{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,12]],"date-time":"2026-09-12T13:40:27Z","timestamp":1789220427014,"version":"build-2803163510"},"reference-count":31,"publisher":"Wiley","issue":"9","license":[{"start":{"date-parts":[[2024,7,26]],"date-time":"2024-07-26T00:00:00Z","timestamp":1721952000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"},{"start":{"date-parts":[[2024,7,26]],"date-time":"2024-07-26T00:00:00Z","timestamp":1721952000000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["movementdisorders.onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Movement Disorders"],"published-print":{"date-parts":[[2024,9]]},"abstract":"Abstract<\/jats:title>\n \n Objective<\/jats:title>\n The Progressive Supranuclear Palsy quality of life scale (PSP\u2010QoL) has been shown to be a useful tool for capturing health\u2010related quality of life of patients in \u201ceveryday life\u201d and in progressive supranuclear palsy (PSP) research. However, at 45 items in length, the questionnaire can take a long time, exhausting PSP patients, in particular if cognitive impaired, which can have a negative impact on the assessment. The aim of this study was to establish a condensed version of the PSP\u2010QoL for research and routine clinical care.<\/jats:p>\n <\/jats:sec>\n \n Methods<\/jats:title>\n In this retrospective study, data originating from a German cohort of PSP patients was analyzed. Data from 245 PSP patients were included in this study. The short PSP\u2010QoL questionnaire was created using a two\u2010factor solution and item\u2010total and inter\u2010item correlations for mental and physical aspects of daily living of the PSP\u2010QoL followed by confirmatory factor analysis.<\/jats:p>\n <\/jats:sec>\n \n Results<\/jats:title>\n \n The final scale included 12 items representing mental (five items) and physical symptoms (seven items). The specified two\u2010factor model displayed an excellent fit in the confirmatory factor analysis. The short Progressive Supranuclear Palsy Quality of Life scale (PSP\u2010ShoQoL) correlated moderately with the PSP Rating Scale (\n r<\/jats:italic>\n [243]\u2009=\u20090.514,\n P<\/jats:italic>\n \u2009<\u20090.001) and Geriatric depression scale (\n r<\/jats:italic>\n [231]\u2009=\u20090.548,\n P<\/jats:italic>\n \u2009<\u20090.001). Sensitivity to change confirmed a significant decrease in QoL after 12\u2009months.\n <\/jats:p>\n <\/jats:sec>\n \n Discussion<\/jats:title>\n In this study, we created a 12\u2010item PSP\u2010ShoQoL designed to \u201cfacilitate\u201d daily clinical work that correlated strongly with the PSP\u2010QoL and was sensitive to change. \u00a9 2024 International Parkinson and Movement Disorder Society.<\/jats:p>\n <\/jats:sec>","DOI":"10.1002\/mds.29936","type":"journal-article","created":{"date-parts":[[2024,7,26]],"date-time":"2024-07-26T05:03:42Z","timestamp":1721970222000},"page":"1602-1609","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":8,"title":["A Short Progressive Supranuclear Palsy Quality of Life Scale"],"prefix":"10.1002","volume":"39","author":[{"ORCID":"https:\/\/orcid.org\/0009-0006-0270-0029","authenticated-orcid":false,"given":"Ida","family":"Wilkens","sequence":"first","affiliation":[{"name":"Department of Neurology Hannover Medical School Hannover Germany"},{"name":"Department of Neurology LMU University Hospital Munich Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Stephanie","family":"Stiel","sequence":"additional","affiliation":[{"name":"Institute for General Practice and Palliative Care, Hannover Medical School Hannover Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sarah","family":"Bebermeier","sequence":"additional","affiliation":[{"name":"Department of Pedagogic Psychology Leibniz University Hannover Hannover Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9872-6680","authenticated-orcid":false,"given":"Anette","family":"Schrag","sequence":"additional","affiliation":[{"name":"Department of Clinical and Movement Neurosciences Queen Square Institute of Neurology London United Kingdom"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0638-8571","authenticated-orcid":false,"given":"Stephan","family":"Greten","sequence":"additional","affiliation":[{"name":"Department of Neurology Hannover Medical School Hannover Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0009-4722-9914","authenticated-orcid":false,"given":"Johanna","family":"Doll\u2010Lee","sequence":"additional","affiliation":[{"name":"Department of Neurology Hannover Medical School Hannover Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Florian","family":"Wegner","sequence":"additional","affiliation":[{"name":"Department of