{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,9]],"date-time":"2026-05-09T08:04:54Z","timestamp":1778313894216,"version":"3.51.4"},"reference-count":50,"publisher":"Wiley","issue":"12","license":[{"start":{"date-parts":[[2025,7,16]],"date-time":"2025-07-16T00:00:00Z","timestamp":1752624000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"},{"start":{"date-parts":[[2025,7,16]],"date-time":"2025-07-16T00:00:00Z","timestamp":1752624000000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"funder":[{"DOI":"10.13039\/501100014072","name":"Amsterdams Universiteitsfonds","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100014072","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["movementdisorders.onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Movement Disord Clin Pract"],"published-print":{"date-parts":[[2025,12]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>People with Parkinson's disease (PD) perceive to receive insufficient disease\u2010specific information after diagnosis, whereas clinicians report providing all relevant information.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objectives<\/jats:title>\n                    <jats:p>The objectives were to examine the information actually provided by clinicians during diagnostic consultations and its relations with background characteristics, information needs, and the perception and evaluation of provided information.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>This prospective observational longitudinal study combined data from questionnaires and recorded diagnostic consultations at 6 neurology outpatient clinics in the Netherlands. Recordings were systematically coded for duration and extensiveness of information regarding diagnosis, treatment, disease course, and information gathering. Patients and companions completed questionnaires assessing preferred and perceived amount of information, and satisfaction with information (all ranges 1 [low] to 5 [high]).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Total consultation time (N\u2009=\u200950 patients and N\u2009=\u200930 companions) was 48.0\u2009\u00b1\u200919.4 (mean\u2009\u00b1\u2009SD) minutes of which 12\u2009\u00b1\u20097\u2009minutes were dedicated to information provision. Most time was spent on the theme \u201ctreatment\u201d (6.9\u2009\u00b1\u20094.3\u2009minutes) and least on \u201cdisease course\u201d (1.4\u2009\u00b1\u20091.7\u2009minutes). Neither duration nor extensiveness of provided information was related to patients' generally high information preference (score 4.4\u2009\u00b1\u20090.7). Patients and their companions perceived a fair amount of information given (score 2.8\u2009\u00b1\u20090.9) and were quite satisfied (score 3.4\u2009\u00b1\u20090.9). Nonetheless, one\u2010third of patients expressed a desire for more information, specifically concerning the course of PD.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>During diagnostic consultations for PD, clinicians primarily focused on treatment\u2010related information. Although patients were generally satisfied, information needs concerning the implications of PD for their future lives were not met for all patients.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1002\/mdc3.70206","type":"journal-article","created":{"date-parts":[[2025,7,17]],"date-time":"2025-07-17T05:00:33Z","timestamp":1752728433000},"page":"2168-2186","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":1,"title":["Observed and Patient\u2010Perceived Information Provision When Diagnosed With Parkinson's Disease"],"prefix":"10.1002","volume":"12","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-5265-555X","authenticated-orcid":false,"given":"Elisabeth","family":"Kurpershoek","sequence":"first","affiliation":[{"name":"Department of Neurology, Amsterdam Neuroscience, Neurodegeneration Amsterdam UMC, Location University of Amsterdam  Amsterdam the Netherlands"},{"name":"Department of Medical Psychology, Amsterdam Public Health, Quality of Care, Personalized Medicine Amsterdam UMC, University of Amsterdam  Amsterdam the Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Marij A.","family":"Hillen","sequence":"additional","affiliation":[{"name":"Department of Medical Psychology, Amsterdam Public Health, Quality of Care, Personalized Medicine Amsterdam UMC, University of Amsterdam  Amsterdam the Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Mark H.B.","family":"Huisman","sequence":"additional","affiliation":[{"name":"Department of Neurology St. Antonius Hospital  Utrecht the Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Machiel","family":"Pleizier","sequence":"additional","affiliation":[{"name":"Department of Neurology Diakonessenhuis  Utrecht the Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Annemarie","family":"Vlaar","sequence":"additional","affiliation":[{"name":"Department of Neurology OLVG  Amsterdam the Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jeroen","family":"Blankevoort","sequence":"additional","affiliation":[{"name":"Department of Neurology Flevo Hospital  Almere the Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Evelien","family":"Zoons","sequence":"additional","affiliation":[{"name":"Department of Neurology Zaans Medisch Centrum  Zaandam the Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7961-1768","authenticated-orcid":false,"given":"Dareia Selina","family":"Roos","sequence":"additional","affiliation":[{"name":"Department of Neurology Amsterdam UMC, Location Vrije Universiteit Amsterdam  Amsterdam the Netherlands"},{"name":"Neurodegeneration Amsterdam Neuroscience  Amsterdam the Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Marianne","family":"de Visser","sequence":"additional","affiliation":[{"name":"Department of Neurology, Amsterdam Neuroscience, Neurodegeneration Amsterdam UMC, Location University of Amsterdam  Amsterdam the Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5267-0784","authenticated-orcid":false,"given":"Rob M.A.","family":"de Bie","sequence":"additional","affiliation":[{"name":"Department of Neurology, Amsterdam Neuroscience, Neurodegeneration Amsterdam UMC, Location University of Amsterdam  Amsterdam the Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Joke M.","family":"Dijk","sequence":"additional","affiliation":[{"name":"Department of Neurology, Amsterdam Neuroscience, Neurodegeneration Amsterdam UMC, Location University of Amsterdam  Amsterdam the Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2025,7,16]]},"reference":[{"key":"e_1_2_10_2_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0268588"},{"key":"e_1_2_10_3_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.gerinurse.2006.10.012"},{"key":"e_1_2_10_4_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2020.03.023"},{"key":"e_1_2_10_5_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(14)61393-3"},{"key":"e_1_2_10_6_1","doi-asserted-by":"publisher","DOI":"10.1111\/ene.14108"},{"key":"e_1_2_10_7_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(21)00218-X"},{"key":"e_1_2_10_8_1","doi-asserted-by":"publisher","DOI":"10.20517\/2347-8659.2020.58"},{"key":"e_1_2_10_9_1","doi-asserted-by":"publisher","DOI":"10.1177\/2374373520918725"},{"key":"e_1_2_10_10_1","doi-asserted-by":"publisher","DOI":"10.3233\/JPD-202126"},{"key":"e_1_2_10_11_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12883-021-02062-6"},{"key":"e_1_2_10_12_1","doi-asserted-by":"publisher","DOI":"10.1001\/jama.288.6.756"},{"key":"e_1_2_10_13_1","doi-asserted-by":"publisher","DOI":"10.1177\/1355819613486465"},{"key":"e_1_2_10_14_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2023.108092"},{"key":"e_1_2_10_15_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(03)15392-5"},{"key":"e_1_2_10_16_1","doi-asserted-by":"publisher","DOI":"10.1093\/annonc\/mdq413"},{"key":"e_1_2_10_17_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2019.09.024"},{"key":"e_1_2_10_18_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00415-018-8817-8"},{"key":"e_1_2_10_19_1","doi-asserted-by":"publisher","DOI":"10.1002\/mds.23160"},{"key":"e_1_2_10_20_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.parkreldis.2007.11.011"},{"key":"e_1_2_10_21_1","doi-asserted-by":"publisher","DOI":"10.3233\/JPD-240073"},{"key":"e_1_2_10_22_1","first-page":"1","article-title":"Guidelines for reporting research using systematic coding of observed human behaviour (SCOBe)","volume":"59","author":"Hillen MA","year":"2024","journal-title":"Qual