{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,25]],"date-time":"2026-10-25T13:47:05Z","timestamp":1792936025376,"version":"4.5.0"},"reference-count":32,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2008,9,10]],"date-time":"2008-09-10T00:00:00Z","timestamp":1221004800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Musculoskeletal Care"],"published-print":{"date-parts":[[2008,12]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>Objective:\u2002Consumers of healthcare can reveal important insights into the personal challenges they experience when negotiating their health needs. The National Rheumatoid Arthritis Society (NRAS) wanted to explore the experiences of those with rheumatoid arthritis (RA) in order to understand the impact on the individual and on healthcare resources and benchmark care against published standards and guidelines.<\/jats:p><jats:p>Methods:\u2002A project was designed to explore the experiences of individuals with sero\u2010positive RA who had been diagnosed for three years or less. Qualitative semi\u2010structured interviews were used and combined with process mapping to explore the experiences of a purposeful sample of individuals with RA. The information generated was mapped and variances explored. Ethical approval was not required as the data were collected outside the National Health Service.<\/jats:p><jats:p>Results:\u2002Twenty\u2010two participants' stories were mapped. Fifty per cent of participants sought a medical opinion within three weeks of symptom onset and the majority received a disease\u2010modifying anti\u2010rheumatic drug within six months from first presenting symptoms. Work\u2010related issues were highlighted by 13 participants, and seven of these experienced job losses directly attributed to their diagnosis.<\/jats:p><jats:p>Conclusions:\u2002This unique mapping approach used qualitative research and process mapping to compare patient experiences against recognized standards and guidelines. These twenty\u2010two stories reveal important insights into the challenges experienced in negotiating these healthcare journeys and the impact upon the individual as a result of variances in standards of care received. The participants in this study were chiefly self\u2010motivated, informed and articulate, and did not reflect the broad ethnic, social or cultural diversity in the UK. Limitations must also be considered in relation to perceptions and recall of participants over a three\u2010year period, as these may have altered over time and illness experience. Copyright \u00a9 2008 John Wiley &amp; Sons, Ltd.<\/jats:p>","DOI":"10.1002\/msc.139","type":"journal-article","created":{"date-parts":[[2008,9,10]],"date-time":"2008-09-10T15:04:34Z","timestamp":1221059074000},"page":"247-266","source":"Crossref","is-referenced-by-count":40,"title":["Exploring the healthcare journey of patients with rheumatoid arthritis: A mapping project \u2013 implications for practice"],"prefix":"10.1002","volume":"6","author":[{"given":"Susan","family":"Oliver","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2008,9,10]]},"reference":[{"key":"e_1_2_1_2_1","doi-asserted-by":"publisher","DOI":"10.1093\/rheumatology\/38.5.423"},{"key":"e_1_2_1_3_1","volume-title":"Standards of care for inflammatory arthritis, back pain and osteaoarthritis","author":"Arthritis and Musculoskeletal Alliance","year":"2004"},{"key":"e_1_2_1_4_1","volume-title":"Moving on? A Handbook on Modelling the Whole System for Delayed Discharge in Tayside","author":"Auditor General for Scotland and its account commission","year":"2005"},{"key":"e_1_2_1_5_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.329.7466.611"},{"key":"e_1_2_1_6_1","doi-asserted-by":"publisher","DOI":"10.1093\/rheumatology\/39.12.1403"},{"key":"e_1_2_1_7_1","doi-asserted-by":"publisher","DOI":"10.1046\/j.1365-2648.1996.01993.x"},{"key":"e_1_2_1_8_1","volume-title":"Tackling