{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,8]],"date-time":"2026-07-08T04:58:40Z","timestamp":1783486720420,"version":"3.55.0"},"reference-count":46,"publisher":"Wiley","issue":"10","license":[{"start":{"date-parts":[[2022,9,2]],"date-time":"2022-09-02T00:00:00Z","timestamp":1662076800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100000272","name":"National Institute for Health Research","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100000272","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100000269","name":"Economic and Social Research Council","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100000269","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Int J Geriat Psychiatry"],"published-print":{"date-parts":[[2022,10]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background and Objectives<\/jats:title><jats:p>Research into people with dementia's experiences of the Covid\u201019 pandemic has tended to focus on vulnerabilities and negative outcomes, with the risk of reproducing a discourse in which people with dementia are positioned as passive. Informed by concepts positioning people with dementia as <jats:italic>\u2018active social agents\u2019<\/jats:italic>, we aimed to identify the pandemic\u2010related challenges faced by people recently diagnosed with dementia and examine the ways in which they actively coped with, and adapted to, these challenges.<\/jats:p><\/jats:sec><jats:sec><jats:title>Research Design and Methods<\/jats:title><jats:p>In\u2010depth interviews with 21 people recently diagnosed with dementia, recruited through an existing national cohort. Data was analysed thematically using Framework.<\/jats:p><\/jats:sec><jats:sec><jats:title>Findings<\/jats:title><jats:p>Key challenges included reduced social contact, loneliness and loss of social routines; difficulties accessing and trusting health services; dementia\u2010unfriendly practices; and disparate experiences of being able to \u2018get out\u2019 into the physical neighbourhood. People with dementia responded to challenges by maintaining and extending their social networks and making the most of \u2018<jats:italic>nodding acquaintances<\/jats:italic>\u2019; learning new skills, for communication and hobbies; supporting others, engaging in reciprocal exchange and valuing connection with peers; seeking help and advocacy and challenging and resisting dementia\u2010unfriendly practices; maintaining and adapting habitual spatial practices and being determined to \u2018<jats:italic>get ou<\/jats:italic><jats:italic>t<\/jats:italic>\u2019; and employing similar emotional coping strategies for the pandemic and dementia.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>Support for people with dementia, especially during public health crises when carers and services are under pressure, should involve utilising existing capacities, appropriately supporting the acquisition of new knowledge and skills, \u2018safety\u2010netting\u2019 through the availability of a named professional, advocacy and support and use of \u2018check\u2010in calls\u2019 and creating supportive social and environmental circumstances for people with dementia to sustain their own well\u2010being.<\/jats:p><\/jats:sec>","DOI":"10.1002\/gps.5803","type":"journal-article","created":{"date-parts":[[2022,8,19]],"date-time":"2022-08-19T06:38:53Z","timestamp":1660891133000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":9,"title":["\u2018Pushing back\u2019: People newly diagnosed with dementia and their experiences of the Covid\u201019 pandemic restrictions in England"],"prefix":"10.1002","volume":"37","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-4772-6450","authenticated-orcid":false,"given":"Josie","family":"Dixon","sequence":"first","affiliation":[{"name":"Care Policy and Evaluation Centre London School of Economics and Political Science  London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6445-2415","authenticated-orcid":false,"given":"Ben","family":"Hicks","sequence":"additional","affiliation":[{"name":"Brighton and Sussex Medical School University of Sussex  Brighton UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1488-4516","authenticated-orcid":false,"given":"Kate","family":"Gridley","sequence":"additional","affiliation":[{"name":"Social Policy Research Unit University of York  York UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8647-4367","authenticated-orcid":false,"given":"Rotem","family":"Perach","sequence":"additional","affiliation":[{"name":"School of Psychology University of Sussex  Brighton UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kate","family":"Baxter","sequence":"additional","affiliation":[{"name":"Social Policy Research Unit University of York  York UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4235-5307","authenticated-orcid":false,"given":"Yvonne","family":"Birks","sequence":"additional","affiliation":[{"name":"Social Policy Research Unit University of York  York UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2964-7740","authenticated-orcid":false,"given":"Carmen","family":"Colclough","sequence":"additional","affiliation":[{"name":"School of Psychology University of Sussex  Brighton UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4054-091X","authenticated-orcid":false,"given":"Bryony","family":"Storey","sequence":"additional","affiliation":[{"name":"Gateshead Health NHS Foundation Trust  Gateshead UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Alice","family":"Russell","sequence":"additional","affiliation":[{"name":"Brighton and Sussex Medical School University of Sussex  Brighton UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anomita","family":"Karim","sequence":"additional","affiliation":[{"name":"Brighton and Sussex Medical School University of Sussex  Brighton UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Eva","family":"Tipping","sequence":"additional","affiliation":[{"name":"Brighton and Sussex Medical School University of Sussex  Brighton UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8083-7649","authenticated-orcid":false,"given":"Sube","family":"Banerjee","sequence":"additional","affiliation":[{"name":"Faculty of Health University of Plymouth  Plymouth UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"name":"DETERMIND team","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2022,9,2]]},"reference":[{"key":"e_1_2_9_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/S2589\u20107500(21)00017\u20100"},{"key":"e_1_2_9_3_1","unstructured":"Alzheimer Europe.Alzheimer Europe Recommendations on Promoting the Wellbeing of People with Dementia and Carers during the COVID\u201019 Pandemic;2020.https:\/\/www.alzheimer\u2010europe.org\/Policy\/Our\u2010opinion\u2010on\/2020\u2010Wellbeing\u2010of\u2010people\u2010with\u2010dementia\u2010during\u2010COVID\u201019\u2010pandemic"},{"key":"e_1_2_9_4_1","unstructured":"Alzheimer\u2019s Society.The Impact of COVID\u201019 on People Affected by Dementia;2020.https:\/\/www.alzheimers.org.uk\/sites\/default\/files\/2020\u201008\/The_Impact_of_COVID\u201019_on_People_Affected_By_Dementia.pdf"},{"key":"e_1_2_9_5_1","doi-asserted-by":"publisher","DOI":"10.1177\/1471301220977639"},{"key":"e_1_2_9_6_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12877\u2010021\u201002257\u2010z"},{"key":"e_1_2_9_7_1","doi-asserted-by":"publisher","DOI":"10.3389\/fpsyt.2020.585686"},{"key":"e_1_2_9_8_1","doi-asserted-by":"publisher","DOI":"10.2307\/j.ctt9qgmrg"},{"key":"e_1_2_9_9_1","doi-asserted-by":"publisher","DOI":"10.1177\/1471301211434677"},{"key":"e_1_2_9_10_1","doi-asserted-by":"publisher","DOI":"10.1111\/1467\u20109566.12438"},{"key":"e_1_2_9_11_1","doi-asserted-by":"publisher","DOI":"10.17269\/s41997\u2010021\u201000500\u2010z"},{"key":"e_1_2_9_12_1","doi-asserted-by":"publisher","DOI":"10.1093\/ageing\/afab012"},{"key":"e_1_2_9_13_1","doi-asserted-by":"publisher","DOI":"10.1177\/1471301208091158"},{"key":"e_1_2_9_14_1","doi-asserted-by":"publisher","DOI":"10.1002\/gps.5246"},{"key":"e_1_2_9_15_1","doi-asserted-by":"publisher","DOI":"10.3310\/hta9100"},{"key":"e_1_2_9_16_1","article-title":"A cohort tudy of the impact of COVID\u201019 on the quality of life of people newly diagnosed with dementia and their family carers","author":"Hicks B","year":"2021","journal-title":"Alzheimer\u2019s Dement.: Transl Res Clin Interv."