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Eleven families, who received a false\u2010positive Krabbe NBS result and received genetic counseling at an institution in central Ohio, were consented to participate in semistructured interviews. Interviews explored parents\u2019 experiences throughout the NBS process and ascertained their opinions regarding Krabbe NBS. Three major themes emerged from thematic analysis: (1) improved understanding of the NBS process from a parent perspective, (2) the role of healthcare provider communication, and (3) the value of Krabbe NBS. Parents saw value in Krabbe NBS, despite many disclosing emotional distress and uncertainty throughout the NBS process. Parent experiences throughout the NBS process varied widely. Due to the expressed emotional distress, further research assessing effective communication during the NBS process is warranted. The researchers suggest additional NBS education for non\u2010genetics healthcare providers (i.e., nurses or primary care physicians) and further participation of genetic counselors in the NBS process may benefit families with a positive Krabbe NBS result.<\/jats:p>","DOI":"10.1002\/jgc4.1480","type":"journal-article","created":{"date-parts":[[2021,7,15]],"date-time":"2021-07-15T19:50:46Z","timestamp":1626378646000},"page":"252-260","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":16,"title":["A qualitative assessment of parental experiences with false\u2010positive newborn screening for Krabbe disease"],"prefix":"10.1002","volume":"31","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-8823-3022","authenticated-orcid":false,"given":"Laiken","family":"Peterson","sequence":"first","affiliation":[{"name":"Division of Human Genetics Department of Internal Medicine The Ohio State University Columbus Ohio USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Amy","family":"Siemon","sequence":"additional","affiliation":[{"name":"Division of Genetic and Genomic Medicine Nationwide Children\u2019s Hospital Columbus Ohio USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Leah","family":"Olewiler","sequence":"additional","affiliation":[{"name":"Division of Medical Genetics University of Mississippi Medical Center Jackson Mississippi USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kim L.","family":"McBride","sequence":"additional","affiliation":[{"name":"Division of Genetic and Genomic Medicine Nationwide Children\u2019s Hospital Columbus Ohio USA"},{"name":"Center for Cardiovascular Research Nationwide Children\u2019s Hospital Columbus Ohio USA"},{"name":"Department of Pediatrics College of Medicine The Ohio State University Columbus Ohio USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Dawn C.","family":"Allain","sequence":"additional","affiliation":[{"name":"Division of Human Genetics Department of Internal Medicine The Ohio State University Columbus Ohio USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2021,7,15]]},"reference":[{"key":"e_1_2_10_2_1","unstructured":"Accreditation Council for Genetic Counseling Practice\u2010Based Competencies. 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