{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,25]],"date-time":"2026-04-25T08:37:20Z","timestamp":1777106240919,"version":"3.51.4"},"reference-count":29,"publisher":"Wiley","license":[{"start":{"date-parts":[[2026,4,25]],"date-time":"2026-04-25T00:00:00Z","timestamp":1777075200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"},{"start":{"date-parts":[[2026,4,25]],"date-time":"2026-04-25T00:00:00Z","timestamp":1777075200000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"funder":[{"DOI":"10.13039\/100006093","name":"Patient-Centered Outcomes Research Institute","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100006093","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["movementdisorders.onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Movement Disord Clin Pract"],"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Healthcare utilization among individuals with Parkinson's disease and related disorders (PDRD) with significant palliative care (PC) needs is not well characterized.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objectives<\/jats:title>\n                    <jats:p>To describe healthcare utilization in a well\u2010defined cohort of PDRD patients with moderate\u2010to\u2010high PC needs.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>We conducted a secondary analysis of a multi\u2010site randomized trial of outpatient PC. Participants reported healthcare utilization every six weeks over 12\u2009months. Outcomes included emergency department (ED) visits, overnight hospitalizations, in\u2010home medical services, and psychosocial or spiritual support.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Among 210 patients (mean age 70.1\u2009years; 64% male), the annualized ED visit rate was 1.16 per person\u2010year (95% CI 0.94\u20131.42) and the hospitalization rate was 0.48 per person\u2010year (95% CI 0.33\u20130.69). Among 136 participants with complete follow\u2010up, 43.4% had \u22651 ED visit and 21.3% had \u22651 hospitalization. Home\u2010based services were used by 38.1%.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Utilization rates exceeded those reported in broader PD populations but were lower than in dementia. Persistent home\u2010based care needs highlight ongoing supportive care demands.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1002\/mdc3.70639","type":"journal-article","created":{"date-parts":[[2026,4,25]],"date-time":"2026-04-25T07:50:59Z","timestamp":1777103459000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Healthcare Utilization Patterns of Persons Living with Parkinson's Disease and Related Disorders with Moderate to High Palliative Care Needs"],"prefix":"10.1002","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-7391-7421","authenticated-orcid":false,"given":"Sana","family":"Aslam","sequence":"first","affiliation":[{"name":"Department of Neurology University of Colorado School of Medicine  Aurora CO USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Roman","family":"Ayele","sequence":"additional","affiliation":[{"name":"VA Eastern Colorado Healthcare System  Aurora CO USA"},{"name":"University of Colorado Anschutz Medical Campus  Aurora CO USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Michelle","family":"Fullard","sequence":"additional","affiliation":[{"name":"Department of Neurology University of Colorado School of Medicine  Aurora CO USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Stefan","family":"Sillau","sequence":"additional","affiliation":[{"name":"Department of Neurology University of Colorado School of Medicine  Aurora CO USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"R. Brett","family":"McQueen","sequence":"additional","affiliation":[{"name":"Skaggs School of Pharmacy and Pharmaceutical Sciences University of Colorado Anschutz Medical Campus  Aurora CO USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Janis M.","family":"Miyasaki","sequence":"additional","affiliation":[{"name":"Division of Neurology, Department of Medicine University of Alberta  Edmonton AL Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Maya","family":"Katz","sequence":"additional","affiliation":[{"name":"Department of Neurology Stanford University  Stanford CA USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Benzi","family":"Kluger","sequence":"additional","affiliation":[{"name":"Department of Neurology and Medicine University of Rochester Medical Center  Rochester NY USA"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2026,4,25]]},"reference":[{"key":"e_1_2_9_2_1","doi-asserted-by":"crossref","first-page":"S3","DOI":"10.3233\/JPD-181474","article-title":"The emerging evidence of the Parkinson pandemic","volume":"8","author":"Dorsey ER","year":"2018","journal-title":"J Parkinsons Dis"},{"key":"e_1_2_9_3_1","doi-asserted-by":"crossref","first-page":"21","DOI":"10.1038\/s41531-018-0058-0","article-title":"Prevalence of Parkinson's disease across North America","volume":"4","author":"Marras C","year":"2018","journal-title":"NPJ Parkinsons Dis"},{"key":"e_1_2_9_4_1","doi-asserted-by":"crossref","first-page":"435","DOI":"10.1038\/nrneurol.2012.126","article-title":"Late\u2010stage Parkinson disease","volume":"8","author":"Coelho M","year":"2012","journal-title":"Nat Rev Neurol"},{"key":"e_1_2_9_5_1","doi-asserted-by":"crossref","first-page":"477","DOI":"10.2165\/00023210-200620060-00004","article-title":"Cognitive deficits and psychosis in Parkinson's disease: a review of pathophysiology and therapeutic options","volume":"20","author":"Williams\u2010Gray CH","year":"2006","journal-title":"CNS Drugs"},{"key":"e_1_2_9_6_1","doi-asserted-by":"crossref","DOI":"10.1177\/09727531251321234","article-title":"Clinical Spectrum of non\u2010motor symptoms in correlation with quality of life in Parkinson's disease and atypical parkinsonism: evidence in reaching consensus","author":"Tapdia M","year":"2025","journal-title":"Ann Neurosci"},{"key":"e_1_2_9_7_1","doi-asserted-by":"crossref","first-page":"957","DOI":"10.3233\/JPD-212982","article-title":"Longitudinal healthcare utilization and costs in Parkinson's disease: pre\u2010diagnosis to 9\u2009years after","volume":"12","author":"Soh EML","year":"2022","journal-title":"J Parkinsons Dis"},{"key":"e_1_2_9_8_1","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1038\/s41531-019-0074-8","article-title":"State\u2010level prevalence, health service use, and spending vary widely among Medicare beneficiaries with Parkinson disease","volume":"5","author":"Mantri S","year":"2019","journal-title":"NPJ Parkinsons Dis"},{"key":"e_1_2_9_9_1","doi-asserted-by":"crossref","first-page":"S24","DOI":"10.21037\/apm.2019.10.01","article-title":"Patient and caregiver characteristics associated with caregiver burden in Parkinson's disease: a palliative care approach","volume":"9","author":"Macchi ZA","year":"2020","journal-title":"Ann Palliat Med"},{"key":"e_1_2_9_10_1","doi-asserted-by":"crossref","first-page":"240","DOI":"10.1177\/02692163231219923","article-title":"Does a novel community\u2010based outpatient palliative care intervention for Parkinson's disease and related disorders improve care? 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