Quant"},{"key":"e_1_2_10_23_1","doi-asserted-by":"publisher","DOI":"10.1002\/mds.26424"},{"key":"e_1_2_10_24_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijrobp.2010.09.032"},{"key":"e_1_2_10_25_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ejca.2010.06.118"},{"key":"e_1_2_10_26_1","doi-asserted-by":"publisher","DOI":"10.3758\/BF03203406"},{"key":"e_1_2_10_27_1","doi-asserted-by":"publisher","DOI":"10.3390\/brainsci10090588"},{"key":"e_1_2_10_28_1","doi-asserted-by":"publisher","DOI":"10.3233\/JPD-240073"},{"key":"e_1_2_10_29_1","doi-asserted-by":"publisher","DOI":"10.1258\/jrsm.96.5.219"},{"key":"e_1_2_10_30_1","doi-asserted-by":"publisher","DOI":"10.1002\/pon.1290"},{"key":"e_1_2_10_31_1","doi-asserted-by":"publisher","DOI":"10.1080\/0284186X.2018.1512156"},{"key":"e_1_2_10_32_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0191940"},{"key":"e_1_2_10_33_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.neubiorev.2009.11.015"},{"key":"e_1_2_10_34_1","doi-asserted-by":"publisher","DOI":"10.1155\/2013\/974964"},{"key":"e_1_2_10_35_1","doi-asserted-by":"publisher","DOI":"10.1002\/1097-0142(19900101)65:1<186::AID-CNCR2820650136>3.0.CO;2-4"},{"key":"e_1_2_10_36_1","doi-asserted-by":"publisher","DOI":"10.3122\/jabfm.2014.02.130137"},{"key":"e_1_2_10_37_1","doi-asserted-by":"publisher","DOI":"10.3389\/fcomm.2021.736095"},{"key":"e_1_2_10_38_1","doi-asserted-by":"publisher","DOI":"10.1111\/ene.12889"},{"key":"e_1_2_10_39_1","doi-asserted-by":"crossref","DOI":"10.1177\/2333393616664823","article-title":"Trust, health care relationships, and chronic illness: a theoretical coalescence","volume":"3","author":"Robinson CA","year":"2016","journal-title":"Glob Qual Nurs Res"},{"key":"e_1_2_10_40_1","doi-asserted-by":"publisher","DOI":"10.2307\/2094540"},{"key":"e_1_2_10_41_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2021.01.019"},{"key":"e_1_2_10_42_1","doi-asserted-by":"publisher","DOI":"10.1001\/jamanetworkopen.2022.42972"},{"key":"e_1_2_10_43_1","doi-asserted-by":"publisher","DOI":"10.1542\/hpeds.2023-007282"},{"key":"e_1_2_10_44_1","doi-asserted-by":"publisher","DOI":"10.1080\/10410236.2019.1669270"},{"key":"e_1_2_10_45_1","doi-asserted-by":"publisher","DOI":"10.1136\/spcare-2022-003904"},{"key":"e_1_2_10_46_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2013.01.020"},{"key":"e_1_2_10_47_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11135-024-01969-9"},{"issue":"1","key":"e_1_2_10_48_1","first-page":"418","article-title":"The information needs of new radiotherapy patients: how to measure? Do they want to know everything? And if not, why? International journal of radiation oncology* biology*","volume":"82","author":"Zeguers M","year":"2012","journal-title":"Physics"},{"issue":"1","key":"e_1_2_10_49_1","article-title":"What patients want to know, and what we actually tell them: the ABIDE project","volume":"6","author":"Fruijtier AD","year":"2020","journal-title":"Alzheimers Dement"},{"issue":"1","key":"e_1_2_10_50_1","first-page":"520","article-title":"Clinician\u2010patient communication during the diagnostic workup: the ABIDE project","volume":"11","author":"Visser LN","year":"2019","journal-title":"Alzheimers Dement"},{"key":"e_1_2_10_51_1","doi-asserted-by":"publisher","DOI":"10.11613\/BM.2012.031"}],"container-title":["Movement Disorders Clinical Practice"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/movementdisorders.onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/mdc3.70206","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/movementdisorders.onlinelibrary.wiley.com\/doi\/full-xml\/10.1002\/mdc3.70206","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/movementdisorders.onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/mdc3.70206","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,3,9]],"date-time":"2026-03-09T04:20:58Z","timestamp":1773030058000},"score":1,"resource":{"primary":{"URL":"https:\/\/movementdisorders.onlinelibrary.wiley.com\/doi\/10.1002\/mdc3.70206"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,7,16]]},"references-count":50,"journal-issue":{"issue":"12","published-print":{"date-parts":[[2025,12]]}},"alternative-id":["10.1002\/mdc3.70206"],"URL":"https:\/\/doi.org\/10.1002\/mdc3.70206","archive":["Portico"],"relation":{},"ISSN":["2330-1619","2330-1619"],"issn-type":[{"value":"2330-1619","type":"print"},{"value":"2330-1619","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025,7,16]]},"assertion":[{"value":"2025-02-18","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2025-06-10","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2025-07-16","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}