{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,15]],"date-time":"2026-07-15T18:58:19Z","timestamp":1784141899254,"version":"3.55.0"},"reference-count":27,"publisher":"Wiley","issue":"7","license":[{"start":{"date-parts":[[2016,6,7]],"date-time":"2016-06-07T00:00:00Z","timestamp":1465257600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"name":"Department of Health Policy Research Programme","award":["0700071"],"award-info":[{"award-number":["0700071"]}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Int J Geriat Psychiatry"],"published-print":{"date-parts":[[2017,7]]},"abstract":"<jats:sec><jats:title>Objective<\/jats:title><jats:p>This study aimed to investigate the reliability and validity of a self\u2010administered version of DEMQOL\u2010Proxy, a disease\u2010specific instrument that measures health\u2010related quality of life in people with dementia.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>The sample consisted of 173 informal carers of people with dementia, aged 29 to 89\u2009years old. Carers were mostly female, White\/White British and closely related to the patient. They completed DEMQOL\u2010Proxy (self\u2010administered), EQ\u20105D\u20103L (proxy reported about the person with dementia), EQ\u20105D\u20103L (self\u2010reported about their own health) and the Zarit Burden Interview. Using well\u2010established methods from classical test theory, we evaluated scale level acceptability, reliability and convergent, discriminant and known\u2010groups validity of DEMQOL\u2010Proxy.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>DEMQOL\u2010Proxy (self\u2010administered) showed high acceptability (3.5% missing data and 0% scores at floor or ceiling), high internal consistency reliability (<jats:italic>\u03b1<\/jats:italic>\u2009=\u20090.93) and good convergent and discriminant validity. Amongst others, we found a moderately high correlation with EQ\u20105D\u20103L proxy reported (<jats:italic>r<\/jats:italic>\u2009=\u20090.52) and low to essentially zero correlations with EQ\u20105D\u20103L self\u2010reported (<jats:italic>r<\/jats:italic>\u2009=\u20090.20) and carer and patient background variables (<jats:italic>r<\/jats:italic>\u2009\u2264\u20090.20). As predicted, DEMQOL\u2010Proxy (self\u2010administered) showed a modest correlation with DEMQOL (<jats:italic>r<\/jats:italic>\u2009=\u20090.32). Known\u2010groups differences on health\u2010related quality of life (comparing people with versus people without cognitive impairment) were of moderate effect size (<jats:italic>d<\/jats:italic>\u2009=\u20090.38) and in the expected direction.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>DEMQOL\u2010Proxy (self\u2010administered) has comparable acceptability, reliability and validity with DEMQOL\u2010Proxy (interviewer administered). DEMQOL\u2010Proxy (self\u2010administered) can be used in a wider variety of contexts than its interviewer\u2010administered version, including routine use in busy clinics. Copyright \u00a9 2016 John Wiley &amp; Sons, Ltd.<\/jats:p><\/jats:sec>","DOI":"10.1002\/gps.4515","type":"journal-article","created":{"date-parts":[[2016,6,8]],"date-time":"2016-06-08T00:18:43Z","timestamp":1465345123000},"page":"734-741","source":"Crossref","is-referenced-by-count":10,"title":["Reliability and validity of a self\u2010administration version of DEMQOL\u2010Proxy"],"prefix":"10.1002","volume":"32","author":[{"given":"A. A. 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