{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,18]],"date-time":"2026-09-18T04:05:25Z","timestamp":1789704325208,"version":"4.0.1"},"reference-count":12,"publisher":"Wiley","issue":"6","license":[{"start":{"date-parts":[[2026,1,10]],"date-time":"2026-01-10T00:00:00Z","timestamp":1768003200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"},{"start":{"date-parts":[[2026,1,10]],"date-time":"2026-01-10T00:00:00Z","timestamp":1768003200000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"funder":[{"DOI":"10.13039\/100000864","name":"Michael J. Fox Foundation for Parkinson's Research","doi-asserted-by":"publisher","award":["MJFF\u2010023274"],"award-info":[{"award-number":["MJFF\u2010023274"]}],"id":[{"id":"10.13039\/100000864","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["movementdisorders.onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Movement Disord Clin Pract"],"published-print":{"date-parts":[[2026,6]]},"abstract":"Abstract<\/jats:title>\n \n Background<\/jats:title>\n \n Little is known about how people with Parkinson's conceptualize \u201c\n quality of life<\/jats:italic>\n .\u201d\n <\/jats:p>\n <\/jats:sec>\n \n Objective<\/jats:title>\n \n To describe the meaning of \u201c\n quality of life<\/jats:italic>\n \u201d from the perspective of people with Parkinson's.\n <\/jats:p>\n <\/jats:sec>\n \n Methods<\/jats:title>\n \n Participants (\n N<\/jats:italic>\n \u2009=\u200942) were asked \u201cWhat does the term \u2018quality of life\u2019 mean to you?\u201d Definitions were analyzed using inductive qualitative methods.\n <\/jats:p>\n <\/jats:sec>\n \n Results<\/jats:title>\n Quality of life is captured in a framework illustrating how activities, experiences, and coping strategies generate positive feelings that collectively shape the mental state that defines quality of life.<\/jats:p>\n <\/jats:sec>\n \n Conclusions<\/jats:title>\n \n People with Parkinson's typically define what constitutes a\n good<\/jats:italic>\n quality of life, with health status acting as an enabler (or barrier). Multiple factors, varying across individuals and potentially changing with circumstances, shape how people view their quality of life, and offer potential avenues for sustaining it. These personal, subjective and adaptive conceptualizations of quality of life should inform the design of interventions and measurement instruments.\n <\/jats:p>\n <\/jats:sec>","DOI":"10.1002\/mdc3.70517","type":"journal-article","created":{"date-parts":[[2026,1,10]],"date-time":"2026-01-10T17:30:53Z","timestamp":1768066253000},"page":"1446-1451","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":1,"title":["Defining Quality of Life: The Perspective of People Living with Parkinson's Disease"],"prefix":"10.1002","volume":"13","author":[{"ORCID":"https:\/\/orcid.org\/0009-0002-2488-0244","authenticated-orcid":false,"given":"Samantha","family":"Dorrance","sequence":"first","affiliation":[{"name":"Edmond J. Safra Program in Parkinson's Disease and Morton and Gloria Shulman Movement Disorders Clinic University Health Network Toronto Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0004-6180-7892","authenticated-orcid":false,"given":"Richa","family":"Patel","sequence":"additional","affiliation":[{"name":"Edmond J. Safra Program in Parkinson's Disease and Morton and Gloria Shulman Movement Disorders Clinic University Health Network Toronto Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7905-9336","authenticated-orcid":false,"given":"Glenn T.","family":"Stebbins","sequence":"additional","affiliation":[{"name":"Department of Neurological Sciences Rush University Medical Center Chicago Illinois USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1170-6688","authenticated-orcid":false,"given":"Jamie L.","family":"Adams","sequence":"additional","affiliation":[{"name":"Department of Neurology University of Rochester Rochester New York USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2039-6773","authenticated-orcid":false,"given":"Allison M.","family":"Allen","sequence":"additional","affiliation":[{"name":"Duke University Medical Center Durham North Carolina USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tara","family":"Hastings","sequence":"additional","affiliation":[{"name":"Sanofi Bridgewater New Jersey USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6224-7573","authenticated-orcid":false,"given":"Soania","family":"Mathur","sequence":"additional","affiliation":[{"name":"Parkinson's Research Advocate Toronto Ontario Canada"},{"name":"UnshakeableMD Toronto Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0060-9935","authenticated-orcid":false,"given":"Onanong","family":"Phokaewvarangkul","sequence":"additional","affiliation":[{"name":"Chulalongkorn