{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,13]],"date-time":"2026-04-13T07:01:28Z","timestamp":1776063688167,"version":"3.50.1"},"reference-count":18,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2025,12,12]],"date-time":"2025-12-12T00:00:00Z","timestamp":1765497600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"},{"start":{"date-parts":[[2025,12,12]],"date-time":"2025-12-12T00:00:00Z","timestamp":1765497600000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"funder":[{"DOI":"10.13039\/100008440","name":"International Parkinson and Movement Disorder Society","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100008440","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["movementdisorders.onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Movement Disord Clin Pract"],"published-print":{"date-parts":[[2026,4]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>There is a need to better evaluate Parkinson's disease (PD) impact on daily lives of People with Parkinson's (PwP).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objectives<\/jats:title>\n                    <jats:p>To conceptualize a novel digital tool, the MDS PD e\u2010Diary that has been commissioned by the International Parkinson's disease and Movement Disorders Society.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Using a modified Delphi methodology, we sought consensus among key stakeholders (PwP, care partners, PD specialists, industry, regulatory representatives) through online questionnaires, focus groups, and a broad community survey.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>The consensus resulted in a multiplatform patient\u2010reported outcome tool to track PD progression. It includes an Item Bank of symptoms and activities featuring two interconnected user modes. The personal mode is a customizable self\u2010tracking tool that allows data sharing with professionals to improve standard care. The research mode employs a predefined responsive item to enhance research and clinical trials.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>The MDS PD e\u2010Diary was designed to capture PD progression and its impact on PwP lives, potentially transforming research and clinical practice. Its further development and validation processes are underway.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1002\/mdc3.70305","type":"journal-article","created":{"date-parts":[[2025,12,13]],"date-time":"2025-12-13T05:37:58Z","timestamp":1765604278000},"page":"1020-1025","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["<scp>MDS PD<\/scp>\n                    e\u2010Diary: A New Patient\u2010Centered Digital Tool in Development for People with Parkinson's Disease"],"prefix":"10.1002","volume":"13","author":[{"given":"Pablo","family":"R\u00e1bano\u2010Su\u00e1rez","sequence":"first","affiliation":[{"name":"Department of Neurology Hospital Universitario 12 de Octubre  Madrid Spain"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0730-4061","authenticated-orcid":false,"given":"Mariana H.G.","family":"Monje","sequence":"additional","affiliation":[{"name":"Ken and Ruth Davee Department of Neurology Northwestern University, Feinberg School of Medicine  Chicago IL USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0306-4774","authenticated-orcid":false,"given":"Joaqu\u00edn A.","family":"Vizcarra","sequence":"additional","affiliation":[{"name":"Department of Neurology University of Pennsylvania, Perelman School of Medicine  Philadelphia PA USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Serene S.","family":"Paul","sequence":"additional","affiliation":[{"name":"Sydney School of Health Sciences, Faculty of Medicine and Health The University of Sydney  Sydney NSW Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Sabela","family":"Avi\u00f3n","sequence":"additional","affiliation":[{"name":"Davis Phinney Foundation Ambassador  Louisville USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Michael","family":"Morse","sequence":"additional","affiliation":[{"name":"Portfolio Manager Scotia Wealth Management\u00ae|ScotiaMcLeod\u00ae, A Division of Scotia Capital Inc. The Morse Group  Toronto ON Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5497-8715","authenticated-orcid":false,"given":"Matej","family":"Skorvanek","sequence":"additional","affiliation":[{"name":"Department of Neurology, Faculty of Medicine Pavol Jozef \u0160af\u00e1rik University  Ko\u0161ice Slovakia"},{"name":"Department of Neurology University Hospital of Louis Pasteur  Ko\u0161ice Slovakia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Michelle H.S.","family":"Tosin","sequence":"additional","affiliation":[{"name":"Department of Neurological Sciences Rush University Medical Center  Chicago IL USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6545-7376","authenticated-orcid":false,"given":"Rebecca L.M.","family":"Fuller","sequence":"additional","affiliation":[{"name":"Clinical Department CHDI Management\/CHDI Foundation  Princeton NJ USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Travis H.","family":"Turner","sequence":"additional","affiliation":[{"name":"Department of Neurology Medical University of South Carolina  Charleston SC USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Marieke C.J.","family":"Dekker","sequence":"additional","affiliation":[{"name":"Kilimanjaro Christian Medical Centre  Moshi Tanzania"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Deborah A.","family":"Hall","sequence":"additional","affiliation":[{"name":"Department of Neurological Sciences Rush University Medical Center  Chicago IL USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ken","family":"Bergmann","sequence":"additional","affiliation":[{"name":"Senior Medical Officer (Ret.), Division of Neurology 1, Office of Neuroscience U.S. Food and Drug Administration  Silver Spring MD USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5146-8784","authenticated-orcid":false,"given":"Jesse M.","family":"Cedarbaum","sequence":"additional","affiliation":[{"name":"Division of Movement Disorders Department of Neurology Yale School of Medicine  New Haven CT USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Walter","family":"Maetzler","sequence":"additional","affiliation":[{"name":"Department of Neurology University Medical Centre Schleswig\u2010Holstein and Kiel University  Kiel Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Alberto J.","family":"Espay","sequence":"additional","affiliation":[{"name":"James J. and Joan A. Gardner Family Center for Parkinson's Disease and Movement Disorders, Department of Neurology University of Cincinnati  Cincinnati OH USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Pablo","family":"Mart\u00ednez\u2010Mart\u00edn","sequence":"additional","affiliation":[{"name":"Center for Networked Biomedical Research in Neurodegenerative Diseases (CIBERNED)  Carlos III Institute of Health Madrid Spain"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Glenn T.","family":"Stebbins","sequence":"additional","affiliation":[{"name":"Department of Neurological Sciences Rush University Medical Center  Chicago IL USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6973-7479","authenticated-orcid":false,"given":"Tiago A.","family":"Mestre","sequence":"additional","affiliation":[{"name":"Ottawa Hospital Research Institute University of Ottawa Brain and Mind Research Institute  Ottawa ON Canada"},{"name":"Division 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