{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,12]],"date-time":"2026-06-12T01:42:17Z","timestamp":1781228537796,"version":"3.54.1"},"reference-count":29,"publisher":"Wiley","issue":"5","license":[{"start":{"date-parts":[[2024,2,21]],"date-time":"2024-02-21T00:00:00Z","timestamp":1708473600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Head &amp; Neck"],"published-print":{"date-parts":[[2024,5]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Purpose<\/jats:title><jats:p>To develop a head and neck lymphoedema (HNL) specific quality of life (QoL) instrument to assess physical, functional, and social\/emotional impacts of HNL.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Instrument candidate items were reviewed by patients with HNL and clinicians and rated for importance, clarity, and invasiveness. The Content Validity Ratio was applied for item reduction. Three\u2010step cognitive interviews were conducted with HNL patients to validate the items, survey format, and instructions.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Initially, 130 candidate questions were developed. Following item reduction, 52 items progressed to three\u2010step cognitive interviews. Following cognitive interviews, the Comprehensive Assessment of Lymphoedema Impact in Head and Neck (CALI\u2010HaN) included 33 items; 1 global, 10 physical, 7 functional, and 15 emotional.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>Physical, functional, and socioemotional effects need to be considered when measuring QoL in patients with HNL. This study describes initial development of the CALI\u2010HaN, an instrument that shows promise for clinical and research applications following future validation.<\/jats:p><\/jats:sec>","DOI":"10.1002\/hed.27704","type":"journal-article","created":{"date-parts":[[2024,2,21]],"date-time":"2024-02-21T11:33:59Z","timestamp":1708515239000},"page":"1103-1111","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":4,"title":["Development of a head and neck lymphoedema specific quality of life tool: The Comprehensive Assessment of Lymphoedema Impact in the Head and Neck"],"prefix":"10.1002","volume":"46","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-1716-9852","authenticated-orcid":false,"given":"Heather M.","family":"Starmer","sequence":"first","affiliation":[{"name":"Institute of Population Health University of Liverpool  Liverpool United Kingdom"},{"name":"Department of Otolaryngology \u2013 Head &amp; Neck Surgery Stanford University  Palo Alto California USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Joanne","family":"Patterson","sequence":"additional","affiliation":[{"name":"School of Health Sciences University of Liverpool  Liverpool United Kingdom"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Bridget","family":"Young","sequence":"additional","affiliation":[{"name":"Institute of Population Health University of Liverpool  Liverpool United Kingdom"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jason","family":"Fleming","sequence":"additional","affiliation":[{"name":"Institute of Systems, Molecular, and Integrative Biology University of Liverpool  Liverpool United Kingdom"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mary Gemma","family":"Cherry","sequence":"additional","affiliation":[{"name":"Institute of Population Health University of Liverpool  Liverpool United Kingdom"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2024,2,21]]},"reference":[{"key":"e_1_2_10_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2011.03.019"},{"key":"e_1_2_10_3_1","doi-asserted-by":"publisher","DOI":"10.1089\/lrb.2016.0001"},{"key":"e_1_2_10_4_1","doi-asserted-by":"publisher","DOI":"10.1002\/hed.23084"},{"issue":"2","key":"e_1_2_10_5_1","first-page":"92","article-title":"Late\u2010effect laryngeal oedema\/lymphoedema","volume":"5","author":"Murphy BA","year":"2010","journal-title":"J Lymphoedema"},{"key":"e_1_2_10_6_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.oraloncology.2018.05.025"},{"key":"e_1_2_10_7_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00520\u2010016\u20103356\u20102"},{"key":"e_1_2_10_8_1","volume-title":"World Health Organization: Basic Documents","author":"Constitution of the World Health Organization","year":"2005"},{"key":"e_1_2_10_9_1","doi-asserted-by":"publisher","DOI":"10.1245\/s10434\u2010020\u201009346\u20100"},{"key":"e_1_2_10_10_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00405\u2010019\u201005695\u2010z"},{"key":"e_1_2_10_11_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1749\u20104486.2006.01188.x"},{"key":"e_1_2_10_12_1","doi-asserted-by":"publisher","DOI":"10.1017\/S0022215121001699"},{"key":"e_1_2_10_13_1","doi-asserted-by":"publisher","DOI":"10.1002\/pon.5830"},{"key":"e_1_2_10_14_1","doi-asserted-by":"publisher","DOI":"10.1002\/lary.23312"},{"key":"e_1_2_10_15_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.322.7297.1297"},{"key":"e_1_2_10_16_1","doi-asserted-by":"publisher","DOI":"10.1097\/01.mlr.0000254567.79743.e2"},{"key":"e_1_2_10_17_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11136\u2010010\u20109606\u20108"},{"key":"e_1_2_10_18_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00520-011-1294-6"},{"key":"e_1_2_10_19_1","doi-asserted-by":"publisher","DOI":"10.1089\/lrb.2021.0041"},{"key":"e_1_2_10_20_1","doi-asserted-by":"publisher","DOI":"10.1089\/lrb.2020.0071"},{"key":"e_1_2_10_21_1","doi-asserted-by":"publisher","DOI":"10.1089\/lrb.2021.0100"},{"key":"e_1_2_10_22_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00520\u2010023\u201008150\u20102"},{"key":"e_1_2_10_23_1","doi-asserted-by":"publisher","DOI":"10.1111\/j\/1744\u20106570.1975.tb01393.x"},{"key":"e_1_2_10_24_1","doi-asserted-by":"publisher","DOI":"10.1177\/0748175613513808"},{"key":"e_1_2_10_25_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.sapharm.2018.03.066"},{"key":"e_1_2_10_26_1","unstructured":"Robert Graham Center. Social Deprivation Index (SDI). 2018."},{"key":"e_1_2_10_27_1","volume-title":"Measurement in Medicine","author":"DeVet HCW","year":"2018"},{"key":"e_1_2_10_28_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ctro.2023.100633"},{"key":"e_1_2_10_29_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijrobp.2023.02.041"},{"key":"e_1_2_10_30_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.oraloncology.2022.105815"}],"container-title":["Head &amp; Neck"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/hed.27704","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,4,9]],"date-time":"2024-04-09T10:03:55Z","timestamp":1712657035000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1002\/hed.27704"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,2,21]]},"references-count":29,"journal-issue":{"issue":"5","published-print":{"date-parts":[[2024,5]]}},"alternative-id":["10.1002\/hed.27704"],"URL":"https:\/\/doi.org\/10.1002\/hed.27704","archive":["Portico"],"relation":{},"ISSN":["1043-3074","1097-0347"],"issn-type":[{"value":"1043-3074","type":"print"},{"value":"1097-0347","type":"electronic"}],"subject":[],"published":{"date-parts":[[2024,2,21]]},"assertion":[{"value":"2023-10-02","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2024-02-12","order":1,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2024-02-21","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}