{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,15]],"date-time":"2026-06-15T01:40:48Z","timestamp":1781487648077,"version":"3.54.1"},"reference-count":22,"publisher":"Wiley","issue":"8","license":[{"start":{"date-parts":[[2020,6,19]],"date-time":"2020-06-19T00:00:00Z","timestamp":1592524800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["movementdisorders.onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Movement Disorders"],"published-print":{"date-parts":[[2020,8]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>Clinical disease registries are useful for quality improvement in care, benchmarking standards, and facilitating research. Collaborative networks established thence can enhance national and international studies by generating more robust samples and credible data and promote knowledge sharing and capacity building. This report describes the methodology, baseline data, and prospects of the Nigeria Parkinson Disease Registry.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>This national registry was established in November 2016. Ethics approval was obtained for all sites. Basic anonymized data for consecutive cases fulfilling the United Kingdom Parkinson's Disease Brain Bank criteria (except the exclusion criterion of affected family members) are registered by participating neurologists via a secure registry website (<jats:ext-link xmlns:xlink=\"http:\/\/www.w3.org\/1999\/xlink\" xlink:href=\"http:\/\/www.parkinsonnigeria.com\">www.parkinsonnigeria.com<\/jats:ext-link>) using a minimal common data capture format.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>The registry had captured 578 participants from 5 of 6 geopolitical zones in Nigeria by July 2019 (72.5% men). Mean age at onset was 60.3\u2009\u00b1\u200910.7\u2009years; median disease duration (interquartile range) was 36 months (18\u201360.5 months). Young\u2010onset disease (&lt;50\u2009years) represented 15.2%. A family history was documented in 4.5% and 7.8% with age at onset &lt;50 and\u2009\u2265\u200950, respectively. The most frequent initial symptom was tremor (45.3%). At inclusion, 93.4% were on treatment (54.5% on levodopa monotherapy). Per\u2010capita direct cost for the registry was $3.37.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>This is the first published national Parkinson's disease registry in sub\u2010Saharan Africa. The registry will serve as a platform for development of multipronged evidence\u2010based policies and initiatives to improve quality of care of Parkinson's disease and research engagement in Nigeria. \u00a9 2020 International Parkinson and Movement Disorder Society<\/jats:p><\/jats:sec>","DOI":"10.1002\/mds.28123","type":"journal-article","created":{"date-parts":[[2020,6,19]],"date-time":"2020-06-19T04:26:51Z","timestamp":1592540811000},"page":"1315-1322","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":22,"title":["The Nigeria Parkinson Disease Registry: Process, Profile, and Prospects of a Collaborative Project"],"prefix":"10.1002","volume":"35","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-6461-2653","authenticated-orcid":false,"given":"Oluwadamilola O.","family":"Ojo","sequence":"first","affiliation":[{"name":"Neurology Unit, Department of Medicine, Faculty of Clinical Sciences, College of Medicine University of Lagos  Idi\u2010Araba Lagos State Nigeria"},{"name":"Neurology Unit, Department of Medicine Lagos University Teaching Hospital  Idi\u2010Araba Lagos Nigeria"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sani A.","family":"Abubakar","sequence":"additional","affiliation":[{"name":"Department of Medicine Ahmadu Bello University\/ Ahmadu Bello University Teaching Hospital  Zaria Kaduna State Nigeria"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Emmanuel U.","family":"Iwuozo","sequence":"additional","affiliation":[{"name":"Neurology Unit Benue State University\/Benue State University Teaching Hospital  Makurdi Benue State Nigeria"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ernest O.","family":"Nwazor","sequence":"additional","affiliation":[{"name":"Department of Medicine, Federal Medical Center, Owerri, Imo State, Nigeria\/ College of Medical Sciences Madonna University  Elele Rivers State 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of Calabar\/University of Calabar Teaching Hospital  Calabar Cross Rivers State Nigeria"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Abiodun H.","family":"Bello","sequence":"additional","affiliation":[{"name":"University of Ilorin Teaching Hospital  Ilorin Kwara State Nigeria"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kolawole W.","family":"Wahab","sequence":"additional","affiliation":[{"name":"Department of Medicine University of Ilorin  Ilorin Kwara State Nigeria"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Alagoma M.","family":"Iyagba","sequence":"additional","affiliation":[{"name":"University of Port Harcourt and University of Port Harcourt Teaching Hospital  Port Harcourt Rivers State Nigeria"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ohwotemu","family":"Arigbodi","sequence":"additional","affiliation":[{"name":"Department of Internal Medicine Delta State University Teaching Hospital  Oghara Delta 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Capital Territory  Abuja Nigeria"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Yahaya O.","family":"Obiabo","sequence":"additional","affiliation":[{"name":"Department of Internal Medicine Delta State University\/ Delta State University Teaching Hospital  Oghara Delta State Nigeria"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Funlola T.","family":"Taiwo","sequence":"additional","affiliation":[{"name":"Babcock University  Ilishan\u2010Remo Ogun State Nigeria"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Christian E.","family":"Agu","sequence":"additional","affiliation":[{"name":"Alex Ekwueme Federal Teaching Hospital  Abakaliki Ebonyi State Nigeria"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Bertha C.","family":"Ekeh","sequence":"additional","affiliation":[{"name":"University of Uyo Teaching Hospital\/ Ibom Specialist Hospital  Uyo Akwa Ibom State 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