{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,25]],"date-time":"2026-09-25T13:18:15Z","timestamp":1790342295428,"version":"4.1.0"},"reference-count":63,"publisher":"Wiley","issue":"3","license":[{"start":{"date-parts":[[2021,1,26]],"date-time":"2021-01-26T00:00:00Z","timestamp":1611619200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Journal of Genetic Counseling"],"published-print":{"date-parts":[[2021,6]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>Pregnant Hispanic women are underserved with their needs for genetic counseling, despite birth defects remaining the leading cause of infant death in the United States. We present the qualitative findings of a study to understand knowledge and perceptions of prenatal testing in a sample of hard\u2010to\u2010reach underrepresented Hispanic pregnant women in South Texas. The sample for this study was 10 Hispanic pregnant women who were recruited from a high\u2010risk prenatal clinic in South Texas in 2019. The semi\u2010structured interview questions were created based on the researchers' clinical experiences with this population and were designed to examine knowledge and perceptions of participants toward prenatal testing. Analysis of the qualitative data yielded several themes related to prenatal testing: (a) knowledge, (b) confusion, (c) partner's and support persons' opinions, (d) information sharing from providers, (e) psychological benefits, (f) preparation for baby, (g) obstacles, (h) religious influence, and (i) educational tools to assist with understanding. Women's understanding and knowledge of prenatal testing was limited, specifically regarding its purpose, how it works, the benefits, and why it was recommended by their provider. Lack of clarity about why they should take the test and its risks for them and their babies was perceived as something that could impede their acceptance of prenatal testing. All participants agreed that healthcare providers should share more information about prenatal testing in a way that uses \u2018everyday language' so that they can understand it better. All respondents mentioned that prenatal testing provides information about their baby's health conditions, alleviates their stress and concerns, and psychologically prepares them and their family for what is to come. Identifying ways to increase culturally appropriate education delivered by genetic counselors such as through the adoption of telemedicine and mobile technology can help fill the gap for this underserved population.<\/jats:p>","DOI":"10.1002\/jgc4.1383","type":"journal-article","created":{"date-parts":[[2021,1,26]],"date-time":"2021-01-26T14:49:41Z","timestamp":1611672581000},"page":"838-848","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":15,"title":["Pregnant Hispanic women's views and knowledge of prenatal genetic testing"],"prefix":"10.1002","volume":"30","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-7223-412X","authenticated-orcid":false,"given":"Robin L.","family":"Page","sequence":"first","affiliation":[{"name":"Texas A&amp;M University College of Nursing College Station TX USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Christina","family":"Murphey","sequence":"additional","affiliation":[{"name":"College of Nursing &amp; Health Sciences Texas A&amp;M University\u2010Corpus Christi Corpus Christi TX USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Yahyahan","family":"Aras","sequence":"additional","affiliation":[{"name":"Department of Counseling and Educational Psychology Texas A&amp;M University\u2010Corpus Christi Corpus Christi TX USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lei\u2010Shih","family":"Chen","sequence":"additional","affiliation":[{"name":"Texas A&amp;M University College of Education and Human Development College Station TX USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ryan","family":"Loftin","sequence":"additional","affiliation":[{"name":"Driscoll Health System Maternal\u2010Fetal Medicine Corpus Christi TX USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2021,1,26]]},"reference":[{"key":"e_1_2_10_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0033-3549(04)50052-3"},{"key":"e_1_2_10_3_1","doi-asserted-by":"publisher","DOI":"10.1038\/jp.2014.30"},{"key":"e_1_2_10_4_1","doi-asserted-by":"publisher","DOI":"10.1097\/00006250-200701000-00054"},{"key":"e_1_2_10_5_1","doi-asserted-by":"publisher","DOI":"10.1177\/109019817400200407"},{"issue":"5","key":"e_1_2_10_6_1","first-page":"648","article-title":"Prenatal genetic testing: Content of discussions between obstetric providers and pregnant women","volume":"91","author":"Bernhardt B. A.","year":"1998","journal-title":"Obstetrics and Gynecology"},{"key":"e_1_2_10_7_1","doi-asserted-by":"publisher","DOI":"10.1191\/1478088706qp063oa"},{"key":"e_1_2_10_8_1","doi-asserted-by":"publisher","DOI":"10.1177\/0739986300223005"},{"key":"e_1_2_10_9_1","doi-asserted-by":"publisher","DOI":"10.1097\/AOG.0000000000000843"},{"key":"e_1_2_10_10_1","doi-asserted-by":"publisher","DOI":"10.1002\/pd.4125"},{"key":"e_1_2_10_11_1","doi-asserted-by":"publisher","DOI":"10.1002\/nur.22028"},{"key":"e_1_2_10_12_1","doi-asserted-by":"publisher","DOI":"10.1155\/2014\/725968"},{"key":"e_1_2_10_13_1","doi-asserted-by":"publisher","DOI":"10.1097\/AOG.0000000000001433"},{"key":"e_1_2_10_14_1","doi-asserted-by":"publisher","DOI":"10.1177\/1477750913511339"},{"key":"e_1_2_10_15_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.wombi.2014.02.003"},{"key":"e_1_2_10_16_1","doi-asserted-by":"publisher","DOI":"10.1080\/13698570601181573"},{"key":"e_1_2_10_17_1","doi-asserted-by":"publisher","DOI":"10.1002\/ajmg.a.32068"},{"key":"e_1_2_10_18_1","doi-asserted-by":"publisher","DOI":"10.1002\/pd.4599"},{"key":"e_1_2_10_19_1","doi-asserted-by":"publisher","DOI":"10.1002\/pd.2867"},{"key":"e_1_2_10_20_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10897-015-9928-3"},{"key":"e_1_2_10_21_1","doi-asserted-by":"publisher","DOI":"10.1136\/jech.2009.088237"},{"key":"e_1_2_10_22_1","doi-asserted-by":"publisher","DOI":"10.1002\/pd.2391"},{"key":"e_1_2_10_23_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2009.03.034"},{"key":"e_1_2_10_24_1","doi-asserted-by":"publisher","DOI":"10.1002\/jgc4.1261"},{"key":"e_1_2_10_25_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jmwh.2005.01.008"},{"key":"e_1_2_10_26_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10995-007-0214-3"},{"key":"e_1_2_10_27_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10995-016-2185-8"},{"key":"e_1_2_10_28_1","doi-asserted-by":"publisher","DOI":"10.1097\/MIB.0000000000000021"},{"key":"e_1_2_10_29_1","volume-title":"Assessing genetic risks: Implications for health and social policy","author":"Institute of Medicine (US) Committee on Assessing Genetic Risks","year":"1994"},{"key":"e_1_2_10_30_1","volume-title":"Antepartum care","author":"Illinois Department of Human Services","year":"2020"},{"key":"e_1_2_10_31_1","doi-asserted-by":"publisher","DOI":"10.1080\/10410236.2016.1140500"},{"key":"e_1_2_10_32_1","doi-asserted-by":"publisher","DOI":"10.1097\/01.AOG.0000214953.90248.db"},{"key":"e_1_2_10_33_1","doi-asserted-by":"publisher","DOI":"10.1002\/ajmg.c.10004"},{"key":"e_1_2_10_34_1","doi-asserted-by":"publisher","DOI":"10.1097\/MD.0000000000013334"},{"key":"e_1_2_10_35_1","doi-asserted-by":"publisher","DOI":"10.1016\/0147-1767(85)90062-8"},{"key":"e_1_2_10_36_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2018.10.019"},{"key":"e_1_2_10_37_1","doi-asserted-by":"publisher","DOI":"10.1089\/jwh.1.1999.8.521"},{"key":"e_1_2_10_38_1","volume-title":"Infant deaths by cause of death: United States, 2017","author":"National Center for Health Statistics","year":"2020"},{"key":"e_1_2_10_39_1","volume-title":"NSGC