{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,19]],"date-time":"2026-08-19T19:06:04Z","timestamp":1787166364399,"version":"build-2736575974"},"reference-count":43,"publisher":"Wiley","issue":"6","license":[{"start":{"date-parts":[[2025,5,13]],"date-time":"2025-05-13T00:00:00Z","timestamp":1747094400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["European Journal of Pain"],"published-print":{"date-parts":[[2025,7]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Endometriosis may manifest through various pain symptoms, such as dysmenorrhea, dyspareunia, dyschezia, dysuria and abdominal pain. While retrospective evaluation of these pain symptoms is less expensive and time\u2010consuming compared to a prospective evaluation, there is potential for recall bias, and the reliability of such data needs to be assessed. We aimed to evaluate the reliability of questions on past endometriosis\u2010related pain.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>\n                      We conducted a reliability study within ComPaRe\u2010Endometriosis, an ongoing prospective e\u2010cohort including patients with endometriosis. We assessed past endometriosis\u2010related pain over a lifetime using the WERF\u2010EPHect Patient Questionnaire\u2014Standard (EPQ\u2010S). Participants rated the worst intensity of dysmenorrhea, dyspareunia, dyschezia, dysuria and abdominal pain that they experienced at \u2264\u200915, 16\u201320, 21\u201330, 31\u201340 and &gt;\u200940\u2009years using a numeric\u2010rating scale (NRS). We asked the same questions about 1\u2009year later and measured the agreement between participant responses by calculating intraclass correlation coefficients (ICC) (continuous NRS level) and weighted kappa coefficients (\n                      <jats:italic>\u03ba<\/jats:italic>\n                      <jats:sub>w<\/jats:sub>\n                      ) (pain intensity categories).\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      A total of 1752 participants completed both surveys. The global reliability was close to the \u2018good\u2019 and \u2018substantial\u2019 thresholds for dysmenorrhea (ICC\u2009=\u20090.74;\n                      <jats:italic>\u03ba<\/jats:italic>\n                      <jats:sub>w<\/jats:sub>\n                      \u2009=\u20090.57) and dyspareunia (ICC\u2009=\u20090.72;\n                      <jats:italic>\u03ba<\/jats:italic>\n                      <jats:sub>w<\/jats:sub>\n                      \u2009=\u20090.57), \u2018moderate\u2019 and close to the \u2018substantial\u2019 threshold for dysuria (ICC\u2009=\u20090.68;\n                      <jats:italic>\u03ba<\/jats:italic>\n                      <jats:sub>w<\/jats:sub>\n                      \u2009=\u20090.59), and \u2018moderate\u2019 for dyschezia (ICC\u2009=\u20090.62;\n                      <jats:italic>\u03ba<\/jats:italic>\n                      <jats:sub>w<\/jats:sub>\n                      \u2009=\u20090.54) and abdominal pain (ICC\u2009=\u20090.58;\n                      <jats:italic>\u03ba<\/jats:italic>\n                      <jats:sub>w<\/jats:sub>\n                      \u2009=\u20090.49).\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>In this population, questions on worst pain intensity over the life course showed moderate\u2010to\u2010good reliability depending on the type of pain, with higher reliability when pain level was considered as a continuous variable.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Significance Statement<\/jats:title>\n                    <jats:p>While prospective measures are the most robust approach in epidemiological research, longitudinal data with pain recorded since childhood or adolescence are scarce. This study shows that the worst level of pelvic and abdominal pain over the life course are reliably reported by endometriosis patients after a 1\u2010year interval. These findings suggest that retrospective pain assessment may reliably be used to assess trajectories of pain over the life course in order to gain insights into the progression of pain\u2010related conditions such as endometriosis.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1002\/ejp.70040","type":"journal-article","created":{"date-parts":[[2025,5,13]],"date-time":"2025-05-13T03:45:09Z","timestamp":1747107909000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":5,"title":["Retrospective Assessment of Endometriosis Pain Over the Life Course: A Reliability Study Within the\n                    <scp>ComPaRe<\/scp>\n                    \u2010Endometriosis Cohort"],"prefix":"10.1002","volume":"29","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-6238-2452","authenticated-orcid":false,"given":"Sol\u00e8ne","family":"Gouesbet","sequence":"first","affiliation":[{"name":"Universit\u00e9 Paris\u2010Saclay, UVSQ, Inserm, Gustave Roussy, CESP  Villejuif France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sarah","family":"Lambert","sequence":"additional","affiliation":[{"name":"Universit\u00e9 Paris\u2010Saclay, UVSQ, Inserm, Gustave Roussy, CESP  Villejuif France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"H\u00e9l\u00e8ne","family":"Amazouz","sequence":"additional","affiliation":[{"name":"Universit\u00e9 Paris\u2010Saclay, UVSQ, Inserm, Gustave Roussy, CESP  Villejuif France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Z\u00e9lia","family":"Breton","sequence":"additional","affiliation":[{"name":"Universit\u00e9 Paris\u2010Saclay, UVSQ, Inserm, Gustave Roussy, CESP  Villejuif France"},{"name":"Lyv Healthcare  Nantes France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Viet\u2010Thi","family":"Tran","sequence":"additional","affiliation":[{"name":"Center for Clinical Epidemiology, H\u00f4tel\u2010Dieu Hospital, Assistance Publique\u2010H\u00f4pitaux de Paris (AP\u2010HP)  Paris France"},{"name":"Universit\u00e9 de Paris, CRESS, INSERM, INRA  Paris France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Stacey","family":"Missmer","sequence":"additional","affiliation":[{"name":"Michigan State University  Grand Rapids Michigan USA"},{"name":"Harvard T.H. 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