu.2020.103723"},{"key":"e_1_2_10_77_1","doi-asserted-by":"publisher","DOI":"10.1080\/10640266.2013.827537"},{"key":"e_1_2_10_78_1","doi-asserted-by":"publisher","DOI":"10.1177\/1359104512465741"},{"key":"e_1_2_10_79_1","doi-asserted-by":"publisher","DOI":"10.1080\/10640260591005254"},{"key":"e_1_2_10_80_1","volume-title":"The clinician's guide to collaborative caring in eating disorders: The new Maudsley method"},{"key":"e_1_2_10_81_1","doi-asserted-by":"publisher","DOI":"10.4324\/9781315735610"},{"key":"e_1_2_10_82_1","doi-asserted-by":"publisher","DOI":"10.2307\/2096348"},{"key":"e_1_2_10_83_1","doi-asserted-by":"publisher","DOI":"10.1080\/08870446.2013.879135"},{"key":"e_1_2_10_84_1","doi-asserted-by":"publisher","DOI":"10.1111\/1467-6427.12067"},{"key":"e_1_2_10_85_1","doi-asserted-by":"publisher","DOI":"10.1002\/erv.1077"},{"key":"e_1_2_10_86_1","doi-asserted-by":"publisher","DOI":"10.1348\/014466507X173781"},{"key":"e_1_2_10_87_1","doi-asserted-by":"publisher","DOI":"10.1192\/bjp.187.5.444"},{"key":"e_1_2_10_88_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10826-022-02525-5"},{"key":"e_1_2_10_89_1","doi-asserted-by":"publisher","DOI":"10.1177\/1049732320939508"},{"key":"e_1_2_10_90_1","doi-asserted-by":"publisher","DOI":"10.1080\/0312407X.2019.1702707"},{"key":"e_1_2_10_91_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10567-017-0245-2"},{"key":"e_1_2_10_92_1","doi-asserted-by":"publisher","DOI":"10.1186\/s40337-019-0235-5"}],"container-title":["International Journal of Eating Disorders"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/eat.24081","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,5,14]],"date-time":"2024-05-14T01:16:09Z","timestamp":1715649369000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1002\/eat.24081"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2023,11,2]]},"references-count":91,"journal-issue":{"issue":"5","published-print":{"date-parts":[[2024,5]]}},"alternative-id":["10.1002\/eat.24081"],"URL":"https:\/\/doi.org\/10.1002\/eat.24081","archive":["Portico"],"relation":{},"ISSN":["0276-3478","1098-108X"],"issn-type":[{"value":"0276-3478","type":"print"},{"value":"1098-108X","type":"electronic"}],"subject":[],"published":{"date-parts":[[2023,11,2]]},"assertion":[{"value":"2023-05-11","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2023-10-09","order":1,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2023-11-02","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}