{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,27]],"date-time":"2026-08-27T23:12:46Z","timestamp":1787872366811,"version":"build-2784847793"},"reference-count":47,"publisher":"Wiley","issue":"6","license":[{"start":{"date-parts":[[2018,11,15]],"date-time":"2018-11-15T00:00:00Z","timestamp":1542240000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Muscle and Nerve"],"published-print":{"date-parts":[[2018,12]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:p>\n                    <jats:italic>Introduction<\/jats:italic>\n                    : In this study we assessed social participation in 62 adults with spinal muscular atrophy (SMA) types 1c\u20134.\n                    <jats:italic>Methods<\/jats:italic>\n                    : The outcome measure used was the Utrecht Scale of Evaluation Rehabilitation\u2013Participation (USER\u2010P) with Frequency, Restrictions, and Satisfaction scores, and a hierarchical regression analysis.\n                    <jats:italic>Results<\/jats:italic>\n                    : Early\u2010onset (types 1, 2, and 3a) and late\u2010onset (types 3b and 4) SMA patients reported similar frequency and satisfaction scores. \u201cAge,\u201d \u201cmotor skills,\u201d \u201cpain,\u201d and \u201cfeelings of depression\u201d correlated with frequency; \u201cmotor skills\u201d and \u201cfeelings of depression\u201d correlated with restrictions; and \u201clevel of education,\u201d \u201cfatigue,\u201d and \u201cfeelings of depression\u201d correlated with satisfaction. \u201cMotor skills\u201d and \u201cfeelings of depression\u201d explained 33% of variance in\n                    <jats:italic>frequency<\/jats:italic>\n                    of participation. \u201cMotor skills\u201d explained 26% of variance of\n                    <jats:italic>restrictions<\/jats:italic>\n                    in participation. \u201cFatigue\u201d and \u201cfeelings of depression\u201d explained 50% of variance in\n                    <jats:italic>satisfaction<\/jats:italic>\n                    with participation.\n                    <jats:italic>Discussion<\/jats:italic>\n                    : Motor skills, feelings of depression and fatigue are correlates of participation in daily life. This knowledge can be used to optimize care for SMA patients.\n                    <jats:italic>Muscle Nerve<\/jats:italic>\n                    <jats:bold>58<\/jats:bold>\n                    :805\u2013811, 2018\n                  <\/jats:p>","DOI":"10.1002\/mus.26201","type":"journal-article","created":{"date-parts":[[2018,7,20]],"date-time":"2018-07-20T10:32:28Z","timestamp":1532082748000},"page":"805-811","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":34,"title":["Social participation of adult patients with spinal muscular atrophy: Frequency, restrictions, satisfaction, and correlates"],"prefix":"10.1002","volume":"58","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-5930-9681","authenticated-orcid":false,"given":"Esther T.","family":"Kruitwagen\u2010van Reenen","sequence":"first","affiliation":[{"name":"Department of Rehabilitation, Physiotherapy and Sports, Brain Center Rudolf Magnus University Medical Center Utrecht  Postbus, 85500, 3508, GA Utrecht The Netherlands"},{"name":"Center of Excellence for Rehabilitation Medicine, Brain Center Rudolf Magnus University Medical Center Utrecht, Utrecht University and De Hoogstraat Rehabilitation  Utrecht The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ludo","family":"van der Pol","sequence":"additional","affiliation":[{"name":"Department of Neurology and Neurosurgery Brain Center Rudolf Magnus, University Medical Center Utrecht  Utrecht The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Carin","family":"Schr\u00f6der","sequence":"additional","affiliation":[{"name":"Department of Rehabilitation, Physiotherapy and Sports, Brain Center Rudolf Magnus University Medical Center Utrecht  Postbus, 85500, 3508, GA Utrecht The Netherlands"},{"name":"Center of Excellence for Rehabilitation Medicine, Brain Center Rudolf Magnus University Medical Center Utrecht, Utrecht University and De Hoogstraat Rehabilitation  Utrecht The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Renske I.","family":"Wadman","sequence":"additional","affiliation":[{"name":"Department of Neurology and Neurosurgery Brain Center Rudolf Magnus, University Medical Center Utrecht  Utrecht The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Leonard H.","family":"van den Berg","sequence":"additional","affiliation":[{"name":"Department of Neurology and Neurosurgery Brain Center Rudolf Magnus, University Medical Center Utrecht  Utrecht The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Johanna M. 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