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Komen for the Cure","doi-asserted-by":"publisher","award":["SAC100003"],"award-info":[{"award-number":["SAC100003"]}],"id":[{"id":"10.13039\/100000869","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Molec Gen &amp; Gen Med"],"published-print":{"date-parts":[[2019,9]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>While there is increasing interest in sharing genetic research results with participants, how best to communicate the risks, benefits and limitations of research results remains unclear.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Participants who received genetic research results answered open and closed\u2010ended questions about their experiences receiving results and interest in and advantages and disadvantages of a web\u2010based alternative to genetic counseling.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>107 <jats:italic>BRCA1\/2<\/jats:italic> negative women with a personal or family history of breast cancer consented to receive genetic research results and 82% completed survey items about their experience. Most participants reported there was nothing they disliked (74%) or would change (85%) about their predisclosure or disclosure session (78% and 89%). They most frequently reported liking the genetic counselor and learning new information. Only 24% and 26% would not be willing to complete predisclosure counseling or disclosure of results by a web\u2010based alternative, respectively. The most frequently reported advantages included convenience and reduced time. Disadvantages included not being able to ask questions, the risk of misunderstanding and the impersonal nature of the encounter.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>Most participants receiving genetic research results report high satisfaction with telephone genetic counseling, but some may be willing to consider self\u2010directed web alternatives for both predisclosure genetic education and return of results.<\/jats:p><\/jats:sec>","DOI":"10.1002\/mgg3.898","type":"journal-article","created":{"date-parts":[[2019,8,3]],"date-time":"2019-08-03T07:38:14Z","timestamp":1564817894000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":27,"title":["Research participants\u2019 experiences with return of genetic research results and preferences for web\u2010based alternatives"],"prefix":"10.1002","volume":"7","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-9504-0758","authenticated-orcid":false,"given":"Jill B.","family":"Gaieski","sequence":"first","affiliation":[{"name":"Perelman School of Medicine at the University of Pennsylvania Philadelphia USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Linda","family":"Patrick\u2010Miller","sequence":"additional","affiliation":[{"name":"Department of Medicine, Division of Hematology\u2010Oncology The University of Chicago Chicago USA"},{"name":"Center for Clinical Cancer Genetics and Global Health The University of Chicago Chicago USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Brian L.","family":"Egleston","sequence":"additional","affiliation":[{"name":"Fox Chase Cancer Center Temple University Health System Philadelphia USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Kara 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