{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,9]],"date-time":"2026-10-09T13:05:41Z","timestamp":1791551141923,"version":"4.3.4"},"reference-count":32,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2025,3,5]],"date-time":"2025-03-05T00:00:00Z","timestamp":1741132800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100000272","name":"National Institute for Health and Care Research","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100000272","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Euro Eating Disorders Rev"],"published-print":{"date-parts":[[2025,7]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>To synthesise qualitative findings on the autistic experience of restrictive eating disorders in order to identify common themes and use this to inform future research on the development of more effective care.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Method<\/jats:title>\n                    <jats:p>This systematic review was pre\u2010registered on PROSPERO (CRD42023434116) and followed PRISMA guidelines. CINAHL, PsycINFO, Medline, Embase, Web of Science and Global Health databases were searched. Studies were included if they contained qualitative data detailing the autistic experience of restrictive eating disorders from autistic people, carers or healthcare professionals. The Critical Appraisal Skills Programme was used to assess quality of studies. Recurring themes were identified via thematic synthesis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Nine studies met the inclusion criteria, all focused on anorexia nervosa. Four themes arose from the analysis: (1) the relationship between autism and restrictive eating; (2) the journey to self\u2010understanding; (3) experience of eating disorder services; (4) suggested treatment adaptations.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Findings suggest a broad range of mechanisms underlying the development and perpetuation of anorexia nervosa that are related to autism and are not consistently acknowledged and addressed in current care provision. This emphasises the need for more research into developing adapted or novel interventions for autistic people with eating disorders, as well as training programmes for clinicians.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1002\/erv.3181","type":"journal-article","created":{"date-parts":[[2025,3,12]],"date-time":"2025-03-12T02:39:16Z","timestamp":1741747156000},"page":"800-814","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":16,"title":["Understanding the Autistic Experience of Restrictive Eating Disorders\u2014A Systematic Review and Qualitative\u2010Synthesis"],"prefix":"10.1002","volume":"33","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-4646-6514","authenticated-orcid":false,"given":"Rachel","family":"Loomes","sequence":"first","affiliation":[{"name":"Department of Clinical, Educational &amp; Health Psychology University College London London UK"},{"name":"Children &amp; Young Persons' Community Eating Disorder Service South West London &amp; St George's Mental Health NHS Trust London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Katy","family":"Chivers","sequence":"additional","affiliation":[{"name":"Florence Nightingale Faculty of Nursing, Midwifery &amp; Palliative Care King's College London London UK"},{"name":"The Bethlem Royal Hospital South London and Maudsley NHS Foundation Trust London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Chlo\u00e9","family":"Georgeaux\u2010Healy","sequence":"additional","affiliation":[{"name":"Department of Clinical, Educational &amp; Health Psychology University College London London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3564-5808","authenticated-orcid":false,"given":"Will","family":"Mandy","sequence":"additional","affiliation":[{"name":"Department of Clinical, Educational &amp; Health Psychology University College London London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4084-7786","authenticated-orcid":false,"given":"Tom","family":"Jewell","sequence":"additional","affiliation":[{"name":"Florence Nightingale Faculty of Nursing, Midwifery &amp; Palliative Care King's College London London UK"},{"name":"Psychological and Mental Health Services Great Ormond Street Hospital NHS Foundation Trust