{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,22]],"date-time":"2026-10-22T03:09:57Z","timestamp":1792638597716,"version":"4.5.0"},"reference-count":15,"publisher":"Wiley","issue":"S2","license":[{"start":{"date-parts":[[2018,8,14]],"date-time":"2018-08-14T00:00:00Z","timestamp":1534204800000},"content-version":"vor","delay-in-days":44,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Hastings Center Report"],"published-print":{"date-parts":[[2018,7]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p><jats:italic>The possible integration of genomic sequencing (including whole\u2010genome and whole\u2010exome sequencing) into the three contexts addressed in this special report\u2014state\u2010mandated screening programs, clinical care, and direct\u2010to\u2010consumer services\u2014raises related but distinct legal issues. This essay will outline the legal issues surrounding the integration of genomic sequencing into state newborn screening programs, parental rights to refuse and access sequencing for their newborns in clinical and direct\u2010to\u2010consumer care, and privacy\u2010related legal issues attending the use of sequencing in newborns<\/jats:italic>.<\/jats:p>","DOI":"10.1002\/hast.884","type":"journal-article","created":{"date-parts":[[2018,8,14]],"date-time":"2018-08-14T14:56:47Z","timestamp":1534258607000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":8,"title":["The Legal Dimensions of Genomic Sequencing in Newborn Screening"],"prefix":"10.1002","volume":"48","author":[{"given":"Rachel L.","family":"Zacharias","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Monica E.","family":"Smith","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jaime S.","family":"King","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2018,8,14]]},"reference":[{"key":"e_1_2_5_1_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2015-3731D"},{"key":"e_1_2_5_2_1","unstructured":"Ibid. S12\u2010S14."},{"key":"e_1_2_5_3_1","unstructured":"In rePhillipB. 156 Cal. Rptr.48 51(1979)."},{"key":"e_1_2_5_4_1","unstructured":"Newmark v.Williams 588 A. 2d1108 1117(1991)."},{"key":"e_1_2_5_5_1","unstructured":"Custody of a Minor 292 N.E. 2d 836(1979)."},{"key":"e_1_2_5_6_1","unstructured":"Services and Treatment for Disabled Infants 45 CFR 1340.15(b) (2014)."},{"key":"e_1_2_5_7_1","doi-asserted-by":"publisher","DOI":"10.1126\/science.1197891"},{"key":"e_1_2_5_8_1","doi-asserted-by":"publisher","DOI":"10.1038\/ejhg.2014.289"},{"key":"e_1_2_5_9_1","unstructured":"Genetic Information Nondiscrimination Act 42 U.S.C. \u00a7 21F (2008)."},{"key":"e_1_2_5_10_1","unstructured":"Americans with Disabilities Act of 1990 42 U.S.C. \u00a7 126 (1990)."},{"key":"e_1_2_5_11_1","unstructured":"Patient Protection and Affordable Care Act 42 U.S.C. \u00a7 18001 (2010)."},{"key":"e_1_2_5_12_1","unstructured":"Americans with Disabilities Act section 12102."},{"key":"e_1_2_5_13_1","unstructured":"M. A.Rothstein \u201cUnderstanding Genetic Discrimination Laws \u201d Genomics and Society 4th ELSI Congress Farmington CT June 5\u20137 2017.https:\/\/www.dropbox.com\/sh\/uu7iucgc552vxqx\/AACzvbDE6_0z9M7FUeZw761Pa\/A1-Rothstein.pdf?dl=0."},{"key":"e_1_2_5_14_1","unstructured":"Ibid."},{"key":"e_1_2_5_15_1","unstructured":"Ibid."}],"container-title":["Hastings Center Report"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1002%2Fhast.884","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/hast.884","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,9,17]],"date-time":"2023-09-17T16:19:23Z","timestamp":1694967563000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1002\/hast.884"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2018,7]]},"references-count":15,"journal-issue":{"issue":"S2","published-print":{"date-parts":[[2018,7]]}},"alternative-id":["10.1002\/hast.884"],"URL":"https:\/\/doi.org\/10.1002\/hast.884","archive":["Portico"],"relation":{},"ISSN":["0093-0334","1552-146X"],"issn-type":[{"value":"0093-0334","type":"print"},{"value":"1552-146X","type":"electronic"}],"subject":[],"published":{"date-parts":[[2018,7]]},"assertion":[{"value":"2018-08-14","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}