{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,9]],"date-time":"2026-10-09T22:01:43Z","timestamp":1791583303525,"version":"4.3.4"},"reference-count":27,"publisher":"Wiley","issue":"6","license":[{"start":{"date-parts":[[2017,3,31]],"date-time":"2017-03-31T00:00:00Z","timestamp":1490918400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/501100005416","name":"Norges Forskningsr\u00e5d","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100005416","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Int J Geriat Psychiatry"],"published-print":{"date-parts":[[2018,6]]},"abstract":"<jats:sec><jats:title>Objectives<\/jats:title><jats:p>Although dementia typically occurs in older people, it can also emerge in people aged younger than 65\u00a0years in the form of young\u2010onset dementia, the most common type of which is Alzheimer's disease (AD). However, few studies have examined the needs of persons with young\u2010onset AD (YO\u2010AD) and their families, and cross\u2010cultural research on the topic is even scarcer. In response, we investigated the situations, experiences and needs for assistance of carers of persons with YO\u2010AD in Brazil and Norway.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>As part of our qualitative study, we formed a convenience sample of Brazilian (<jats:italic>n<\/jats:italic>\u00a0=\u00a09; 7 women) and Norwegian carers (<jats:italic>n<\/jats:italic>\u00a0=\u00a011; 6 women) in 2014 and 2015, respectively, and analysed data in light of a modified version of grounded theory.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Carers' narratives from both countries revealed five common themes in terms of how YO\u2010AD affected carers' psychological and emotional well\u2010being, physical well\u2010being, professional and financial well\u2010being, social lives and need for support services.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>The infrequent differences between carers of persons with YO\u2010AD in Brazil and Norway indicate that carers' problems are highly similar regardless of cultural differences and public services provided. Copyright \u00a9 2017 John Wiley &amp; Sons, Ltd.<\/jats:p><\/jats:sec>","DOI":"10.1002\/gps.4717","type":"journal-article","created":{"date-parts":[[2017,3,31]],"date-time":"2017-03-31T16:42:47Z","timestamp":1490978567000},"page":"824-831","source":"Crossref","is-referenced-by-count":21,"title":["Young\u2010onset Alzheimer dementia: a comparison of Brazilian and Norwegian carers' experiences and needs for assistance"],"prefix":"10.1002","volume":"33","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-6267-8202","authenticated-orcid":false,"given":"M.C.N.","family":"Dourado","sequence":"first","affiliation":[{"name":"Center for Alzheimer's Disease and Related Disorders, Institute of Psychiatry Universidade Federal do Rio de Janeiro  Rio de Janeiro Brazil"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"J.","family":"Laks","sequence":"additional","affiliation":[{"name":"Center for Alzheimer's Disease and Related Disorders, Institute of Psychiatry Universidade Federal do Rio de Janeiro  Rio de Janeiro Brazil"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"N.R.","family":"Kimura","sequence":"additional","affiliation":[{"name":"Center for Alzheimer's Disease and Related Disorders, Institute of Psychiatry Universidade Federal do Rio de Janeiro  Rio de Janeiro Brazil"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"M.A.T.","family":"Baptista","sequence":"additional","affiliation":[{"name":"Center for Alzheimer's Disease and Related Disorders, Institute of Psychiatry Universidade Federal do Rio de Janeiro  Rio de Janeiro Brazil"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"M.L.","family":"Barca","sequence":"additional","affiliation":[{"name":"Norwegian National Advisory Unit on Ageing and Health Vestfold Hospital Trust  T\u00f8nsberg Norway"},{"name":"Department of Geriatric Medicine Oslo University Hospital  Oslo Norway"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"K.","family":"Engedal","sequence":"additional","affiliation":[{"name":"Norwegian National Advisory Unit on Ageing and Health Vestfold Hospital Trust  T\u00f8nsberg Norway"},{"name":"Department of Geriatric Medicine Oslo University Hospital  Oslo Norway"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"B.","family":"Tveit","sequence":"additional","affiliation":[{"name":"VID Specialized University College  Oslo Norway"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7686-7263","authenticated-orcid":false,"given":"A.","family":"Johannessen","sequence":"additional","affiliation":[{"name":"Norwegian National Advisory Unit on Ageing and Health Vestfold Hospital Trust  T\u00f8nsberg Norway"},{"name":"VID Specialized University College  Oslo Norway"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2017,3,31]]},"reference":[{"key":"e_1_2_9_2_1","doi-asserted-by":"publisher","DOI":"10.1002\/gps.1935"},{"key":"e_1_2_9_3_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jagp.2013.02.006"},{"key":"e_1_2_9_4_1","doi-asserted-by":"publisher","DOI":"10.1590\/2237-6089-2015-0049"},{"key":"e_1_2_9_5_1","doi-asserted-by":"publisher","DOI":"10.1017\/S1041610213002639"},{"key":"e_1_2_9_6_1","volume-title":"Basics of Qualitative Research","author":"Corbin J","year":"2008"},{"key":"e_1_2_9_7_1","doi-asserted-by":"publisher","DOI":"10.1177\/1533317515578255"},{"key":"e_1_2_9_8_1","volume-title":"Caring for People in a Respectful Manner","author":"Florence Centre for Specialized Care in Early Onset Dementia [Florence Centre]","year":"2011"},{"key":"e_1_2_9_9_1","volume-title":"Nasjonal kartlegging av tilbudet til personer med demens [National Survey of Services to People with Dementia]","author":"Gj\u00f8ra L","year":"2014"},{"key":"e_1_2_9_10_1","volume-title":"Demens f\u00f8r 65 \u00e5r. 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