London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2025,3,5]]},"reference":[{"key":"e_1_2_15_2_1","doi-asserted-by":"publisher","DOI":"10.1192\/bjo.2020.36"},{"key":"e_1_2_15_3_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jaac.2011.11.003"},{"key":"e_1_2_15_4_1","doi-asserted-by":"publisher","DOI":"10.1176\/appi.books.9780890425596"},{"key":"e_1_2_15_5_1","doi-asserted-by":"publisher","DOI":"10.1001\/archgenpsychiatry.2011.74"},{"key":"e_1_2_15_6_1","doi-asserted-by":"publisher","DOI":"10.1177\/1362361321991257"},{"key":"e_1_2_15_7_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10803\u2010016\u20102872\u20108"},{"key":"e_1_2_15_8_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10803\u2010020\u201004479\u20103"},{"key":"e_1_2_15_9_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10803\u2010020\u201004425\u20103"},{"key":"e_1_2_15_10_1","doi-asserted-by":"publisher","DOI":"10.1002\/wps.20128"},{"key":"e_1_2_15_11_1","unstructured":"Critical Appraisal Skills Programme (CASP).2018. \u201cCASP Qualitative Studies Checklist.\u201dhttps:\/\/casp\u2010uk.net\/casp\u2010tools\u2010checklists\/."},{"key":"e_1_2_15_12_1","doi-asserted-by":"publisher","DOI":"10.4236\/psych.2014.511144"},{"key":"e_1_2_15_13_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jaac.2012.05.018"},{"key":"e_1_2_15_14_1","volume-title":"Cognitive Behavior Therapy and Eating Disorders","author":"Fairburn C.","year":"2008"},{"key":"e_1_2_15_15_1","doi-asserted-by":"publisher","DOI":"10.1186\/s40337\u2010023\u201000740\u2010z"},{"issue":"1","key":"e_1_2_15_16_1","first-page":"34","article-title":"Missed Diagnosis or Misdiagnosis? Girls and Women on the Autism Spectrum","volume":"12","author":"Gould J.","year":"2011","journal-title":"Good Autism Practice"},{"key":"e_1_2_15_17_1","doi-asserted-by":"publisher","DOI":"10.1007\/s40489\u2010020\u201000197\u20109"},{"key":"e_1_2_15_18_1","doi-asserted-by":"publisher","DOI":"10.1177\/1362361315588200"},{"key":"e_1_2_15_19_1","doi-asserted-by":"publisher","DOI":"10.1080\/09540261.2018.1531831"},{"key":"e_1_2_15_20_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12888\u2010017\u20101455\u20103"},{"key":"e_1_2_15_21_1","doi-asserted-by":"publisher","DOI":"10.1186\/s40337\u2010021\u201000397\u20106"},{"key":"e_1_2_15_22_1","doi-asserted-by":"publisher","DOI":"10.1016\/s0140\u20106736(13)61539\u20101"},{"key":"e_1_2_15_23_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jaac.2017.03.013"},{"key":"e_1_2_15_24_1","volume-title":"Autism Diagnostic Observation Schedule Second Edition (ADOS\u20102) Manual (Part 1): Modules 1\u20134","author":"Lord C.","year":"2012"},{"key":"e_1_2_15_25_1","unstructured":"National Institute for Health and Care Excellence.2017. \u201cEating Disorders.\u201d: (NICE Guideline ng69).https:\/\/www.nice.org.uk\/guidance\/ng69."},{"key":"e_1_2_15_26_1","doi-asserted-by":"publisher","DOI":"10.1186\/s13229\u2010015\u20100013\u20104"},{"key":"e_1_2_15_27_1","doi-asserted-by":"publisher","DOI":"10.1186\/s40337\u2010023\u201000813\u2010z"},{"key":"e_1_2_15_28_1","doi-asserted-by":"publisher","DOI":"10.1007\/s40489\u2010023\u201000361\u2010x"},{"key":"e_1_2_15_29_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.n71"},{"key":"e_1_2_15_30_1","volume-title":"Handbook for Synthesizing Qualitative Research","author":"Sandelowski M.","year":"2007"},{"key":"e_1_2_15_31_1","doi-asserted-by":"publisher","DOI":"10.1177\/1362361317722431"},{"key":"e_1_2_15_32_1","doi-asserted-by":"publisher","DOI":"10.1186\/1471\u20102288\u20108\u201045"},{"key":"e_1_2_15_33_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11920\u2010017\u20100791\u20109"}],"container-title":["European Eating Disorders Review"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/erv.3181","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,11,20]],"date-time":"2025-11-20T13:26:11Z","timestamp":1763645171000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1002\/erv.3181"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,3,5]]},"references-count":32,"journal-issue":{"issue":"4","published-print":{"date-parts":[[2025,7]]}},"alternative-id":["10.1002\/erv.3181"],"URL":"https:\/\/doi.org\/10.1002\/erv.3181","archive":["Portico"],"relation":{},"ISSN":["1072-4133","1099-0968"],"issn-type":[{"value":"1072-4133","type":"print"},{"value":"1099-0968","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025,3,5]]},"assertion":[{"value":"2024-07-01","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2025-01-28","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2025-03-05","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}