{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,16]],"date-time":"2026-09-16T07:04:02Z","timestamp":1789542242721,"version":"build-2803163510"},"reference-count":30,"publisher":"Wiley","issue":"5","license":[{"start":{"date-parts":[[2026,9,15]],"date-time":"2026-09-15T00:00:00Z","timestamp":1789430400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,9,15]],"date-time":"2026-09-15T00:00:00Z","timestamp":1789430400000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"funder":[{"DOI":"10.13039\/100002558","name":"Warren Alpert Foundation","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100002558","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000051","name":"National Human Genome Research Institute","doi-asserted-by":"publisher","award":["1K01HG013339"],"award-info":[{"award-number":["1K01HG013339"]}],"id":[{"id":"10.13039\/100000051","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Journal of Genetic Counseling"],"published-print":{"date-parts":[[2026,10]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:p>Patient advocacy organizations (PAOs) and genetic counseling have expanded in tandem with the growth of precision medicine. Genetic counseling and PAOs share important goals related to advancing genomic medicine, creating novel possibilities for synergistic collaboration, especially as the sheer number of PAOs focused on genetic conditions presents new options for genetic counselor education. While patient advocacy has long been part of genetic counseling education, there are few published reports or studies focused on how advocacy is incorporated into genetic counseling graduate training. Accordingly, the University of Pennsylvania Master of Science in Genetic Counseling Program and the University of Pennsylvania Orphan Disease Center's JumpStart Program collaborated to launch an experiential service\u2010learning opportunity wherein genetic counseling trainees partner with a disease\u2010specific advocacy group over the course of a 10\u2010week advocacy internship. Here, we describe our evolving efforts to incorporate an advocacy internship in our graduate curriculum, culminating in the development of The Genetic Counseling Student Exchange (GCSX) program. We share the curricular format, planning and staff workflow, as well as examples of internship project deliverables. We also reflect on the internship from varying perspectives, highlighting our experiences and feedback from different stakeholders. In closing, we consider how the GCSX may be a key step towards incorporating more disability education into our genetic counseling training program while calling for future research on GCSX to measure its impact and to determine how best to tailor disability education around the internship experience. Overall, we hope that detailing the GCSX inspires other GC programs to consider adapting aspects of the educational framework that we have developed to expand advocacy training across genetic counseling programs.<\/jats:p>","DOI":"10.1002\/jgc4.70289","type":"journal-article","created":{"date-parts":[[2026,9,16]],"date-time":"2026-09-16T06:25:13Z","timestamp":1789539913000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Preparing Genetic Counselors for Advocacy Partnerships: A Novel Internship Model"],"prefix":"10.1002","volume":"35","author":[{"given":"Marin","family":"Kalista","sequence":"first","affiliation":[{"name":"Master of Science in Genetic Counseling Program University of Pennsylvania Perelman School of Medicine  Philadelphia Pennsylvania USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0003-9245-4949","authenticated-orcid":false,"given":"Lisa Jay","family":"Kessler","sequence":"additional","affiliation":[{"name":"Master of Science in Genetic Counseling Program University of Pennsylvania Perelman School of Medicine  Philadelphia Pennsylvania USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Deborah","family":"Requesens","sequence":"additional","affiliation":[{"name":"Orphan Disease Center JumpStart Program University of Pennsylvania  Philadelphia Pennsylvania USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6515-8982","authenticated-orcid":false,"given":"Kathleen D.","family":"Valverde","sequence":"additional","affiliation":[{"name":"Master of Science in Genetic Counseling Program University of Pennsylvania Perelman School of Medicine  Philadelphia Pennsylvania USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0863-1395","authenticated-orcid":false,"given":"Rebecca","family":"Mueller","sequence":"additional","affiliation":[{"name":"Master of Science in Genetic Counseling Program University of Pennsylvania Perelman School of Medicine  Philadelphia Pennsylvania USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,9,15]]},"reference":[{"key":"e_1_2_15_2_1","unstructured":"Accreditation Council for Genetic Counseling.2023a.