{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,26]],"date-time":"2026-10-26T21:00:47Z","timestamp":1793048447518,"version":"4.5.0"},"reference-count":32,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2022,11,20]],"date-time":"2022-11-20T00:00:00Z","timestamp":1668902400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"funder":[{"DOI":"10.13039\/100009468","name":"Sasakawa Memorial Health Foundation","doi-asserted-by":"publisher","award":["2020A\u2010001"],"award-info":[{"award-number":["2020A\u2010001"]}],"id":[{"id":"10.13039\/100009468","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100001691","name":"Japan Society for the Promotion of Science","doi-asserted-by":"publisher","award":["21K10319"],"award-info":[{"award-number":["21K10319"]}],"id":[{"id":"10.13039\/501100001691","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["J cachexia sarcopenia muscle"],"published-print":{"date-parts":[[2023,2]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Eating\u2010related distress (ERD) is one type of psychosocial distress among advanced cancer patients and family caregivers. Its alleviation is a key issue in palliative care; however, there is no validated tool for measuring ERD.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>\n                      The purpose of this study was to validate tools for evaluating ERD among patients and family caregivers. The study consisted of a development and validation\/retest phase. In the development phase, we made preliminary questionnaires for patients and family caregivers. After face validity and content validity, we performed an exploratory factor analysis and discussed the final adoption of items. In the validation\/retest phase, we examined factor validity with an exploratory factor analysis. We calculated Pearson's correlation coefficients between the questionnaire for patients, the Functional Assessment of Anorexia\/Cachexia Therapy Anorexia Cachexia Subscale (FAACT ACS) and the European Organization for Research and Treatment of Cancer Quality of Life Questionnaire\u2010Cachexia 24 (EORTC QLQ\u2010CAX24) and Pearson's correlation coefficients between the questionnaire for family caregivers and the Caregiver Quality of Life Index\u2010Cancer (CQOLC) for concurrent validity. We calculated Cronbach's alpha coefficients (Cronbach's alpha) and intraclass correlation coefficients (ICCs) for internal consistency and test\u2013retest reliability. We performed the Mann\u2013Whitney\n                      <jats:italic>U<\/jats:italic>\n                      test between the questionnaires and cancer cachexia based on criteria from the international consensus for known\u2010group validity.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      In the development phase, 162 pairs of patients and family caregivers were asked to participate, and 144 patients and 106 family caregivers responded. In the validation\/retest phase, 333 pairs of patients and family caregivers were asked to participate, and 234 patients and 152 family caregivers responded. Overall, 183 patients and 112 family caregivers did the retest. Seven conceptual groups were extracted for the ERD among patients and family caregivers, respectively. Patient factors 1\u20137 correlated with FAACT ACS (\n                      <jats:italic>r<\/jats:italic>\n                      \u00a0=\u00a0\u22120.63, \u22120.43, \u22120.55, \u22120.40, \u22120.38, \u22120.54, \u22120.38, respectively) and EORTC QLQ\u2010CAX24 (\n                      <jats:italic>r<\/jats:italic>\n                      \u00a0=\u00a00.58, 0.40, 0.60, 0.49, 0.38, 0.59, 0.42, respectively). Family factors 1\u20137 correlated with CQOLC (\n                      <jats:italic>r<\/jats:italic>\n                      \u00a0=\u00a0\u22120.34, \u22120.30, \u22120.37, \u22120.37, \u22120.46, \u22120.42, \u22120.40, respectively). The values of Cronbach's alpha and ICC of each factor and all factors of patients ranged from 0.84 to 0.96 and 0.67 to 0.83, respectively. Those of each factor and all factors of family caregivers ranged from 0.84 to 0.96 and 0.63 to 0.84, respectively. The cachexia group of patients had significantly higher scores than the non\u2010cachexia group for each factor and all factors.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Newly developed tools for measuring ERD experienced by advanced cancer patients and family caregivers have been validated.