{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,4]],"date-time":"2026-10-04T13:21:48Z","timestamp":1791120108579,"version":"4.1.0"},"reference-count":32,"publisher":"Wiley","issue":"3","license":[{"start":{"date-parts":[[2008,8,26]],"date-time":"2008-08-26T00:00:00Z","timestamp":1219708800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Int J Geriat Psychiatry"],"published-print":{"date-parts":[[2009,3]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Objective<\/jats:title><jats:p>An economic evaluation of dementia\u2010related interventions from a societal perspective should take account of informal caregiving. We assessed informal caregiving time and report our findings on the validity and stability of our results.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Within the German IDA study (\u2018Dementia Care Initiative in Primary Practice\u2019), informal care time for people with dementia living at home is assessed. We applied a German adaptation of the Resource Utilization in Dementia (RUD) questions on informal care, which distinguishes three categories of informal care activities: Activities of Daily Living (ADL), Instrumental ADL (IADL), and supervision. In contrast to the original version, we included the time of all informal caregivers who are involved in caring for the patient. The questionnaire was completed as a computer\u2010assisted telephone interview at baseline and after 1\u2009year. To test the plausibility of the questionnaire, we proposed seven hypotheses about the reported informal care time.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Nearly all results confirmed our hypotheses. Informal care time as well as changes over time correlated with the physical and mental health status of the patient. Considering the time of other informal caregivers led to slightly higher correlations (not significant). The results indicate that interviewees seem to underestimate particularly the time of supervision of other informal caregivers.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>In sum, the instrument gives plausible results and is suited for measuring informal care time, as well as changes over time. If it is not possible to directly interview each caregiver involved, it is of great importance to identify and interview the primary informal caregiver in order to prevent an underestimation of total informal care time. Copyright \u00a9 2008 John Wiley &amp; Sons, Ltd.<\/jats:p><\/jats:sec>","DOI":"10.1002\/gps.2103","type":"journal-article","created":{"date-parts":[[2008,8,26]],"date-time":"2008-08-26T07:14:47Z","timestamp":1219734887000},"page":"275-282","source":"Crossref","is-referenced-by-count":34,"title":["A valid instrument for measuring informal care time for people with dementia"],"prefix":"10.1002","volume":"24","author":[{"given":"Simone","family":"Neubauer","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rolf","family":"Holle","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Petra","family":"Menn","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Elmar","family":"Gr\u00e4\u00dfel","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2008,8,26]]},"reference":[{"key":"e_1_2_1_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0895-4356(03)00175-6"},{"key":"e_1_2_1_3_1","volume-title":"Das Wichtigste\u2014Die Epidemiologie der Demenz","author":"Bickel H","year":"2006"},{"key":"e_1_2_1_4_1","doi-asserted-by":"publisher","DOI":"10.1017\/S0266462399152346"},{"key":"e_1_2_1_5_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.healthpol.2004.12.008"},{"key":"e_1_2_1_6_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11136-005-5994-6"},{"key":"e_1_2_1_7_1","doi-asserted-by":"publisher","DOI":"10.1016\/0009-9236(95)90201-5"},{"key":"e_1_2_1_8_1","doi-asserted-by":"publisher","DOI":"10.1002\/(SICI)1099-1166(199710)12:10<978::AID-GPS659>3.0.CO;2-1"},{"key":"e_1_2_1_9_1","unstructured":"EngelsD PfeufferF Heinemann KnochM et al.2005.M\u00f6glichkeiten und Grenzen selbst\u00e4ndiger Lebensf\u00fchrung in privaten Haushalten (MUG III)\u2014Potential and Limitation of Independent Living in Private Households in Germany. Schneekloth U Wahl HW: M\u00fcnchen."