{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,2,17]],"date-time":"2026-02-17T08:14:39Z","timestamp":1771316079763,"version":"3.50.1"},"reference-count":21,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2025,6,30]],"date-time":"2025-06-30T00:00:00Z","timestamp":1751241600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"},{"start":{"date-parts":[[2025,6,30]],"date-time":"2025-06-30T00:00:00Z","timestamp":1751241600000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["obgyn.onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Intl J Gynecology &amp;amp; Obste"],"published-print":{"date-parts":[[2026,1]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>Endometriosis significantly affects patients' quality of life, yet its management remains challenging due to diagnostic delays and symptom complexity. Therapeutic patient education (TPE) is effective in chronic disease management, but guidelines are lacking for its application in endometriosis care. The primary aim of this study was to identify patient expectations to adapt endometriosis\u2010specific TPE programs. The secondary aim was to compare these expectations with those perceived by these healthcare professionals.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Anonymous online surveys sent to patients and healthcare professionals involved in endometriosis care explored preferences regarding session content and organization.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Participants were on average 34.4\u2009years of age (\u00b18.9\u2009years), with a mean delay in diagnosis of 9.2\u2009years (\u00b17.9\u2009years). Most patients (87.8%) would prefer TPE immediately after diagnosis, prioritizing symptom management and quality\u2010of\u2010life improvement, even without a proof of diagnosis for 131 patients (86.8%). No significant difference for patients' expectations was found according to their management satisfaction or their previous participation in TPE sessions. Partner involvement was desired by 69.9% of patients. Healthcare professionals shared priority themes and objectives with patients, but some discordances existed about infertility sessions, psychological support, and sexologists' participation.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Patients with endometriosis strongly support personalized TPE programs from diagnosis onward. Comparison between patients' expectations and professionals' point of view highlights the legitimacy of healthcare professionals involved in endometriosis management to set up TPE programs but the need for flexible and tailored sessions. This study paves the way for the structured, evidence\u2010based development of TPE sessions for patients with endometriosis.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1002\/ijgo.70349","type":"journal-article","created":{"date-parts":[[2025,6,30]],"date-time":"2025-06-30T08:04:11Z","timestamp":1751270651000},"page":"232-240","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Evaluation of endometriosis patients' expectations of a therapeutic patient education program and comparison with practitioners' perception"],"prefix":"10.1002","volume":"172","author":[{"given":"Emma","family":"Viteau","sequence":"first","affiliation":[{"name":"Department of Obstetrics and Gynecology, Reproduction and Fetal Medicine Universit\u00e9 C\u00f4te d'Azur\u2014Centre Hospitalier Universitaire de Nice  Nice France"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Marianne","family":"Roy","sequence":"additional","affiliation":[{"name":"Department of Obstetrics and Gynecology, Reproduction and Fetal Medicine Universit\u00e9 C\u00f4te d'Azur\u2014Centre Hospitalier Universitaire de Nice  Nice France"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"J\u00e9r\u00f4me","family":"Delotte","sequence":"additional","affiliation":[{"name":"Department of Obstetrics and Gynecology, Reproduction and Fetal Medicine Universit\u00e9 C\u00f4te d'Azur\u2014Centre Hospitalier Universitaire de Nice  Nice France"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5664-4337","authenticated-orcid":false,"given":"Pierre\u2010Alexis","family":"Gauci","sequence":"additional","affiliation":[{"name":"Department of Obstetrics and Gynecology, Reproduction and Fetal Medicine Universit\u00e9 C\u00f4te d'Azur\u2014Centre Hospitalier Universitaire de Nice  Nice France"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2025,6,30]]},"reference":[{"key":"e_1_2_11_2_1","unstructured":"WHO.Endometriosis fact sheet. Gen\u00e8ve: World Health Organization; 2024. Accessed January 12 2025.https:\/\/www.who.int\/news\u2010room\/fact\u2010sheets\/detail\/endometriosis"},{"key":"e_1_2_11_3_1","unstructured":"Haute