{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,22]],"date-time":"2026-07-22T14:06:40Z","timestamp":1784729200101,"version":"3.55.0"},"reference-count":42,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2021,8,25]],"date-time":"2021-08-25T00:00:00Z","timestamp":1629849600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["movementdisorders.onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Movement Disorders"],"published-print":{"date-parts":[[2022,1]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>Neuropalliative care is an emerging field for those with neurodegenerative illnesses, but access to neuropalliative care remains limited.<\/jats:p><\/jats:sec><jats:sec><jats:title>Objective<\/jats:title><jats:p>We sought to determine Movement Disorder Society (MDS) members' attitudes and access to palliative care.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>A quantitative and qualitative survey instrument was developed by the MDS Palliative Care Task Force and e\u2010mailed to all members for completion. Descriptive statistics and qualitative analysis were triangulated.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Of 6442 members contacted, 652 completed the survey. Completed surveys indicating country of the respondent overwhelmingly represented middle\u2010 and high\u2010income countries. Government\u2010funded homecare was available to 54% of respondents based on patient need, 25% limited access, and 21% during hospitalization or an acute defined event. Eighty\u2010nine percent worked in multidisciplinary teams. The majority endorsed trigger\u2010based referrals to palliative care (75.5%), while 24.5% indicated any time after diagnosis was appropriate. Although 66% referred patients to palliative care, 34% did not refer patients. Barriers were identified by 68% of respondents, the most significant being available workforce, financial support for palliative care, and perceived knowledge of palliative care physicians specific to movement disorders. Of 499 respondents indicating their training in palliative care or desire to learn these skills, 55% indicated a desire to gain more skills.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>The majority of MDS member respondents endorsed a role for palliative care in movement disorders. Many members have palliative training or collaborate with palliative care physicians. Although significant barriers exist to access palliative care, the desire to gain more skills and education on palliative care is an opportunity for professional development within the MDS. \u00a9 2021 International Parkinson and Movement Disorder Society<\/jats:p><\/jats:sec>","DOI":"10.1002\/mds.28773","type":"journal-article","created":{"date-parts":[[2021,8,25]],"date-time":"2021-08-25T07:59:54Z","timestamp":1629878394000},"page":"182-189","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":34,"title":["Access and Attitudes Toward Palliative Care Among Movement Disorders Clinicians"],"prefix":"10.1002","volume":"37","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-6372-6007","authenticated-orcid":false,"given":"Janis M.","family":"Miyasaki","sequence":"first","affiliation":[{"name":"Parkinson and Movement Disorders Program, Department of Medicine, Division of Neurology University of Alberta  Edmonton Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Shen\u2010Yang","family":"Lim","sequence":"additional","affiliation":[{"name":"Division of Neurology, Department of Medicine, and the Mah Pooi Soo &amp; Tan Chin Nam Centre for Parkinson's &amp; Related Disorders, Faculty of Medicine University of Malaya  Kuala Lumpur Malaysia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"K. Ray","family":"Chaudhuri","sequence":"additional","affiliation":[{"name":"Parkinson Foundation International Centre of Excellence Kings College Hospital and Kings College, Denmark Hill Campus  London United Kingdom"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1040-2807","authenticated-orcid":false,"given":"Angelo","family":"Antonini","sequence":"additional","affiliation":[{"name":"Movement Disorders Unit\u2013Center for Rare Neurological Diseases, Department of Neuroscience University of Padua  Padua Italy"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Maria","family":"Piemonte","sequence":"additional","affiliation":[{"name":"Physical Therapy, Speech Therapy, and Occupational Therapy Department, Medical School University of Sao Paulo  Sao Paulo Brazil"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Edward","family":"Richfield","sequence":"additional","affiliation":[{"name":"North Bristol NHS Trust  Bristol United Kingdom"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Daniela","family":"Alburquerque Gonzalez","sequence":"additional","affiliation":[{"name":"Centro de Trastornos del Movimiento, Facultad de Ciencias M\u00e9dicas Universidad de Santiago de Chile  Santiago Chile"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Stefan","family":"Lorenzl","sequence":"additional","affiliation":[{"name":"Institute of Nursing Science and Practice Paracelsus Medical University  Salzburg Austria"},{"name":"Ludwig\u2010Maximillians\u2010University  Munich Germany"},{"name":"Department of Neurology Kliniku Agatharied  Hausham Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Richard","family":"Walker","sequence":"additional","affiliation":[{"name":"Northumbria Healthcare NHS Foundation Trust  Newcastle Upon Tyne United Kingdom"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6901-2064","authenticated-orcid":false,"given":"Roongroj","family":"Bhidayasiri","sequence":"additional","affiliation":[{"name":"Chulalongkorn Centre of Excellence for Parkinson's Disease and Related Disorders, Department of Medicine, Faculty of Medicine Chulalongkorn University and King Chulalongkorn Memorial Hospital, Thai Red Cross Society  Bangkok Thailand"},{"name":"The Academy of Science The Royal Society of Thailand  Bangkok Thailand"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Raquel","family":"Bouca","sequence":"additional","affiliation":[{"name":"Instituto de Medicina Molecular Joao Lobo Antunes  Lisbon Portugal"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Victor","family":"McConvey","sequence":"additional","affiliation":[{"name":"Parkinson Victoria  Surrey Hills Victoria Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"name":"the Task Force on Palliative Care of the International Parkinson and Movement Disorder Society","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2021,8,25]]},"reference":[{"key":"e_1_2_10_2_1","first-page":"805","article-title":"Palliative care for Parkinson's disease: a summary of the evidence and future directions","volume":"27","author":"Richfield EW","year":"2013","journal-title":"BMC Med"},{"key":"e_1_2_10_3_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11910-015-0542-4"},{"key":"e_1_2_10_4_1","unstructured":"World Health Organization: Palliative Care Key Facts.https:\/\/www.int\/news-room\/fact-sheets\/detail\/palliative-care. 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