Neurology Hannover Medical School Hannover Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lan","family":"Ye","sequence":"additional","affiliation":[{"name":"Department of Neurology Hannover Medical School Hannover Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Johanne","family":"Heine","sequence":"additional","affiliation":[{"name":"Department of Neurology Hannover Medical School Hannover Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lea","family":"Krey","sequence":"additional","affiliation":[{"name":"Department of Neurology Hannover Medical School Hannover Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Matthias","family":"H\u00f6llerhage","sequence":"additional","affiliation":[{"name":"Department of Neurology Hannover Medical School Hannover Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Patrick","family":"S\u00fc\u00df","sequence":"additional","affiliation":[{"name":"Department of Molecular Neurology, University Hospital Erlangen Friedrich\u2010Alexander\u2010Universit\u00e4t Erlangen\u2010N\u00fcrnberg Erlangen Germany"},{"name":"Center of Rare Diseases Erlangen (ZSEER), University Hospital Erlangen Friedrich\u2010Alexander\u2010Universit\u00e4t Erlangen\u2010N\u00fcrnberg Erlangen Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"J\u00fcrgen","family":"Winkler","sequence":"additional","affiliation":[{"name":"Department of Molecular Neurology, University Hospital Erlangen Friedrich\u2010Alexander\u2010Universit\u00e4t Erlangen\u2010N\u00fcrnberg Erlangen Germany"},{"name":"Center of Rare Diseases Erlangen (ZSEER), University Hospital Erlangen Friedrich\u2010Alexander\u2010Universit\u00e4t Erlangen\u2010N\u00fcrnberg Erlangen Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Daniela","family":"Berg","sequence":"additional","affiliation":[{"name":"Department of Neurology Kiel University Kiel Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Steffen","family":"Paschen","sequence":"additional","affiliation":[{"name":"Department of Neurology Kiel University Kiel Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6621-144X","authenticated-orcid":false,"given":"Lars","family":"T\u00f6nges","sequence":"additional","affiliation":[{"name":"Department of Neurology, St. Josef\u2010Hospital Ruhr University Bochum Bochum Germany"},{"name":"Neurodegeneration Research, Protein Research Unit Ruhr (PURE) Ruhr University Bochum Bochum Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Doreen","family":"Gruber","sequence":"additional","affiliation":[{"name":"Movement Disorders Hospital, Beelitz\u2010Heilst\u00e4tten Beelitz\u2010Heilst\u00e4tten Germany"},{"name":"Department of Neurology Otto\u2010von\u2010Guericke University Magdeburg Magdeburg Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2874-9817","authenticated-orcid":false,"given":"Florin","family":"Gandor","sequence":"additional","affiliation":[{"name":"Movement Disorders Hospital, Beelitz\u2010Heilst\u00e4tten Beelitz\u2010Heilst\u00e4tten Germany"},{"name":"Department of Neurology Otto\u2010von\u2010Guericke University Magdeburg Magdeburg Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8574-3297","authenticated-orcid":false,"given":"Wolfgang H.","family":"Jost","sequence":"additional","affiliation":[{"name":"Parkinson\u2010Klinik Ortenau Wolfach Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Andrea A.","family":"K\u00fchn","sequence":"additional","affiliation":[{"name":"Movement Disorder and Neuromodulation Unit, Department of Neurology, Charit\u00e9 University Medicine Berlin Berlin Germany"},{"name":"German Center for Neurodegenerative Diseases (DZNE) Berlin Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Inga","family":"Claus","sequence":"additional","affiliation":[{"name":"Department of Neurology with Institute of Translational Neurology University Hospital Muenster Muenster Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tobias","family":"Warnecke","sequence":"additional","affiliation":[{"name":"Department of Neurology and Neurorehabilitation Klinikum Osnabrueck\u2014Academic teaching hospital of the WWU Muenster Osnabrueck Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"David J.","family":"Pedrosa","sequence":"additional","affiliation":[{"name":"Department of Neurology University Hospital of Marburg Marburg Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Carsten","family":"Eggers","sequence":"additional","affiliation":[{"name":"Department of Neurology Knappschaftskrankenhaus Bottrop Bottrop Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Claudia","family":"Trenkwalder","sequence":"additional","affiliation":[{"name":"Paracelsus\u2010Elena Klinik Kassel 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