hospital waiting: The 18 week patient pathway. An implementation framework","author":"Department of Health","year":"2006"},{"key":"e_1_2_1_9_1","volume-title":"The Musculoskeletal Services Framework","author":"Department of Health","year":"2006"},{"key":"e_1_2_1_10_1","volume-title":"Self care support. The evidence pack. Summary of work in progress","author":"Department of Health","year":"2007"},{"key":"e_1_2_1_11_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.320.7234.541"},{"key":"e_1_2_1_12_1","doi-asserted-by":"publisher","DOI":"10.1093\/rheumatology\/kei024"},{"key":"e_1_2_1_13_1","doi-asserted-by":"publisher","DOI":"10.1016\/0277-9536(88)90275-4"},{"key":"e_1_2_1_14_1","doi-asserted-by":"publisher","DOI":"10.1037\/0022-3514.50.3.571"},{"key":"e_1_2_1_15_1","doi-asserted-by":"publisher","DOI":"10.1093\/rheumatology\/kei157"},{"key":"e_1_2_1_16_1","doi-asserted-by":"publisher","DOI":"10.1002\/msc.44"},{"key":"e_1_2_1_17_1","doi-asserted-by":"publisher","DOI":"10.1093\/rheumatology\/33.3.283"},{"key":"e_1_2_1_18_1","doi-asserted-by":"publisher","DOI":"10.1002\/msc.35"},{"key":"e_1_2_1_19_1","doi-asserted-by":"publisher","DOI":"10.1016\/0738-3991(94)90024-8"},{"key":"e_1_2_1_20_1","doi-asserted-by":"publisher","DOI":"10.1136\/ard.2004.031880"},{"key":"e_1_2_1_21_1","doi-asserted-by":"publisher","DOI":"10.1093\/rheumatology\/kel149"},{"key":"e_1_2_1_22_1","doi-asserted-by":"publisher","DOI":"10.1002\/art.21077"},{"key":"e_1_2_1_23_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.329.7466.582"},{"key":"e_1_2_1_24_1","doi-asserted-by":"publisher","DOI":"10.1093\/rheumatology\/kel215a"},{"key":"e_1_2_1_25_1","unstructured":"OliverS BosworthA LaxI AiroldiMon behalf of theMapping Project Advisory Board(2007). The National Rheumatoid Arthritis Society Mapping Project. The National Rheumatoid Arthritis Society Maidenhead Berks.www.rheumatoid.org.uk"},{"key":"e_1_2_1_26_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2648.2006.04085.x"},{"key":"e_1_2_1_27_1","volume-title":"Is the NHS becoming more patient\u2010centred? Trends from the national surveys of NHS patients in England 2002\u20137","author":"Richards N","year":"2007"},{"key":"e_1_2_1_28_1","doi-asserted-by":"publisher","DOI":"10.1002\/msc.46"},{"key":"e_1_2_1_29_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.331.7521.887"},{"key":"e_1_2_1_30_1","doi-asserted-by":"publisher","DOI":"10.1002\/art.1790080414"},{"key":"e_1_2_1_31_1","volume-title":"European Bone and Joint Health Strategies Project. European Action Towards Better Musculoskeletal Health: A public health strategy to reduce the burden of musculoskeletal conditions","author":"The Bone and Joint Decade","year":"2005"},{"key":"e_1_2_1_32_1","volume-title":"James Parkinson Centre \u2013 The Patient's Journey","author":"The James Parkinson Centre","year":"2005"},{"key":"e_1_2_1_33_1","doi-asserted-by":"publisher","DOI":"10.1136\/ard.2003.010223"}],"container-title":["Musculoskeletal Care"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1002%2Fmsc.139","content-type":"unspecified","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/msc.139","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,11,14]],"date-time":"2023-11-14T22:54:21Z","timestamp":1700002461000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1002\/msc.139"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2008,9,10]]},"references-count":32,"journal-issue":{"issue":"4","published-print":{"date-parts":[[2008,12]]}},"alternative-id":["10.1002\/msc.139"],"URL":"https:\/\/doi.org\/10.1002\/msc.139","archive":["Portico"],"relation":{},"ISSN":["1478-2189","1557-0681"],"issn-type":[{"value":"1478-2189","type":"print"},{"value":"1557-0681","type":"electronic"}],"subject":[],"published":{"date-parts":[[2008,9,10]]}}}