Centre of Excellence for Parkinson's Disease & Related Disorders, Department of Medicine Faculty of Medicine, Chulalongkorn University and King Chulalongkorn Memorial Hospital, Thai Red Cross Society Bangkok Thailand"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2625-2025","authenticated-orcid":false,"given":"Gary","family":"Rafaloff","sequence":"additional","affiliation":[{"name":"Parkinson's Research Advocate Westlake Florida USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2564-7375","authenticated-orcid":false,"given":"Rajasumi","family":"Rajalingam","sequence":"additional","affiliation":[{"name":"Edmond J. Safra Program in Parkinson's Disease and Morton and Gloria Shulman Movement Disorders Clinic University Health Network Toronto Ontario Canada"},{"name":"Department of Psychiatry Western Michigan University Homer Stryker M.D. School of Medicine Kalamazoo Michigan USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9872-6680","authenticated-orcid":false,"given":"Anette","family":"Schrag","sequence":"additional","affiliation":[{"name":"Department of Clinical and Movement Neurosciences UCL Institute of Neurology, University College London London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Christine","family":"Sun","sequence":"additional","affiliation":[{"name":"Edmond J. Safra Program in Parkinson's Disease and Morton and Gloria Shulman Movement Disorders Clinic University Health Network Toronto Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7858-9183","authenticated-orcid":false,"given":"Jennifer","family":"Mammen","sequence":"additional","affiliation":[{"name":"University of Massachusetts Dartmouth Massachusetts USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9236-9328","authenticated-orcid":false,"given":"Connie","family":"Marras","sequence":"additional","affiliation":[{"name":"Edmond J. Safra Program in Parkinson's Disease and Morton and Gloria Shulman Movement Disorders Clinic University Health Network Toronto Ontario Canada"},{"name":"University of Toronto Toronto Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,1,10]]},"reference":[{"key":"e_1_2_10_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/0277-9536(95)00112-K"},{"key":"e_1_2_10_3_1","doi-asserted-by":"publisher","DOI":"10.2190\/BF8G-5J8L-YTRF-6404"},{"key":"e_1_2_10_4_1","doi-asserted-by":"publisher","DOI":"10.1097\/00004356-199703000-00006"},{"key":"e_1_2_10_5_1","doi-asserted-by":"publisher","DOI":"10.1038\/s41531-024-00789-w"},{"key":"e_1_2_10_6_1","doi-asserted-by":"publisher","DOI":"10.1002\/mdc3.14063"},{"key":"e_1_2_10_7_1","first-page":"OC35","article-title":"What should constitute a health related quality of life scale for Parkinson's disease?","volume":"10","author":"Aggarwal R","year":"2016","journal-title":"J Clin Diagn Res"},{"key":"e_1_2_10_8_1","doi-asserted-by":"publisher","DOI":"10.1111\/jgs.12198"},{"key":"e_1_2_10_9_1","doi-asserted-by":"publisher","DOI":"10.1100\/tsw.2003.82"},{"key":"e_1_2_10_10_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11482-013-9280-4"},{"key":"e_1_2_10_11_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.hrtlng.2008.04.002"},{"key":"e_1_2_10_12_1","doi-asserted-by":"publisher","DOI":"10.3233\/JPD-201999"},{"key":"e_1_2_10_13_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0111420"}],"container-title":["Movement Disorders Clinical Practice"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/movementdisorders.onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/mdc3.70517","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/movementdisorders.onlinelibrary.wiley.com\/doi\/full-xml\/10.1002\/mdc3.70517","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/movementdisorders.onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/mdc3.70517","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,9,18]],"date-time":"2026-09-18T03:25:04Z","timestamp":1789701904000},"score":1,"resource":{"primary":{"URL":"https:\/\/movementdisorders.onlinelibrary.wiley.com\/doi\/10.1002\/mdc3.70517"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,1,10]]},"references-count":12,"journal-issue":{"issue":"6","published-print":{"date-parts":[[2026,6]]}},"alternative-id":["10.1002\/mdc3.70517"],"URL":"https:\/\/doi.org\/10.1002\/mdc3.70517","archive":["Portico"],"relation":{},"ISSN":["2330-1619","2330-1619"],"issn-type":[{"value":"2330-1619","type":"print"},{"value":"2330-1619","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,1,10]]},"assertion":[{"value":"2025-09-03","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2025-12-29","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-01-10","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}