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This study aims to explore the experiences associated with genetic testing for this hereditary condition. Semi\u2010structured interviews with 38 <jats:italic>SDHx<\/jats:italic> PV (tumor\u2010affected and non\u2010affected) carriers were transcribed and content\u2010analyzed. Four ways of living with this genetic alteration emerged from the interviews: \u2018living as if not knowing\u2019, \u2018preventing others from going through this\u2019, \u2018feeling privileged\u2019, and \u2018still suffering\u2019. Within each, negative, neutral, and positive reactions to the actual test result emerged initially, in addition to blame and guilt. Recognition of the importance of the genetic test and of the follow\u2010up occurred in all four, but views on fecundity were divided between having and not having children. Consideration for the four different meanings of carrying an <jats:italic>SDHx<\/jats:italic> PV can improve participants\u2019 experiences and clinical practice.<\/jats:p>","DOI":"10.1002\/jgc4.1390","type":"journal-article","created":{"date-parts":[[2021,2,20]],"date-time":"2021-02-20T22:17:00Z","timestamp":1613859420000},"page":"872-884","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":3,"title":["Genetic testing for pheochromocytoma and paraganglioma: <i>SDHx<\/i> carriers\u2019 experiences"],"prefix":"10.1002","volume":"30","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-2786-3650","authenticated-orcid":false,"given":"Raquel Gomes","family":"Martins","sequence":"first","affiliation":[{"name":"Department of Endocrinology Portuguese Oncology Institute of Coimbra Porto Portugal"},{"name":"Medical Psychology Unit Department of Clinical Neurosciences and Mental Health School of Medicine University of Oporto Porto Portugal"},{"name":"Research Centre Portuguese Oncology Institute of Oporto Porto Portugal"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Irene Palmares","family":"Carvalho","sequence":"additional","affiliation":[{"name":"Medical Psychology Unit Department of Clinical Neurosciences and Mental Health School of Medicine University of Oporto Porto Portugal"},{"name":"CINTESIS School of Medicine University of Oporto Porto Portugal"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2021,2,18]]},"reference":[{"key":"e_1_2_11_2_1","volume-title":"Qualitative research for education: An introduction to theories and methods","author":"Bogdan R. 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