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1002\/jcsm.13133","type":"journal-article","created":{"date-parts":[[2022,11,20]],"date-time":"2022-11-20T17:58:56Z","timestamp":1668967136000},"page":"310-325","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":26,"title":["Development and validation of questionnaires for eating\u2010related distress among advanced cancer patients and families"],"prefix":"10.1002","volume":"14","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-1779-6389","authenticated-orcid":false,"given":"Koji","family":"Amano","sequence":"first","affiliation":[{"name":"Department of Palliative Medicine National Cancer Center Hospital  Chuo\u2010ku Tokyo Japan"},{"name":"Department of Palliative and Supportive Medicine, Graduate School of Medicine Aichi Medical University  Nagakute Aichi Japan"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tatsuya","family":"Morita","sequence":"additional","affiliation":[{"name":"Palliative and Supportive Care Division Seirei Mikatahara General Hospital  Hamamatsu Shizuoka Japan"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tomofumi","family":"Miura","sequence":"additional","affiliation":[{"name":"Department of Palliative Medicine National Cancer Center Hospital East  Kashiwa Chiba Japan"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Naoharu","family":"Mori","sequence":"additional","affiliation":[{"name":"Department of Palliative and Supportive Medicine, Graduate School of Medicine Aichi Medical University  Nagakute Aichi Japan"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ryohei","family":"Tatara","sequence":"additional","affiliation":[{"name":"Department of Palliative Medicine Osaka City General Hospital  Miyakojima\u2010ku Osaka Japan"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Takaomi","family":"Kessoku","sequence":"additional","affiliation":[{"name":"Department of Palliative Medicine Yokohama City University Hospital  Yokohama Japan"},{"name":"Department of Gastroenterology and Hepatology Yokohama City University Graduate School of Medicine  Yokohama Kanagawa Japan"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Yoshinobu","family":"Matsuda","sequence":"additional","affiliation":[{"name":"Department of Psychosomatic Internal Medicine National Hospital Organization Kinki\u2010Chuo Chest Medical Center  Sakai Osaka Japan"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Keita","family":"Tagami","sequence":"additional","affiliation":[{"name":"Department of Palliative Medicine Tohoku University Graduate School of Medicine  Sendai Miyagi Japan"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Hiroyuki","family":"Otani","sequence":"additional","affiliation":[{"name":"Department of Palliative Care Team, and Palliative and Supportive Care St. Mary's Hospital  Kurume Fukuoka Japan"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Masanori","family":"Mori","sequence":"additional","affiliation":[{"name":"Palliative and Supportive Care Division Seirei Mikatahara General Hospital  Hamamatsu Shizuoka Japan"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tomohiko","family":"Taniyama","sequence":"additional","affiliation":[{"name":"Department of Clinical Oncology and Palliative Medicine Mitsubishi Kyoto Hospital  Nishikyo\u2010ku Kyoto Japan"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nobuhisa","family":"Nakajima","sequence":"additional","affiliation":[{"name":"Division of Community Medicine and International Medicine University of the Ryukyus Hospital  Nakagami\u2010gun Okinawa Japan"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Erika","family":"Nakanishi","sequence":"additional","affiliation":[{"name":"Department of Palliative Nursing, Health Sciences Tohoku University Graduate School of Medicine  Sendai Miyagi Japan"},{"name":"Graduate School of Public Health St. Luke's International University, OMURA Susumu &amp; 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COSMIN checklist with 4\u2010point scale."},{"key":"e_1_2_9_31_1","unstructured":"Kuli\u015bD BottomleyA VelikovaG GreimelE KollerM on behalf ofthe EORTC Quality of Life Group.EORTC quality of life group translation procedure fourth edition 2017. translation_manual_2017.pdf (eortc.org)."},{"key":"e_1_2_9_32_1","doi-asserted-by":"publisher","DOI":"10.1089\/pmr.2022.0009"},{"key":"e_1_2_9_33_1","doi-asserted-by":"publisher","DOI":"10.1002\/jcsm.12899"}],"container-title":["Journal of Cachexia, Sarcopenia and Muscle"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/jcsm.13133","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1002\/jcsm.13133","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/jcsm.13133","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,8,19]],"date-time":"2023-08-19T08:59:28Z","timestamp":1692435568000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1002\/jcsm.13133"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2022,11,20]]},"references-count":32,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2023,2]]}},"alternative-id":["10.1002\/jcsm.13133"],"URL":"https:\/\/doi.org\/10.1002\/jcsm.13133","archive":["Portico"],"relation":{},"ISSN":["2190-5991","2190-6009"],"issn-type":[{"value":"2190-5991","type":"print"},{"value":"2190-6009","type":"electronic"}],"subject":[],"published":{"date-parts":[[2022,11,20]]},"assertion":[{"value":"2022-07-25","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2022-10-25","order":1,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2022-11-20","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}