{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,9]],"date-time":"2026-06-09T12:03:48Z","timestamp":1781006628536,"version":"3.54.1"},"reference-count":50,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2026,4,19]],"date-time":"2026-04-19T00:00:00Z","timestamp":1776556800000},"content-version":"vor","delay-in-days":18,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"},{"start":{"date-parts":[[2026,4,1]],"date-time":"2026-04-01T00:00:00Z","timestamp":1775001600000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"funder":[{"DOI":"10.13039\/100010237","name":"National Society of Genetic Counselors","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100010237","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Journal of Genetic Counseling"],"published-print":{"date-parts":[[2026,4]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:p>\n                    The role of a cancer genetic counselor includes communication about emotions, thoughts, and decision\u2010making related to prophylactic surgery. No prior study has fully evaluated the preferences of young adults who are\n                    <jats:italic>BRCA1, BRCA2 (BRCA1\/2)<\/jats:italic>\n                    , or\n                    <jats:italic>PALB2<\/jats:italic>\n                    positive and their communication preferences on discussing prophylactic surgery in a genetic counseling session. We addressed this through semi\u2010structured interviews with 13 individuals who were assigned female sex at birth, aged 18\u201330 during the time of genetic counseling, had seen a genetic counselor in the past 7\u2009years, and tested positive for a\n                    <jats:italic>BRCA1\/2<\/jats:italic>\n                    or\n                    <jats:italic>PALB2<\/jats:italic>\n                    pathogenic or likely pathogenic variant. Coding by two researchers and reflexive thematic analysis by three researchers was conducted to explore preferences of this population. Five major themes were constructed in analysis: (1) care personalized for life stage and identity; (2) personal and community factors impacting decision\u2010making; (3) communication about gene\u2010positive medical management; (4) healthcare system concerns; and (5) preferences for genetic counselor post\u2010test counseling and follow\u2010up. Young adult participants discussed that life\u2010stage considerations such as body image, sexuality, and childbearing were important factors in their emotions and decision\u2010making around prophylactic surgery, differing from previous literature on older populations. Participants desired more follow\u2010up, better support and education around practical and emotional considerations for prophylactic surgery, and acknowledgment of personal and community factors that impacted them. Genetic counselors can personalize each visit to the patient and their needs by extensively contracting and bringing up topics that may be relevant and adjusting based on their preferences and values.\n                  <\/jats:p>","DOI":"10.1002\/jgc4.70211","type":"journal-article","created":{"date-parts":[[2026,4,20]],"date-time":"2026-04-20T06:29:32Z","timestamp":1776666572000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Unique social, identity, and community factors impact prophylactic surgery discussions in young adults who are\n                    <i>BRCA1<\/i>\n                    ,\n                    <i>BRCA2<\/i>\n                    , and\n                    <i>PALB2<\/i>\n                    positive"],"prefix":"10.1002","volume":"35","author":[{"ORCID":"https:\/\/orcid.org\/0009-0000-3896-9392","authenticated-orcid":false,"given":"Alyssa","family":"Boye","sequence":"first","affiliation":[{"name":"Program in Genetic Counseling, Vagelos College of Physicians and Surgeons Columbia University  New York New York USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5220-6022","authenticated-orcid":false,"given":"Julia","family":"Wynn","sequence":"additional","affiliation":[{"name":"Clinical Affairs, BillionToOne Inc.  Menlo Park California USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0005-5892-194X","authenticated-orcid":false,"given":"Katherine","family":"Foudy","sequence":"additional","affiliation":[{"name":"Program in Genetic Counseling, Vagelos College of Physicians and Surgeons Columbia University  New York New York USA"},{"name":"Department of Medicine, Division of Digestive and Liver Diseases Columbia University  New York New York USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9892-6634","authenticated-orcid":false,"given":"Joanna","family":"Urli","sequence":"additional","affiliation":[{"name":"Program in Genetic Counseling, Vagelos College of Physicians and Surgeons Columbia University  New York New York USA"},{"name":"Department of OB\/GYN, Division of Women's Genetics Columbia University  New York New York USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4205-2311","authenticated-orcid":false,"given":"Michelle E.","family":"Florido","sequence":"additional","affiliation":[{"name":"Program in Genetic Counseling, Vagelos College of Physicians and Surgeons Columbia University  New York New York USA"},{"name":"Department of Genetics and Development, Vagelos College of Physicians and Surgeons Columbia University  New York New York USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,4,19]]},"reference":[{"key":"e_1_2_12_2_1","doi-asserted-by":"publisher","DOI":"10.3390\/curroncol30020185"},{"key":"e_1_2_12_3_1","doi-asserted-by":"publisher","DOI":"10.1200\/JCO.2015.66.3450"},{"key":"e_1_2_12_4_1","doi-asserted-by":"publisher","DOI":"10.1002\/capr.12360"},{"key":"e_1_2_12_5_1","doi-asserted-by":"publisher","DOI":"10.1080\/14780887.2020.1769238"},{"key":"e_1_2_12_6_1","doi-asserted-by":"publisher","DOI":"10.1080\/14780887.2024.2382244"},{"key":"e_1_2_12_7_1","doi-asserted-by":"publisher","DOI":"10.1177\/02692163241234800"},{"key":"e_1_2_12_8_1","doi-asserted-by":"publisher","DOI":"10.1186\/s13053\u2010019\u20100132\u20106"},{"key":"e_1_2_12_9_1","doi-asserted-by":"publisher","DOI":"10.1002\/jgc4.70030"},{"key":"e_1_2_12_10_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.gore.2022.100989"},{"key":"e_1_2_12_11_1","volume-title":"Childhood and society","author":"Erikson E. 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