Autorit\u00e9 de Sant\u00e9.Prise en charge de l'endom\u00e9triose: D\u00e9marche diagnostique et traitement m\u00e9dical\u2014Fiche de synth\u00e8se. Saint\u2010Denis: HAS; 2018. Accessed January 12 2025.https:\/\/www.has\u2010sante.fr\/upload\/docs\/application\/pdf\/2018\u201001\/fiche_synthese_endometriose.pdf"},{"key":"e_1_2_11_4_1","doi-asserted-by":"publisher","DOI":"10.1056\/NEJMcp1000274"},{"key":"e_1_2_11_5_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.fertnstert.2011.05.090"},{"key":"e_1_2_11_6_1","doi-asserted-by":"publisher","DOI":"10.1093\/humupd\/dmt027"},{"key":"e_1_2_11_7_1","doi-asserted-by":"publisher","DOI":"10.1023\/B:QURE.0000021321.48041.0e"},{"key":"e_1_2_11_8_1","unstructured":"EndoFrance.L'\u00e9ducation th\u00e9rapeutique du patient en endom\u00e9triose. Paris: EndoFrance; 2024. Accessed February 8 2025.https:\/\/www.endofrance.org\/leducation\u2010therapeutique\u2010du\u2010patient\u2010en\u2010endometriose\/"},{"key":"e_1_2_11_9_1","first-page":"1161","article-title":"Loi n 2009\u2010879 du 21 juillet 2009 portant r\u00e9forme de l'h\u00f4pital et relative aux patients, \u00e0 la sant\u00e9 et aux territoires","year":"2009","journal-title":"JORF"},{"key":"e_1_2_11_10_1","unstructured":"WHO.Therapeutic Patient Education. Copenhagen: WHO Regional Office for Europe; 1998. Accessed January 12 2025.https:\/\/apps.who.int\/iris\/handle\/10665\/108151"},{"key":"e_1_2_11_11_1","doi-asserted-by":"publisher","DOI":"10.3389\/fmed.2022.996528"},{"key":"e_1_2_11_12_1","doi-asserted-by":"publisher","DOI":"10.62438\/tunismed.v102i11.5299"},{"key":"e_1_2_11_13_1","first-page":"1613","article-title":"Effectiveness of therapeutic patient education for adults with migraine. A systematic review and meta\u2010analysis of randomized controlled trials","volume":"54","author":"Kindelan\u2010Calvo P","year":"2014","journal-title":"Headache"},{"key":"e_1_2_11_14_1","first-page":"45","article-title":"Structured therapeutic education program with diabetes specialist nurse for patients with type 2 diabetes under insulin therapy in primary care: impact on metabolic control and patient satisfaction","volume":"16","author":"Cabr\u00e9 Font L","year":"2022","journal-title":"Prim Care Diabetes"},{"key":"e_1_2_11_15_1","doi-asserted-by":"publisher","DOI":"10.1164\/ajrccm.159.3.9804047"},{"key":"e_1_2_11_16_1","doi-asserted-by":"publisher","DOI":"10.3109\/0167482X.2015.1074173"},{"key":"e_1_2_11_17_1","doi-asserted-by":"publisher","DOI":"10.3389\/frph.2021.667345"},{"key":"e_1_2_11_18_1","doi-asserted-by":"publisher","DOI":"10.1111\/1471-0528.17973"},{"key":"e_1_2_11_19_1","first-page":"267","article-title":"Traitement m\u00e9dical de l'endom\u00e9triose douloureuse sans infertilit\u00e9: recommandations CNGOF\u2010HAS","volume":"46","author":"Sauvan M","year":"2018","journal-title":"Gynecol Obstet Fertil Senol"},{"key":"e_1_2_11_20_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10865-011-9354-4"},{"key":"e_1_2_11_21_1","unstructured":"EndoBreizh.\u00c9valuation du retentissement de l'endom\u00e9triose. Rennes: EndoBreizh; 2021. Accessed February 8 2025.https:\/\/www.endobreizh.com\/evaluation\u2010du\u2010retentissement\u2010de\u2010lendometriose"},{"key":"e_1_2_11_22_1","doi-asserted-by":"publisher","DOI":"10.3917\/savo.033.0083"}],"container-title":["International Journal of Gynecology &amp; Obstetrics"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/obgyn.onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/ijgo.70349","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/obgyn.onlinelibrary.wiley.com\/doi\/full-xml\/10.1002\/ijgo.70349","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/obgyn.onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/ijgo.70349","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,2,17]],"date-time":"2026-02-17T07:41:20Z","timestamp":1771314080000},"score":1,"resource":{"primary":{"URL":"https:\/\/obgyn.onlinelibrary.wiley.com\/doi\/10.1002\/ijgo.70349"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,6,30]]},"references-count":21,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2026,1]]}},"alternative-id":["10.1002\/ijgo.70349"],"URL":"https:\/\/doi.org\/10.1002\/ijgo.70349","archive":["Portico"],"relation":{},"ISSN":["0020-7292","1879-3479"],"issn-type":[{"value":"0020-7292","type":"print"},{"value":"1879-3479","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025,6,30]]},"assertion":[{"value":"2025-04-14","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2025-06-16","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2025-06-30","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}