{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,28]],"date-time":"2026-07-28T07:43:44Z","timestamp":1785224624415,"version":"3.55.0"},"reference-count":29,"publisher":"Wiley","issue":"3","license":[{"start":{"date-parts":[[2025,3,19]],"date-time":"2025-03-19T00:00:00Z","timestamp":1742342400000},"content-version":"vor","delay-in-days":18,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Health Science Reports"],"published-print":{"date-parts":[[2025,3]]},"abstract":"<jats:title>ABSTRACT<\/jats:title><jats:sec><jats:title>Background and Aims<\/jats:title><jats:p>Older (\u2265\u200950 years) persons living with human immunodeficiency virus (PLWH) comprise the majority of individuals receiving HIV care in high\u2010income countries. PLWH experience the challenges of aging at earlier ages and accelerated rates, compared to people without HIV. Older PLWH who may benefit from more support may hesitate due to fear of stigma, discrimination, or past experiences.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>We assessed the views of older PLWH through an online survey. We sought participants' views, experiences, knowledge and preferences for delivery of continuing care support in Alberta, Canada. Participants were invited during clinic visits at the Southern Alberta Clinic in Calgary, Canada.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>A total of 316 participants completed the survey. The mean age was 61 years (standard deviation \u00b1\u20098) and 83.5% (<jats:italic>n<\/jats:italic>\u2009=\u2009264) were men. Ten percent of participants (<jats:italic>n<\/jats:italic>\u2009=\u200932) currently receive help with activities of daily living, 70% of which was provided by family\/friends. Nine percent expressed concern with receiving help, including financial (54%), loss of independence (31%), and privacy concerns (31%). Nearly 47% expressed concern about healthcare providers' knowledge of HIV, 63% expressed concern about their medical information being kept confidential, and 64% expressed concern about other residents learning of their HIV diagnosis.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>Despite a need, many older PLWH are hesitant to accept home care or move into supportive, facility\u2010based living. This leaves a potential void in the necessary provision of care. This must be addressed to ensure equity, diversity, and inclusion, and to remove barriers in accessing health and social supports. The solutions to this urgent need lie with those with lived experience who can inform healthcare providers and policy\u2010makers. To start, healthcare providers and policymakers must educate staff about the ongoing stigma and discrimination experienced by older PLWH and demonstrate to patients the value placed on patient privacy and confidentiality.<\/jats:p><\/jats:sec><jats:sec><jats:title>Impact Statement<\/jats:title><jats:p>We certify that this work is novel clinical research that provides insight into the values and preferences of older people living with HIV regarding continuing care (from home care to supportive living and long\u2010term care). This work is the foundation for creating meaningful, structural changes to how continuing care is provided to older people living with HIV, an underrepresented and equity\u2010deserving group. Despite a need, many older PLWH are hesitant to accept home care or move into supportive, facility\u2010based living. This leaves a potential void in the necessary provision of care. This must be addressed to ensure equity, diversity, and inclusion, and to remove barriers in accessing health and social supports. To start, healthcare providers and policymakers must educate staff about the ongoing stigma and discrimination experienced by older PLWH and demonstrate to patients the value placed on patient privacy and confidentiality.<\/jats:p><\/jats:sec>","DOI":"10.1002\/hsr2.70578","type":"journal-article","created":{"date-parts":[[2025,3,20]],"date-time":"2025-03-20T06:16:12Z","timestamp":1742451372000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":1,"title":["Perspectives on Continuing Care, From Home Care to Long\u2010Term Care, for Older People Living With HIV: A Cross\u2010Sectional Study"],"prefix":"10.1002","volume":"8","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-7090-9485","authenticated-orcid":false,"given":"Jacqueline M.","family":"McMillan","sequence":"first","affiliation":[{"name":"Cumming School of Medicine University of Calgary Calgary Alberta Canada"},{"name":"O'Brien Institute for Public Health University of Calgary Calgary Alberta Canada"},{"name":"Southern Alberta Clinic Alberta Health Services Calgary Alberta Canada"},{"name":"Community Health Sciences University of Calgary Calgary Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jessica","family":"Dalere","sequence":"additional","affiliation":[{"name":"Cumming School of Medicine University of Calgary Calgary Alberta Canada"},{"name":"Southern Alberta Clinic Alberta Health Services Calgary Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Farwa","family":"Naqvi","sequence":"additional","affiliation":[{"name":"Cumming School of Medicine University of Calgary Calgary Alberta Canada"},{"name":"Southern Alberta Clinic Alberta Health Services Calgary Alberta Canada"},{"name":"Community Health Sciences University of Calgary