},{"key":"e_1_2_1_10_1","unstructured":"Federal Statistical Office.2006.Gesundheit\u2014Ausgaben Krankheitskosten und Personal 2004 (Health \u2014 Expenditures cost of illness and personnel 2004)Wiesbaden."},{"key":"e_1_2_1_11_1","doi-asserted-by":"publisher","DOI":"10.1016\/0022-3956(75)90026-6"},{"key":"e_1_2_1_12_1","unstructured":"Gr\u00e4\u00dfelE ChiuT OliverR.2003.Development and Validation of the Burden Scale for Family Caregivers (BSFC)COTA Comprehensive Rehabilitation and Mental Health Services: Toronto."},{"key":"e_1_2_1_13_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10198-004-0264-z"},{"key":"e_1_2_1_14_1","first-page":"73","article-title":"Costs of medical treatment of Alzheimer patients in Germany","volume":"5","author":"Hallauer JF","year":"2000","journal-title":"Gesundheits\u00f6konomie & Qualit\u00e4tsmanagement"},{"key":"e_1_2_1_15_1","doi-asserted-by":"publisher","DOI":"10.1186\/1471-2458-5-133"},{"key":"e_1_2_1_16_1","doi-asserted-by":"publisher","DOI":"10.1002\/gps.1489"},{"key":"e_1_2_1_17_1","doi-asserted-by":"publisher","DOI":"10.1097\/01.wad.0000201851.52707.c9"},{"key":"e_1_2_1_18_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.zgesun.2006.12.004"},{"key":"e_1_2_1_19_1","doi-asserted-by":"publisher","DOI":"10.3310\/hta10010"},{"key":"e_1_2_1_20_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00391-004-0233-2"},{"key":"e_1_2_1_21_1","doi-asserted-by":"publisher","DOI":"10.1002\/1099-1166(200008)15:8<680::AID-GPS180>3.0.CO;2-7"},{"key":"e_1_2_1_22_1","unstructured":"MoiseP SchwarzingerM Myung\u2010YongU and the Dementia Experts Group.2004.Dementia Care in 9 OECD Countries: a comparative analysis. OECD."},{"key":"e_1_2_1_23_1","article-title":"Measurement of informal care time in a study of patients with dementia","author":"Neubauer S","journal-title":"Int Psychogeriatr"},{"key":"e_1_2_1_24_1","doi-asserted-by":"publisher","DOI":"10.1002\/(SICI)1099-1166(200003)15:3<208::AID-GPS95>3.0.CO;2-X"},{"key":"e_1_2_1_25_1","volume-title":"Health Measurement Scales\u2014A Pracitcal Guide to Their Development and Use","author":"Streiner DL","year":"1995"},{"key":"e_1_2_1_26_1","doi-asserted-by":"publisher","DOI":"10.1016\/0168-8510(90)90421-9"},{"key":"e_1_2_1_27_1","doi-asserted-by":"publisher","DOI":"10.1002\/hec.1075"},{"key":"e_1_2_1_28_1","doi-asserted-by":"publisher","DOI":"10.1017\/S1041610296002864"},{"key":"e_1_2_1_29_1","doi-asserted-by":"publisher","DOI":"10.1002\/(SICI)1099-1166(199708)12:8<841::AID-GPS652>3.0.CO;2-R"},{"key":"e_1_2_1_30_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.archger.2006.03.001"},{"key":"e_1_2_1_31_1","doi-asserted-by":"publisher","DOI":"10.1002\/1099-1166(200010)15:10<969::AID-GPS272>3.0.CO;2-9"},{"key":"e_1_2_1_32_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0168-8510(02)00010-6"},{"key":"e_1_2_1_33_1","first-page":"465","volume-title":"Health Economics of Dementia","author":"Wimo A","year":"1998"}],"container-title":["International Journal of Geriatric Psychiatry"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1002%2Fgps.2103","content-type":"unspecified","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/gps.2103","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,11,15]],"date-time":"2023-11-15T16:05:54Z","timestamp":1700064354000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1002\/gps.2103"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2008,8,26]]},"references-count":32,"journal-issue":{"issue":"3","published-print":{"date-parts":[[2009,3]]}},"alternative-id":["10.1002\/gps.2103"],"URL":"https:\/\/doi.org\/10.1002\/gps.2103","archive":["Portico"],"relation":{},"ISSN":["0885-6230","1099-1166"],"issn-type":[{"value":"0885-6230","type":"print"},{"value":"1099-1166","type":"electronic"}],"subject":[],"published":{"date-parts":[[2008,8,26]]}}}