},{"key":"e_1_2_9_17_1","doi-asserted-by":"publisher","DOI":"10.1111\/1467\u20109566.12530"},{"key":"e_1_2_9_18_1","doi-asserted-by":"publisher","DOI":"10.1017\/S0144686X21000350"},{"key":"e_1_2_9_19_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12877\u2010019\u20101306\u20109"},{"key":"e_1_2_9_20_1","volume-title":"Coronavirus: A History of English Lockdown Laws","author":"Brown J","year":"2021"},{"key":"e_1_2_9_21_1","doi-asserted-by":"publisher","DOI":"10.1186\/1471\u20102288\u201013\u2010117"},{"key":"e_1_2_9_22_1","volume-title":"Qualitative Research Practice: A Guide for Social Science Students and Researchers","author":"Ritchie J","year":"2013"},{"key":"e_1_2_9_23_1","doi-asserted-by":"publisher","DOI":"10.1191\/1478088706qp063oa"},{"key":"e_1_2_9_24_1","doi-asserted-by":"publisher","DOI":"10.1037\/qup0000196"},{"key":"e_1_2_9_25_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12877\u2010020\u201001754\u2010x"},{"key":"e_1_2_9_26_1","volume-title":"Dementia UK: Update","author":"Prince M","year":"2014"},{"key":"e_1_2_9_27_1","doi-asserted-by":"publisher","DOI":"10.3233\/JAD\u2010151058"},{"key":"e_1_2_9_28_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jalz.2012.02.001"},{"key":"e_1_2_9_29_1","doi-asserted-by":"publisher","DOI":"10.1177\/1533317516673154"},{"key":"e_1_2_9_30_1","doi-asserted-by":"publisher","DOI":"10.1017\/S104161021000013X"},{"key":"e_1_2_9_31_1","doi-asserted-by":"publisher","DOI":"10.1017\/S0144686X21001719"},{"key":"e_1_2_9_32_1","doi-asserted-by":"publisher","DOI":"10.5153\/sro.3555"},{"key":"e_1_2_9_33_1","doi-asserted-by":"publisher","DOI":"10.1108\/QAOA\u201001\u20102018\u20100003"},{"key":"e_1_2_9_34_1","doi-asserted-by":"publisher","DOI":"10.1017\/S0144686X19001259"},{"key":"e_1_2_9_35_1","doi-asserted-by":"publisher","DOI":"10.1017\/S1041610217000631"},{"key":"e_1_2_9_36_1","doi-asserted-by":"publisher","DOI":"10.1177\/1471301211420331"},{"key":"e_1_2_9_37_1","doi-asserted-by":"publisher","DOI":"10.1177\/1471301217691617"},{"key":"e_1_2_9_38_1","doi-asserted-by":"publisher","DOI":"10.1177\/2056305120948255"},{"key":"e_1_2_9_39_1","doi-asserted-by":"publisher","DOI":"10.1177\/14713012221079477"},{"key":"e_1_2_9_40_1","doi-asserted-by":"publisher","DOI":"10.1086\/JCE199809103"},{"key":"e_1_2_9_41_1","doi-asserted-by":"publisher","DOI":"10.1017\/S0144686X19000357"},{"key":"e_1_2_9_42_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jaging.2016.12.005"},{"key":"e_1_2_9_43_1","unstructured":"National Institute for Health and Care Excellence (NICE).2019.Quality statement 4: Coordinating care. Quality Standard [QS184].https:\/\/www.nice.org.uk\/guidance\/qs184\/chapter\/Quality\u2010statement\u20104\u2010Coordinating\u2010care"},{"key":"e_1_2_9_44_1","doi-asserted-by":"publisher","DOI":"10.1111\/hsc.12105"},{"key":"e_1_2_9_45_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1751\u20109004.2011.00413.x"},{"key":"e_1_2_9_46_1","doi-asserted-by":"publisher","DOI":"10.1037\/0022\u20103514.56.2.267"},{"key":"e_1_2_9_47_1","doi-asserted-by":"publisher","DOI":"10.1080\/17439760.2021.1871945"}],"container-title":["International Journal of Geriatric Psychiatry"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/gps.5803","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1002\/gps.5803","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/gps.5803","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,8,22]],"date-time":"2023-08-22T00:10:20Z","timestamp":1692663020000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1002\/gps.5803"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2022,9,2]]},"references-count":46,"journal-issue":{"issue":"10","published-print":{"date-parts":[[2022,10]]}},"alternative-id":["10.1002\/gps.5803"],"URL":"https:\/\/doi.org\/10.1002\/gps.5803","archive":["Portico"],"relation":{},"ISSN":["0885-6230","1099-1166"],"issn-type":[{"value":"0885-6230","type":"print"},{"value":"1099-1166","type":"electronic"}],"subject":[],"published":{"date-parts":[[2022,9,2]]},"assertion":[{"value":"2021-09-28","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2022-08-12","order":1,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2022-09-02","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}],"article-number":"gps.5803"}}