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Sixteen face\u2010to\u2010face meetings with experts were held in order to discuss daily clinical practice and identify controversies regarding the management of GD. With this information, a questionnaire with 93 recommendations for different clinical scenarios was designed, and a Delphi survey among 86 physicians with experience in GD was conducted. Consensus was reached on 73 out of the 93 items. Recommendations on follow\u2010up of adult and pediatric patients were in line with current guidelines, and underscored the importance of a patient\u2010tailored approach. For the follow\u2010up of stable patients receiving long\u2010term treatment, consensus was reached on the importance of multidisciplinary care that involves pediatricians, internal medicine, and primary care, specialized radiologists, orthopedic surgeons, and hematologists when required. Degree of pain, use of painkillers and antidepressants, and quality of life should be evaluated at every follow\u2010up visit or at least once per year. In general, a closer follow\u2010up was recommended for untreated patients or patients who underwent a treatment change (every 3\u00a0months during the first year) and during pregnancy. For pregnant patients, hemostasis and risk of hemorrhage should be assessed, but no consensus was reached for initiation of treatment in asymptomatic pregnant patients. Lastly, recommendations on how to adapt GD management during a COVID\u201019 pandemic were collected. This expert consensus may help decision\u2010making during the management of GD in specific clinical scenarios.<\/jats:p>","DOI":"10.1002\/jmd2.12342","type":"journal-article","created":{"date-parts":[[2022,11,9]],"date-time":"2022-11-09T06:40:06Z","timestamp":1667976006000},"page":"90-103","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":5,"title":["Recommendations on the follow\u2010up of patients with Gaucher disease in Spain: Results from a Delphi survey"],"prefix":"10.1002","volume":"64","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-8791-1901","authenticated-orcid":false,"given":"Pilar","family":"Giraldo","sequence":"first","affiliation":[{"name":"Hematology Hospital Quironsalud  Zaragoza Spain"},{"name":"Fundaci\u00f3n Espa\u00f1ola para el Estudio y Tratamiento de la Enfermedad de Gaucher (FEETEG)  Zaragoza 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