{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,2]],"date-time":"2026-09-02T17:08:52Z","timestamp":1788368932602,"version":"build-2803163510"},"reference-count":34,"publisher":"Wiley","issue":"6","license":[{"start":{"date-parts":[[2020,2,19]],"date-time":"2020-02-19T00:00:00Z","timestamp":1582070400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/100005725","name":"CHDI Foundation","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100005725","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Journal of Genetic Counseling"],"published-print":{"date-parts":[[2020,12]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>Huntington's disease (HD) is an inherited neurodegenerative disorder characterized by motor problems, cognitive impairment, and mood disturbances. Given the emotional elements of both HD itself and the testing process for it, psychological interventions may be helpful for those families impacted by HD. A stand\u2010alone genetic counseling narrative group has been offered by one regional genetics clinic in the north of England to support people's coping following predictive genetic testing for HD. Groups are held 4\u20135 times per year with patients attending a group on a single occasion. This study assessed participants\u2019 experiences of attending a group using the qualitative method interpretative phenomenological analysis (IPA). Telephone interviews were conducted with 12 people who had a mutation\u2010positive HD predictive test result and who had taken part in a genetic counseling narrative group session between November 2017 and February 2018. Participants were asked about their experiences of the group and any impact it had had on their lives. Four themes emerged: \u2018The power of the group, \u2018Active elements of the narrative exercise\u2019, \u2018Subsequent impact of the session\u2019, and \u2018Another voice\u2019. Participants described the positive impact of being able to meet and empathize with others in a similar situation, the group's positive impact on their mood and future outlook, and its beneficial impact on disclosure. While most participants were positive about the session, the final theme presented the voices of two participants for whom the groups were poorly timed. Given the sessions\u2019 generally positive impact, we recommend other centers consider offering people impacted by HD similar sessions.<\/jats:p>","DOI":"10.1002\/jgc4.1229","type":"journal-article","created":{"date-parts":[[2020,2,20]],"date-time":"2020-02-20T06:24:10Z","timestamp":1582179850000},"page":"1015-1025","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":16,"title":["Evaluating a genetic counseling narrative group session for people who have tested positive for the Huntington's disease expansion: An interpretative phenomenological analysis"],"prefix":"10.1002","volume":"29","author":[{"given":"Johanna","family":"Spiers","sequence":"first","affiliation":[{"name":"Birkbeck University of London London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jonathan A.","family":"Smith","sequence":"additional","affiliation":[{"name":"Birkbeck University of London London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mariangels","family":"Ferrer\u2010Duch","sequence":"additional","affiliation":[{"name":"Leeds University School of Medicine University of Leeds Leeds UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ramona","family":"Moldovan","sequence":"additional","affiliation":[{"name":"Division of Evolution and Genomic Sciences School of Biological Science University of Manchester Manchester UK"},{"name":"Manchester Centre for Genomic Medicine St Mary's Hospital Manchester University Hospitals NHS Foundation Trust Manchester UK"},{"name":"Department of Psychology Babe\u015f\u2010Bolyai University Cluj\u2010Napoca Romania"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jay","family":"Roche","sequence":"additional","affiliation":[{"name":"Manchester Centre for Genomic Medicine St Mary's Hospital Manchester University Hospitals NHS Foundation Trust Manchester UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rhona","family":"MacLeod","sequence":"additional","affiliation":[{"name":"Division of Evolution and Genomic Sciences School of Biological Science University of Manchester Manchester UK"},{"name":"Manchester Centre for Genomic Medicine St Mary's Hospital Manchester University Hospitals NHS Foundation Trust Manchester UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2020,2,19]]},"reference":[{"key":"e_1_2_8_2_1","doi-asserted-by":"publisher","DOI":"10.1080\/17437199.2011.634572"},{"key":"e_1_2_8_3_1","doi-asserted-by":"publisher","DOI":"10.1097\/00004850-200403000-00001"},{"key":"e_1_2_8_4_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2007.06.002"},{"key":"e_1_2_8_5_1","doi-asserted-by":"publisher","DOI":"10.1136\/practneurol-2013-000790"},{"key":"e_1_2_8_6_1","doi-asserted-by":"publisher","DOI":"10.1038\/sj.ejhg.5200913"},{"key":"e_1_2_8_7_1","doi-asserted-by":"publisher","DOI":"10.1002\/ajmg.b.31079"},{"key":"e_1_2_8_8_1","doi-asserted-by":"publisher","DOI":"10.1177\/001872675400700202"},{"key":"e_1_2_8_9_1","doi-asserted-by":"publisher","DOI":"10.1111\/cge.12439"},{"key":"e_1_2_8_10_1","doi-asserted-by":"publisher","DOI":"10.1007\/978-3-319-71779-1_1"},{"key":"e_1_2_8_11_1","doi-asserted-by":"publisher","DOI":"10.1177\/1049732314553122"},{"key":"e_1_2_8_12_1","doi-asserted-by":"publisher","DOI":"10.1002\/anzf.1040"},{"key":"e_1_2_8_13_1","doi-asserted-by":"publisher","DOI":"10.1177\/0269215513487235"},{"key":"e_1_2_8_14_1","doi-asserted-by":"publisher","DOI":"10.1016\/0092-8674(93)90585-E"},{"key":"e_1_2_8_15_1","doi-asserted-by":"publisher","DOI":"10.3233\/JHD-170276"},{"key":"e_1_2_8_16_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1399-0004.2012.01900.x"},{"key":"e_1_2_8_17_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmjdrc-2017-000488"},{"key":"e_1_2_8_18_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10897-013-9666-3"},{"key":"e_1_2_8_19_1","doi-asserted-by":"publisher","DOI":"10.1038\/ejhg.2010.258"},{"key":"e_1_2_8_20_1","doi-asserted-by":"publisher","DOI":"10.1207\/S1532768XJEPC1203_04"},{"issue":"1","key":"e_1_2_8_21_1","first-page":"3","article-title":"The tree of life project: Using narrative ideas to work with vulnerable children in Southern Africa","volume":"2006","author":"Ncube N.","year":"2015","journal-title":"International Journal of Narrative Therapy & Community Work"},{"key":"e_1_2_8_22_1","doi-asserted-by":"publisher","DOI":"10.1002\/ajmg.b.30600"},{"key":"e_1_2_8_23_1","doi-asserted-by":"publisher","DOI":"10.1515\/IJDHD.2010.046"},{"key":"e_1_2_8_24_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0738-3991(02)00070-8"},{"key":"e_1_2_8_25_1","volume-title":"Interpretative phenomenological analysis : Theory, method and research","author":"Smith J. 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