\u201cPractice\u2010Based Competencies for Genetic Counselors.\u201dhttps:\/\/www.gceducation.org\/wp\u2010content\/uploads\/2024\/08\/ACGC_PracticeBasedCompetencies_2023.pdf."},{"key":"e_1_2_15_3_1","unstructured":"Accreditation Council for Genetic Counseling.2023b.\u201cStandards of Accreditation for Graduate Programs in Genetic Counseling.\u201dhttps:\/\/www.gceducation.org\/wp\u2010content\/uploads\/2024\/07\/ACGC_StandardsOfAccreditation_2023.pdf."},{"key":"e_1_2_15_4_1","doi-asserted-by":"publisher","DOI":"10.1002\/ajmg.c.31601"},{"key":"e_1_2_15_5_1","doi-asserted-by":"publisher","DOI":"10.1212\/WNL.0000000000207958"},{"key":"e_1_2_15_6_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10459\u2010022\u201010171\u20101"},{"key":"e_1_2_15_7_1","doi-asserted-by":"publisher","DOI":"10.1002\/jgc4.1800"},{"key":"e_1_2_15_8_1","doi-asserted-by":"publisher","DOI":"10.2147\/ODRR.S41070"},{"key":"e_1_2_15_9_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10897\u2010016\u20109946\u20109"},{"key":"e_1_2_15_10_1","doi-asserted-by":"crossref","DOI":"10.56021\/9781421445342","volume-title":"Disability Dialogues: Advocacy, Science, and Prestige in Postwar Clinical Professions","author":"Hogan A. J.","year":"2022"},{"key":"e_1_2_15_11_1","doi-asserted-by":"publisher","DOI":"10.1146\/annurev\u2010genom\u2010022024\u2010010951"},{"key":"e_1_2_15_12_1","doi-asserted-by":"publisher","DOI":"10.1002\/ss.8702"},{"key":"e_1_2_15_13_1","doi-asserted-by":"publisher","DOI":"10.1146\/annurev\u2010genom\u2010091212\u2010153525"},{"key":"e_1_2_15_14_1","unstructured":"Madden K.2025.\u201cThe Value of Nontraditional Roles: My Unexpected Path to Advocacy.\u201dNSGC Perspectives.https:\/\/perspectives.nsgc.org\/Article\/the\u2010value\u2010of\u2010nontraditional\u2010roles\u2010my\u2010unexpected\u2010path\u2010to\u2010advocacy."},{"key":"e_1_2_15_15_1","doi-asserted-by":"publisher","DOI":"10.1186\/s13023\u2010016\u20100445\u20108"},{"key":"e_1_2_15_16_1","doi-asserted-by":"publisher","DOI":"10.1002\/jgc4.70070"},{"key":"e_1_2_15_17_1","doi-asserted-by":"publisher","DOI":"10.3390\/genes15070867"},{"key":"e_1_2_15_18_1","unstructured":"National Society of Genetic Counselors.2017.\u201cNSGC Code of Ethics.\u201dhttps:\/\/www.nsgc.org\/Advocacy\/Code\u2010of\u2010Ethics\u2010Conflict\u2010of\u2010Interest\/Code\u2010of\u2010Ethics."},{"key":"e_1_2_15_19_1","unstructured":"National Society of Genetic Counselors.2024.\u201c2024 Professional Status Survey.\u201dhttps:\/\/www.nsgc.org\/Policy\u2010Research\u2010and\u2010Publications\/Professional\u2010Status\u2010Survey."},{"key":"e_1_2_15_20_1","doi-asserted-by":"publisher","DOI":"10.2217\/frd\u20102022\u20100003"},{"key":"e_1_2_15_21_1","doi-asserted-by":"publisher","DOI":"10.1002\/ajmg.c.31607"},{"key":"e_1_2_15_22_1","doi-asserted-by":"publisher","DOI":"10.1177\/26330040231164425"},{"key":"e_1_2_15_23_1","doi-asserted-by":"publisher","DOI":"10.1002\/jgc4.1748"},{"key":"e_1_2_15_24_1","doi-asserted-by":"publisher","DOI":"10.2105\/AJPH.2014.302364"},{"key":"e_1_2_15_25_1","doi-asserted-by":"publisher","DOI":"10.1002\/ajmg.a.36613"},{"key":"e_1_2_15_26_1","doi-asserted-by":"publisher","DOI":"10.1097\/00001888\u2010199803000\u201000015"},{"key":"e_1_2_15_27_1","unstructured":"Shuman D.2024.\u201cBeyond Social vs. Medical: Reflecting on the Implications of Common Models of Disability.\u201dNSGC Perspectives.https:\/\/perspectives.nsgc.org\/Article\/beyond\u2010social\u2010vs\u2010medical\u2010reflecting\u2010on\u2010the\u2010implications\u2010of\u2010common\u2010models\u2010of\u2010disability."},{"key":"e_1_2_15_28_1","doi-asserted-by":"crossref","DOI":"10.1353\/book.72083","volume-title":"Telling Genes: The Story of Genetic Counseling in America","author":"Stern A. 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