{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,10]],"date-time":"2026-10-10T03:53:22Z","timestamp":1791604402593,"version":"4.3.4"},"reference-count":16,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2026,7,23]],"date-time":"2026-07-23T00:00:00Z","timestamp":1784764800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,7,23]],"date-time":"2026-07-23T00:00:00Z","timestamp":1784764800000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["eJHaem"],"published-print":{"date-parts":[[2026,8]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Introduction<\/jats:title>\n                    <jats:p>Multiple myeloma (MM) is a complex haematological cancer. The terminology used can make discussions more challenging. We designed an online patient survey to explore this area.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Questions with fixed and free text response options explored understanding of MM and phrases Health Care Professionals (HCPs) and family used that were helpful or not.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Data from 138 patients revealed that most were satisfied with the HCPs' communication. Many gave examples where information received impacted their understanding, for example, about prognosis, treatment management and support.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>These findings will inform the production of educational materials to improve communication between patients, their families and HCPs.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Trial Registration<\/jats:title>\n                    <jats:p>The authors have confirmed clinical trial registration is not needed for this submission.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1002\/jha2.70347","type":"journal-article","created":{"date-parts":[[2026,7,23]],"date-time":"2026-07-23T14:40:53Z","timestamp":1784817653000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Patient Understanding of Multiple Myeloma and Communication Experiences (PUMMaCE): Results From a UK Survey"],"prefix":"10.1002","volume":"7","author":[{"given":"Valerie","family":"Jenkins","sequence":"first","affiliation":[{"name":"Sussex Health Outcomes Research &amp; Education in Cancer Brighton &amp; Sussex Medical School University of Sussex  Brighton UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rachel","family":"Hunter","sequence":"additional","affiliation":[{"name":"Sussex Health Outcomes Research &amp; Education in Cancer Brighton &amp; Sussex Medical School University of Sussex  Brighton UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ruth","family":"Habibi","sequence":"additional","affiliation":[{"name":"Sussex Health Outcomes Research &amp; Education in Cancer Brighton &amp; Sussex Medical School University of Sussex  Brighton UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Shirley","family":"May","sequence":"additional","affiliation":[{"name":"Sussex Health Outcomes Research &amp; Education in Cancer Brighton &amp; Sussex Medical School University of Sussex  Brighton UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"John","family":"Jones","sequence":"additional","affiliation":[{"name":"Clinical and Experimental Medicine BSMS Brighton &amp; 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