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In recent years, increased awareness of intersex issues and a robust advocacy movement have drawn significant attention to the experiences of intersex individuals and their families. This study contributes to the existing literature by examining the experiences and needs of parents of intersex individuals within genetic healthcare systems, bridging a critical gap, and advocating for more comprehensive and supportive healthcare practices. Semi\u2010structured interviews were conducted with 14 parents of intersex individuals, and reflexive thematic analysis was used to inductively generate four major themes. Themes highlighted the need for improved accessibility of intersex healthcare, the importance of multidisciplinary healthcare teams, and the significance of clinical diagnosis provided by genetics professionals. Furthermore, the study highlighted the necessity of a thoughtful approach to information provision and the impact of genetic investigations on family dynamics. Genetics professionals can play a pivotal role in raising awareness about intersex variations, improving diagnostic processes, collaborating within healthcare teams, and providing specialized support to address psychosocial concerns. The study underscores the importance of treating families as a collective entity and addressing the impact of genetic investigations on the family unit. By addressing the challenges and implementing the recommendations outlined, healthcare institutions can create a more compassionate, inclusive, and effective healthcare environment for the intersex community.<\/jats:p>","DOI":"10.1002\/jgc4.1905","type":"journal-article","created":{"date-parts":[[2024,4,17]],"date-time":"2024-04-17T00:39:35Z","timestamp":1713314375000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":6,"title":["Enhancing intersex healthcare: A qualitative study of parental perspectives on the role of genetics"],"prefix":"10.1002","volume":"34","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-8319-2188","authenticated-orcid":false,"given":"Kayla","family":"Horowitz","sequence":"first","affiliation":[{"name":"Department of Human Genetics McGill University  Montreal Qu\u00e9bec Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1712-6403","authenticated-orcid":false,"given":"Kimberly","family":"Zayhowski","sequence":"additional","affiliation":[{"name":"Department of Obstetrics and Gynecology Boston University Chobanian &amp; Avedisian School of Medicine  Boston Massachusetts USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4163-9105","authenticated-orcid":false,"given":"Nicole","family":"Palmour","sequence":"additional","affiliation":[{"name":"Centre of Genomics and Policy McGill University  Montreal Qu\u00e9bec Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6684-8157","authenticated-orcid":false,"given":"Darius","family":"Haghighat","sequence":"additional","affiliation":[{"name":"Department of Obstetrics and Gynecology Boston University Chobanian &amp; Avedisian School of Medicine  Boston Massachusetts USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8775-2322","authenticated-orcid":false,"given":"Yann","family":"Joly","sequence":"additional","affiliation":[{"name":"Centre of Genomics and Policy McGill University  Montreal Qu\u00e9bec Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2024,4,16]]},"reference":[{"issue":"7","key":"e_1_2_12_2_1","doi-asserted-by":"crossref","DOI":"10.3390\/children9070933","article-title":"Psychosocial considerations for the child with rare disease: A review with recommendations and calls to action","volume":"9","author":"Belzer L. 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