{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,30]],"date-time":"2026-10-30T16:03:07Z","timestamp":1793376187306,"version":"4.5.0"},"reference-count":40,"publisher":"Wiley","issue":"9","license":[{"start":{"date-parts":[[2026,7,8]],"date-time":"2026-07-08T00:00:00Z","timestamp":1783468800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"},{"start":{"date-parts":[[2026,7,8]],"date-time":"2026-07-08T00:00:00Z","timestamp":1783468800000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Epilepsia"],"published-print":{"date-parts":[[2026,9]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>Epilepsy surgery is a recommended treatment for individuals with drug\u2010resistant epilepsy. However, patients often face significant challenges in decision\u2010making due to a lack of accessible and high\u2010quality information.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>We conducted a scoping review to identify the information needs of people considering surgery for epilepsy. Nine databases were searched between 1990 and 2025 to identify research relevant to this review. We included studies that described the information needs of people considering epilepsy surgery and that evaluated available resources to support this decision. Abstract screening, full text review, and data charting were done in duplicate. Risk of bias assessment was completed by one reviewer.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      We identified 2949 studies, of which 18 were included, addressing the following topics: patient informational needs (\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u200912), resources designed to support patients through epilepsy surgery decision\u2010making (\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u20095), and resource readability (\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u20092). Themes of information needs included discussion of risks and benefits, personalized prognosis, medical assessments needed to determine eligibility, and procedure\u2010specific outcomes. Six studies identified the importance of involving epilepsy specialists in information sharing, and six highlighted the importance of patient testimonials. Multiple studies suggested current resources lack clarity and consistency, and two identified average readability of available resources to be at or above grade 12 level. Five studies evaluated resources including a mixed reality education tool, a caregiver intensive information program, use of a decision coach, and a patient information program. Providing patient\u2010centered information can reduce anxiety\/depression and increase quality of life for patients and caregivers.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Significance<\/jats:title>\n                    <jats:p>This review highlights critical gaps in the quality and accessibility of information for individuals considering epilepsy surgery. Patient testimonials emerged as a powerful tool in supporting informed decision\u2010making. Future efforts should focus on developing culturally responsive, readable, and patient\u2010centered resources tailored to diverse epilepsy populations.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1002\/epi.70262","type":"journal-article","created":{"date-parts":[[2026,7,9]],"date-time":"2026-07-09T00:05:59Z","timestamp":1783555559000},"page":"4411-4426","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":2,"title":["Information needs of patients considering epilepsy surgery: A scoping review"],"prefix":"10.1002","volume":"67","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-0847-5567","authenticated-orcid":false,"given":"Maren","family":"Kimura","sequence":"first","affiliation":[{"name":"Department of Clinical Neurosciences University of Calgary  Calgary Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0000-0416-5812","authenticated-orcid":false,"given":"Shahab","family":"Marzoughi","sequence":"additional","affiliation":[{"name":"Department of Clinical Neurosciences University of Calgary  Calgary Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ashley","family":"Truesdale","sequence":"additional","affiliation":[{"name":"Schulich School of Medicine University of Western Ontario  London Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8423-3458","authenticated-orcid":false,"given":"Diane L.","family":"Lorenzetti","sequence":"additional","affiliation":[{"name":"Department of Community Health Sciences University of Calgary  Calgary Alberta Canada"},{"name":"Health Sciences Library University of Calgary  Calgary Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7052-1651","authenticated-orcid":false,"given":"Colin B.","family":"Josephson","sequence":"additional","affiliation":[{"name":"Department of Clinical Neurosciences University of Calgary  Calgary Alberta Canada"},{"name":"Department of Community Health Sciences University of Calgary  Calgary Alberta Canada"},{"name":"Centre for Health Informatics University of Calgary  Calgary Alberta Canada"},{"name":"Institute of Health Informatics University College London  London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Derek","family":"Payne","sequence":"additional","affiliation":[{"name":"Calgary Epilepsy Program Alberta Health Services  Edmonton Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9904-2240","authenticated-orcid":false,"given":"Churl\u2010Su","family":"Kwon","sequence":"additional","affiliation":[{"name":"Departments of Neurology, Epidemiology, and Neurosurgery and Gertrude H. Sergievsky Center Columbia University  New York New York USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1351-5866","authenticated-orcid":false,"given":"Nathalie","family":"Jette","sequence":"additional","affiliation":[{"name":"Department of Clinical Neurosciences University of Calgary  Calgary Alberta Canada"},{"name":"Schulich School of Medicine University of Western Ontario  London Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,7,8]]},"reference":[{"key":"e_1_2_10_2_1","doi-asserted-by":"publisher","DOI":"10.1212\/WNL.0000000000011839"},{"key":"e_1_2_10_3_1","doi-asserted-by":"publisher","DOI":"10.1111\/epi.17644"},{"key":"e_1_2_10_4_1","doi-asserted-by":"publisher","DOI":"10.1016\/S1474\u20104422(08)70109\u20101"},{"key":"e_1_2_10_5_1","doi-asserted-by":"publisher","DOI":"10.1111\/epi.17413"},{"key":"e_1_2_10_6_1","doi-asserted-by":"publisher","DOI":"10.1212\/WNL.0000000000007753"},{"key":"e_1_2_10_7_1","doi-asserted-by":"publisher","DOI":"10.1111\/epi.17350"},{"key":"e_1_2_10_8_1","doi-asserted-by":"publisher","DOI":"10.1111\/epi.12791"},{"key":"e_1_2_10_9_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.yebeh.2012.04.126"},{"key":"e_1_2_10_10_1","doi-asserted-by":"publisher","DOI":"10.3389\/fneur.2021.780306"},{"key":"e_1_2_10_11_1","doi-asserted-by":"publisher","DOI":"10.7326\/M18\u20100850"},{"key":"e_1_2_10_12_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1528\u20101167.2009.02038.x"},{"key":"e_1_2_10_13_1","unstructured":"ROBINS\u2010I|Cochrane Bias. 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