Calgary Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3080-0327","authenticated-orcid":false,"given":"Vivian","family":"Ewa","sequence":"additional","affiliation":[{"name":"Cumming School of Medicine University of Calgary Calgary Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Raynell","family":"Lang","sequence":"additional","affiliation":[{"name":"Cumming School of Medicine University of Calgary Calgary Alberta Canada"},{"name":"Community Health Sciences University of Calgary Calgary Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Raman","family":"Brar","sequence":"additional","affiliation":[{"name":"Provincial Research Data Services Alberta Health Services Edmonton Alberta Canada"},{"name":"Data and Research Services Alberta SPOR SUPPORT Unit Calgary Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Katrina","family":"Milaney","sequence":"additional","affiliation":[{"name":"Cumming School of Medicine University of Calgary Calgary Alberta Canada"},{"name":"O'Brien Institute for Public Health University of Calgary Calgary Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jeffrey A.","family":"Bakal","sequence":"additional","affiliation":[{"name":"Data and Research Services Alberta SPOR SUPPORT Unit Calgary Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Hartmut B.","family":"Krentz","sequence":"additional","affiliation":[{"name":"Cumming School of Medicine University of Calgary Calgary Alberta Canada"},{"name":"Southern Alberta Clinic Alberta Health Services Calgary Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Patrick B.","family":"Quail","sequence":"additional","affiliation":[{"name":"Cumming School of Medicine University of Calgary Calgary Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Caley B.","family":"Shukalek","sequence":"additional","affiliation":[{"name":"Cumming School of Medicine University of Calgary Calgary Alberta Canada"},{"name":"O'Brien Institute for Public Health University of Calgary Calgary Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jenine","family":"Leal","sequence":"additional","affiliation":[{"name":"O'Brien Institute for Public Health University of Calgary Calgary Alberta Canada"},{"name":"Community Health Sciences University of Calgary Calgary Alberta Canada"},{"name":"Microbiology, Immunology and Infectious Diseases University of Calgary Calgary Alberta Canada"},{"name":"Infection Prevention and Control, Alberta Health Services Calgary Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nolan E.","family":"Hill","sequence":"additional","affiliation":[{"name":"Centre for Sexuality Calgary Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mark","family":"Randall","sequence":"additional","affiliation":[{"name":"Safelink Alberta Calgary Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"M. John","family":"Gill","sequence":"additional","affiliation":[{"name":"Cumming School of Medicine University of Calgary Calgary Alberta Canada"},{"name":"Southern Alberta Clinic Alberta Health Services Calgary Alberta Canada"},{"name":"Microbiology, Immunology and Infectious Diseases University of Calgary Calgary Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2025,3,19]]},"reference":[{"key":"e_1_2_12_2_1","unstructured":"Centers for Disease Control and Prevention \u201cDiagnoses Deaths and Prevalence of HIV in the United States and 6 Territories and Freely Associated States 2022 \u201d HIV Surveillance Report (2024) https:\/\/www.cdc.gov\/hiv-data\/nhss\/hiv-diagnoses-deaths-prevalence.html."},{"key":"e_1_2_12_3_1","unstructured":"\u201cHIV in Canada Surveillance Report to December 31 2022 \u201d Public Health Agency of Canada (2023) https:\/\/www.canada.ca\/content\/dam\/phac-aspc\/documents\/services\/publications\/diseases-conditions\/hiv-canada-surveillance-report-december-31-2022\/hiv-in-canada-surveillance-report-to-december-31-2022-en.pdf."},{"issue":"3","key":"e_1_2_12_4_1","doi-asserted-by":"crossref","first-page":"459","DOI":"10.1097\/QAD.0000000000003128","article-title":"The Shifting Age Distribution of People With HIV Using Antiretroviral Therapy in the United States","volume":"36","author":"Althoff K. 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P.","year":"2001","journal-title":"Journals of Gerontology Series A: Biological Sciences and Medical Sciences"},{"key":"e_1_2_12_17_1","unstructured":"\u201cWhat is Continuing Care? \u201d Alberta Health Services (2024) https:\/\/www.albertahealthservices.ca\/cc\/Page15502.aspx."},{"key":"e_1_2_12_18_1","unstructured":"\u201cCanada's Elder Care Crisis: Addressing the Doubling Demand \u201d Canadian Medical Association (2021) https:\/\/digitallibrary.cma.ca\/viewer?file=%2Fmedia%2FDigital_Library_PDF%2F2021%2520Canada%27s%2520elder%2520care%2520crisis%2520EN.pdf#page=1."},{"key":"e_1_2_12_19_1","unstructured":"\u201cAnnual Population Report Alberta 2023\u20132024 \u201d Government of Alberta (2024) https:\/\/open.alberta.ca\/dataset\/1050cf0a-8c1d-4875-9800-b7d2f3199e41\/resource\/b622c22b-507c-4eb2-9c7b-519e2cb75be1\/download\/tbf-annual-population-report-alberta-2023-2024.pdf."},{"issue":"7","key":"e_1_2_12_20_1","doi-asserted-by":"crossref","first-page":"1353","DOI":"10.1111\/jgs.15949","article-title":"Nursing Home Residents by Human Immunodeficiency Virus Status: Characteristics, Dementia Diagnoses, and Antipsychotic Use. 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