{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,17]],"date-time":"2026-08-17T14:42:54Z","timestamp":1786977774737,"version":"build-2736575974"},"reference-count":39,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2021,10,6]],"date-time":"2021-10-06T00:00:00Z","timestamp":1633478400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/100015442","name":"Global Brain Health Institute","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100015442","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Int J Geriat Psychiatry"],"published-print":{"date-parts":[[2022,1]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>To identify the prevalence and characteristics of people living with dementia (PLWD) lost to follow\u2010up (LTFU) from a specialized dementia care clinic and to understand factors influencing patient follow\u2010up status.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>\n                      We conducted a retrospective chart review of PLWD seen at a dementia care clinic 2012\u20132017 who were deceased as of 2018 (\n                      <jats:italic>n<\/jats:italic>\n                      \u00a0=\u00a0746). Participants were evaluated for follow\u2010up status at the time of death. Generalized linear regression was used to analyze demographic and diagnostic characteristics by follow\u2010up status. Text extracted from participant medical records was analyzed using qualitative content analysis to identify reasons patients became LTFU.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      Among PLWD seen at a dementia care clinic, 42% became LTFU before death, 39% of whom had chart documentation describing reasons for loss to follow\u2010up. Increased rates of LTFU were associated with female sex (risk ratio 1.27, [95% confidence interval 1.09\u20131.49];\n                      <jats:italic>p<\/jats:italic>\n                      \u00a0=\u00a00.003), educational attainment of high school or less (1.34, [1.13\u20131.61];\n                      <jats:italic>p<\/jats:italic>\n                      \u00a0=\u00a00.001), and death in a long\u2010term care facility (1.46, [1.19\u20131.80];\n                      <jats:italic>p<\/jats:italic>\n                      \u00a0=\u00a00.003). Commonly documented reasons for not returning for care at the clinic included switching care to another provider (42%), logistical difficulty accessing care (26%), patient\u2010family decision to discontinue care (24%), and functional challenges in accessing care (23%).\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>PLWD are LTFU from specialized memory care at high rates. Attention to care coordination, patient\u2013provider communication, and integrated use of alternative care models such as telehealth are potential strategies to improve care.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1002\/gps.5628","type":"journal-article","created":{"date-parts":[[2021,9,30]],"date-time":"2021-09-30T01:02:01Z","timestamp":1632963721000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":10,"title":["Characteristics of people with dementia lost to follow\u2010up from a dementia care center"],"prefix":"10.1002","volume":"37","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-6118-0354","authenticated-orcid":false,"given":"Nicole D.","family":"Boyd","sequence":"first","affiliation":[{"name":"Division of Geriatrics Department of Medicine University of California San Francisco  San Francisco California USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Georges","family":"Naasan","sequence":"additional","affiliation":[{"name":"University of California San Francisco \/ Global Brain Health Institute  San Francisco California USA"},{"name":"Department of Neurology Department of Medicine University of California San Francisco  San Francisco California USA"},{"name":"Department of Neurology Mount Sinai Hospitals Ichan School of Medicine  New York City New York USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Krista L.","family":"Harrison","sequence":"additional","affiliation":[{"name":"Division of Geriatrics Department of Medicine University of California San Francisco  San Francisco California USA"},{"name":"University of California San Francisco \/ Global Brain Health Institute  San Francisco California USA"},{"name":"Philip R. 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Lee Institute for Health Policy Studies University of California  San Francisco California USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Talita","family":"D'Aguiar Rosa","sequence":"additional","affiliation":[{"name":"University of California San Francisco \/ Global Brain Health Institute  San Francisco California USA"},{"name":"Department of Neurology University of Louisville  Louisville Kentucky USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Brenda","family":"P\u00e9rez\u2010Cerpa","sequence":"additional","affiliation":[{"name":"University of California San Francisco \/ Global Brain Health Institute  San Francisco California USA"},{"name":"Hospital Civil de Guadalajara (Hospital Civil Fray Antonio Alcade)  Guadalajara Jalisco Mexico"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Shamiel","family":"McFarlane","sequence":"additional","affiliation":[{"name":"University of California San Francisco \/ Global Brain Health 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