home page","author":"National Society of Genetic Counselors","year":"2020"},{"key":"e_1_2_10_40_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.midw.2005.08.002"},{"key":"e_1_2_10_41_1","doi-asserted-by":"publisher","DOI":"10.1093\/humupd\/5.4.386"},{"key":"e_1_2_10_42_1","doi-asserted-by":"publisher","DOI":"10.1080\/15313204.2012.700443"},{"key":"e_1_2_10_43_1","doi-asserted-by":"publisher","DOI":"10.1002\/1098-240X(200008)23:4<334::AID-NUR9>3.0.CO;2-G"},{"key":"e_1_2_10_44_1","doi-asserted-by":"publisher","DOI":"10.1001\/jamanetworkopen.2019.1062"},{"key":"e_1_2_10_45_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10897-011-9378-5"},{"key":"e_1_2_10_46_1","doi-asserted-by":"publisher","DOI":"10.1111\/jocn.13494"},{"key":"e_1_2_10_47_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jogn.2019.11.001"},{"key":"e_1_2_10_48_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.309.6957.776"},{"key":"e_1_2_10_49_1","doi-asserted-by":"publisher","DOI":"10.1136\/qshc.3.2.75"},{"key":"e_1_2_10_50_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12884-018-2135-0"},{"key":"e_1_2_10_51_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ajog.2016.02.042"},{"key":"e_1_2_10_52_1","volume-title":"Prenatal testing","author":"Stanford Children's Hospital","year":"2020"},{"key":"e_1_2_10_53_1","doi-asserted-by":"publisher","DOI":"10.1097\/GIM.0b013e3181ab22aa"},{"key":"e_1_2_10_54_1","doi-asserted-by":"publisher","DOI":"10.1111\/1467-8519.00157"},{"key":"e_1_2_10_55_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10897-009-9269-1"},{"key":"e_1_2_10_56_1","volume-title":"BD mortality: Leading causes of death by age group, Texas, 2013","author":"Texas Department of State Health Services","year":"2020"},{"key":"e_1_2_10_57_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10897-017-0084-9"},{"key":"e_1_2_10_58_1","volume-title":"Culturally competent nursing care: A cornerstone of caring","author":"U.S. Department of Health and Human Services","year":"2020"},{"key":"e_1_2_10_59_1","volume-title":"Culturally and linguistically appropriate services","author":"U.S. Department of Health and Human Services","year":"2020"},{"key":"e_1_2_10_60_1","doi-asserted-by":"publisher","DOI":"10.1097\/01.GIM.0000162876.65555.AB"},{"issue":"7","key":"e_1_2_10_61_1","article-title":"Representation in clinical trials: A review on reaching underrepresented populations in research","volume":"34","author":"Yates I.","year":"2020","journal-title":"Clinical Researcher"},{"key":"e_1_2_10_62_1","doi-asserted-by":"publisher","DOI":"10.1002\/pd.4347"},{"key":"e_1_2_10_63_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0081794"},{"key":"e_1_2_10_64_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2524.2011.01036.x"}],"container-title":["Journal of Genetic Counseling"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/jgc4.1383","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1002\/jgc4.1383","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/jgc4.1383","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,8,30]],"date-time":"2023-08-30T17:44:13Z","timestamp":1693417453000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1002\/jgc4.1383"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2021,1,26]]},"references-count":63,"journal-issue":{"issue":"3","published-print":{"date-parts":[[2021,6]]}},"alternative-id":["10.1002\/jgc4.1383"],"URL":"https:\/\/doi.org\/10.1002\/jgc4.1383","archive":["Portico"],"relation":{},"ISSN":["1059-7700","1573-3599"],"issn-type":[{"value":"1059-7700","type":"print"},{"value":"1573-3599","type":"electronic"}],"subject":[],"published":{"date-parts":[[2021,1,26]]},"assertion":[{"value":"2020-07-14","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2020-12-22","order":1,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2021-01-26","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}