{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,20]],"date-time":"2026-09-20T15:22:41Z","timestamp":1789917761639,"version":"4.0.1"},"reference-count":49,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2014,7,28]],"date-time":"2014-07-28T00:00:00Z","timestamp":1406505600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/501100000659","name":"Research Trainees Coordinating Centre","doi-asserted-by":"publisher","award":["CAT CC 10-004"],"award-info":[{"award-number":["CAT CC 10-004"]}],"id":[{"id":"10.13039\/501100000659","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Musculoskeletal Care"],"published-print":{"date-parts":[[2014,12]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Objectives<\/jats:title><jats:p>The aim of the present study was to conduct an in\u2010depth exploration of the \u2018journey\u2019 to diagnosis of people with ankylosing spondylitis (AS)\/axial spondyloarthritis (Axial SpA) to gain insights into the experience, potential barriers and facilitators in this process.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>The present qualitative study, embedded within a prospective longitudinal cohort study, was located within an interpretive phenomenological paradigm. Ten people newly diagnosed with AS\/axial SpA, reporting an average of 10.1 [standard deviation (SD) 7.3] years between experiencing symptoms and diagnosis, participated in semi\u2010structured interviews. The interviews were recorded, transcribed and analysed thematically. Ethical approval and informed consent were obtained.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Analysis identified four key themes: \u2018What's going on?\u2019 described the process associated with trying to understanding a changing body experience complicated by variability and the severity of back pain experienced. \u2018Fighting for a diagnosis\u2019 provided insights into the process of having to \u2018fight\u2019 to be believed and feeling dismissed by healthcare professionals. \u2018Being adrift\u2019 explored the negative psychological consequences associated with a search for a diagnosis. \u2018The start of a journey\u2019 described the relief associated with receiving a diagnosis, juxtaposed against emotions associated with the diagnosis of a long\u2010term degenerative condition.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>The delay in diagnosis experienced may be associated with lack of familiarity and knowledge of AS\/axial SpA in the population and in healthcare professionals, and creates a multiplicity of problems, including psychological distress. Clinicians therefore need to consider the potential impact of a person's \u2018journey to diagnosis\u2019 on clinical management once a diagnosis has been made. 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