{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,10]],"date-time":"2026-09-10T03:24:39Z","timestamp":1789010679654,"version":"build-2803163510"},"reference-count":34,"publisher":"Wiley","issue":"6","license":[{"start":{"date-parts":[[2024,8,20]],"date-time":"2024-08-20T00:00:00Z","timestamp":1724112000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["J. pediatr. gastroenterol. nutr."],"published-print":{"date-parts":[[2024,12]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Objectives<\/jats:title>\n                    <jats:p>Little is known about the experience of adolescents and young adults (AYA) with disorders of gut\u2013brain interaction (DGBI) who transition from pediatric to adult gastroenterology care. In this two\u2010part study, we used quantitative and qualitative methods to: (1) assess incidence of optimal versus suboptimal transitions of care for AYA with DGBI, (2) characterize health and quality of life effects of the transition, and (3) identify barriers and facilitators for optimal transition of care.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>\n                      In Part 1, we conducted a retrospective review of AYA referrals to our adult neurogastroenterology clinic who had transitioned from pediatric gastroenterology care (\n                      <jats:italic>N<\/jats:italic>\n                      \u2009=\u2009109, 17\u201323 years, 72% female). We collected demographic, psychosocial, and healthcare utilization data to determine rate and risk factors for suboptimal transitions. In Part 2, we recruited 24 AYA and parents (\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u200919 AYA,\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u20095 parents) for completion of a survey and semistructured interview, which was analyzed using validated rapid qualitative analysis method.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>In Part 1, 20% (22\/109) of AYA met the criteria for suboptimal transition of care, which was associated with treatment adherence concern and functional impairment. In Part 2, we identified two principal themes: (1) AYA's health and quality of life are impacted during the transition, and (2) parental involvement and collaboration with pediatric gastrointestinal are facilitators to successful transitions, whereas access to care and practice style change are barriers.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>AYA with DGBI have high rates of suboptimal care transitions, affecting their health and quality of life. Our study highlights the need for a comprehensive approach that incorporates parents and pediatric providers.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1002\/jpn3.12352","type":"journal-article","created":{"date-parts":[[2024,8,20]],"date-time":"2024-08-20T03:33:04Z","timestamp":1724124784000},"page":"1106-1115","source":"Crossref","is-referenced-by-count":8,"title":["Transitions of care for adolescents with disorders of gut\u2013brain interaction"],"prefix":"10.1002","volume":"79","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-7951-4594","authenticated-orcid":false,"given":"Micaela","family":"Atkins","sequence":"first","affiliation":[{"name":"Center for Neurointestinal Health MassGeneral Hospital Boston Massachusetts USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Daniel","family":"Huynh","sequence":"additional","affiliation":[{"name":"Stony Brook School of Medicine Stony Brook New York USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Elizabeth N.","family":"Madva","sequence":"additional","affiliation":[{"name":"Center for Neurointestinal Health MassGeneral Hospital Boston Massachusetts USA"},{"name":"Harvard Medical School Boston Massachusetts USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Braden","family":"Kuo","sequence":"additional","affiliation":[{"name":"Center for Neurointestinal Health MassGeneral Hospital Boston Massachusetts USA"},{"name":"Harvard Medical School Boston Massachusetts USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Claire","family":"Zar\u2010Kessler","sequence":"additional","affiliation":[{"name":"Center for Neurointestinal Health MassGeneral Hospital Boston Massachusetts USA"},{"name":"Harvard Medical School Boston Massachusetts USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Helen","family":"Burton\u2010Murray","sequence":"additional","affiliation":[{"name":"Center for Neurointestinal Health MassGeneral Hospital Boston Massachusetts USA"},{"name":"Harvard Medical School Boston Massachusetts USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Christopher","family":"V\u00e9lez","sequence":"additional","affiliation":[{"name":"Center for Neurointestinal Health MassGeneral Hospital Boston Massachusetts USA"},{"name":"Harvard Medical School Boston Massachusetts USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2024,8,20]]},"reference":[{"key":"e_1_2_7_2_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2018-2587"},{"key":"e_1_2_7_3_1","unstructured":"Committee on Improving the Health Safety and Well\u2010Being of Young Adults; 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