{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,11,18]],"date-time":"2025-11-18T21:01:01Z","timestamp":1763499661496,"version":"3.40.5"},"reference-count":19,"publisher":"Wiley","issue":"3","license":[{"start":{"date-parts":[[2021,8,30]],"date-time":"2021-08-30T00:00:00Z","timestamp":1630281600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/501100000925","name":"National Health and Medical Research Council","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100000925","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Health Prom J of Aust"],"published-print":{"date-parts":[[2022,7]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Issue addressed<\/jats:title><jats:p>Aboriginal and Torres Strait Islander peoples in Australia have an inequitable burden of acute rheumatic fever (ARF) and rheumatic heart disease (RHD), concentrated among young people and necessitating ongoing medical care during adolescence. There is an unmet need for improved well\u2010being and support for these young people to complement current biomedical management.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>This pilot program initiative aimed to determine the suitability and appropriate format of an ongoing peer support program to address the needs of young people living with RHD in urban Darwin.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Five participants took part in three sessions. Findings demonstrated the peer\u2010support setting was conducive to offering support and enabled participants to share their experiences of living with RHD with facilitators and each other. Satisfaction rates for each session, including both educational components and support activities, were high.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>Learnings from the pilot program can inform the following elements of an ongoing peer\u2010support program: characteristics of co\u2010facilitators and external presenters; program format and session outlines; possible session locations; and resourcing.<\/jats:p><\/jats:sec><jats:sec><jats:title>So what?<\/jats:title><jats:p>Peer support programs for chronic conditions have demonstrated a wide range of benefits including high levels of satisfaction by participants, improved social and emotional well\u2010being and reductions in patient care time required by health professionals. This pilot program demonstrates the same benefits could result for young people living with RHD.<\/jats:p><\/jats:sec>","DOI":"10.1002\/hpja.533","type":"journal-article","created":{"date-parts":[[2021,8,20]],"date-time":"2021-08-20T17:28:46Z","timestamp":1629480526000},"page":"696-700","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":1,"title":["Improving the well\u2010being for young people living with rheumatic heart disease: A peer support pilot program through Danila Dilba Health Service"],"prefix":"10.1002","volume":"33","author":[{"given":"Leda","family":"Sivak","sequence":"first","affiliation":[{"name":"South Australian Health and Medical Research Institute  Adelaide Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Margaret","family":"O\u2019Brien","sequence":"additional","affiliation":[{"name":"Danila Dilba Health Service  Darwin Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Onika","family":"Paolucci","sequence":"additional","affiliation":[{"name":"Danila Dilba Health Service  Darwin Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Vicki","family":"Wade","sequence":"additional","affiliation":[{"name":"Menzies School of Health Research  Darwin Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Catalina","family":"Lizama","sequence":"additional","affiliation":[{"name":"Telethon Kids Institute  Perth Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Catherine","family":"Halkon","sequence":"additional","affiliation":[{"name":"Telethon Kids Institute  Perth Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4075-0781","authenticated-orcid":false,"given":"Stephanie","family":"Enkel","sequence":"additional","affiliation":[{"name":"Telethon Kids Institute  Perth Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Katharine","family":"Noonan","sequence":"additional","affiliation":[{"name":"Telethon Kids Institute  Perth Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3904-9269","authenticated-orcid":false,"given":"Rosemary","family":"Wyber","sequence":"additional","affiliation":[{"name":"Telethon Kids Institute  Perth Australia"},{"name":"The George Institute for Global Health University of New South Wales  Sydney Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2021,8,30]]},"reference":[{"key":"e_1_2_9_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/S1473-3099(05)70267-X"},{"key":"e_1_2_9_3_1","doi-asserted-by":"publisher","DOI":"10.1161\/CIRCULATIONAHA.115.020966"},{"key":"e_1_2_9_4_1","unstructured":"Australian Institute of Health and Welfare.Acute rheumatic fever and rheumatic heart disease in Australia 2014\u20132018. Cat. no. CVD 88.Canberra:AIHW 2020."},{"key":"e_1_2_9_5_1","doi-asserted-by":"publisher","DOI":"10.2147\/CLEP.S224621"},{"key":"e_1_2_9_6_1","unstructured":"RHD Australia (ARF\/RHD writing group).The 2020 Australian guideline for prevention diagnosis and management of acute rheumatic fever and rheumatic heart disease (3rd edition). Menzies School of Health Research 2020."},{"key":"e_1_2_9_7_1","doi-asserted-by":"publisher","DOI":"10.1111\/1753-6405.12737"},{"key":"e_1_2_9_8_1","doi-asserted-by":"publisher","DOI":"10.1080\/01459740.2018.1482549"},{"key":"e_1_2_9_9_1","doi-asserted-by":"publisher","DOI":"10.1071\/PY17069"},{"key":"e_1_2_9_10_1","doi-asserted-by":"publisher","DOI":"10.3390\/ijerph17041347"},{"key":"e_1_2_9_11_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1440-1584.2003.tb00550.x"},{"key":"e_1_2_9_12_1","doi-asserted-by":"publisher","DOI":"10.1161\/JAHA.118.009376"},{"key":"e_1_2_9_13_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2017.07.006"},{"volume-title":"The Sir William Kilpatrick Churchill Fellowship to explore innovative rheumatic heart disease prevention strategies and apply them to Australia","year":"2017","author":"Cottrell J","key":"e_1_2_9_14_1"},{"key":"e_1_2_9_15_1","unstructured":"RHD Australia.Ngukurr needle crew: kids supporting kids. RHD Australia.2017.https:\/\/www.rhdaustralia.org.au\/news\/ngukurr\u2010community\u2010support\u2010for\u2010rheumatic\u2010heart\u2010disease. Accessed August 13 2021."},{"key":"e_1_2_9_16_1","unstructured":"Eyre Peninsula Times.Daniel enjoys first RHD camp. 2018. Port Lincoln Times.https:\/\/www.eyretribune.com.au\/story\/5544829\/daniel\u2010enjoys\u2010first\u2010rhd\u2010camp\/. Accessed August 13 2021."},{"key":"e_1_2_9_17_1","unstructured":"D\u2019EspositoFPrevention and control of ARF and RHD in Indigenous Australian communities; a developmental evaluation of the Take Heart Resources in the NT. Final Report. Melbourne: Implementing & Evaluating to Maximise Impact The Bupa Foundation 2018.http:\/\/takeheart.tv\/wp\u2010content\/uploads\/Take\u2010Heart\u2010Evaluation\u2010Final\u2010Report\u2010Oct\u20102018_email.pdf"},{"key":"e_1_2_9_18_1","unstructured":"RHD Australia.Champions4Change \u2013 sharing caring and inspiring. 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