{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,6]],"date-time":"2026-06-06T08:31:18Z","timestamp":1780734678776,"version":"3.54.1"},"reference-count":22,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2020,5,3]],"date-time":"2020-05-03T00:00:00Z","timestamp":1588464000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Muscle and Nerve"],"published-print":{"date-parts":[[2020,7]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>The coronavirus disease 2019 (COVID\u201019) pandemic has resulted in reorganization of healthcare settings affecting the delivery of clinical care to patients with spinal muscular atrophy (SMA). There is a concern that patients with SMA may be at increased risk of manifesting severe symptoms of COVID\u201019. Currently approved therapies for SMA improve survival and motor function; however, their delivery requires an increased exposure to the health system and a dedicated healthcare team. In this study, we discuss consensus recommendations pertaining to care of SMA patients during the pandemic. We highlight that SMA treatments should not be perceived as elective. Decisions regarding the delay of treatments should be made with consideration of the potential risks of COVID\u201019 exposure and the risk of that delay. We emphasize the importance of collaborative treatment decisions between the patient, family, and healthcare provider, considering any geographic\u2010 or institution\u2010specific policies and precautions for COVID\u201019.<\/jats:p>","DOI":"10.1002\/mus.26903","type":"journal-article","created":{"date-parts":[[2020,4,24]],"date-time":"2020-04-24T15:01:18Z","timestamp":1587740478000},"page":"46-49","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":30,"title":["Spinal muscular atrophy care in the COVID\u201019 pandemic era"],"prefix":"10.1002","volume":"62","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-3065-3956","authenticated-orcid":false,"given":"Aravindhan","family":"Veerapandiyan","sequence":"first","affiliation":[{"name":"Department of Pediatrics, Division of Neurology University of Arkansas for Medical Sciences, Arkansas Children\u2019s Hospital  Little Rock Arkansas USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anne M.","family":"Connolly","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, Division of Neurology, Nationwide Children\u2019s Hospital The Ohio State University College of Medicine  Columbus Ohio USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Richard S.","family":"Finkel","sequence":"additional","affiliation":[{"name":"Experimental Neurotherapeutics St. Jude Children\u2019s Research Hospital  Memphis Tennessee USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kapil","family":"Arya","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, Division of Neurology University of Arkansas for Medical Sciences, Arkansas Children\u2019s Hospital  Little Rock Arkansas USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Katherine D.","family":"Mathews","sequence":"additional","affiliation":[{"name":"Department of Pediatrics University of Iowa Carver College of Medicine  Iowa city Iowa USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Edward C.","family":"Smith","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, Division of Neurology Duke University Medical Center, Durham  North Carolina USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Diana","family":"Castro","sequence":"additional","affiliation":[{"name":"Department of Pediatrics University of Texas Southwestern Medical Center  Dallas Texas USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Russell J.","family":"Butterfield","sequence":"additional","affiliation":[{"name":"Department of Pediatrics and Neurology University of Utah School of Medicine  Salt Lake City Utah USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Julie A.","family":"Parsons","sequence":"additional","affiliation":[{"name":"Department of Neurology and Pediatrics University of Colorado School of Medicine  Aurora Colorado USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Laurent","family":"Servais","sequence":"additional","affiliation":[{"name":"University of Li\u00e8ge Neuromuscular Reference Center Disease, Department of Pediatrics  Liege Belgium"},{"name":"MDUK Neuromuscular Center, Department of Pediatrics University of Oxford  United Kingdom"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nancy","family":"Kuntz","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, Division of Neurology, Ann and Robert H. Lurie Children's Hospital of Chicago Northwestern University Feinberg School of Medicine  Chicago Illinois USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Vamshi K.","family":"Rao","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, Division of Neurology, Ann and Robert H. Lurie Children's Hospital of Chicago Northwestern University Feinberg School of Medicine  Chicago Illinois USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"John F.","family":"Brandsema","sequence":"additional","affiliation":[{"name":"Division of Neurology, Children\u2019s Hospital of Philadelphia, Perelman School of Medicine University of Pennsylvania  Philadelphia Pennsylvania USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Eugenio","family":"Mercuri","sequence":"additional","affiliation":[{"name":"Pediatric Neurology, Catholic University; Centro Clinico Nemo, Policlinico Gemelli Fondazione Policlinico Universitario Agostino Gemelli IRCCS  Rome Italy"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Emma","family":"Ciafaloni","sequence":"additional","affiliation":[{"name":"Department of Neurology University of Rochester Medical Center  Rochester, New York USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2020,5,3]]},"reference":[{"key":"e_1_2_5_2_1","doi-asserted-by":"publisher","DOI":"10.1213\/ANE.0000000000004845"},{"key":"e_1_2_5_3_1","doi-asserted-by":"publisher","DOI":"10.1002\/jmv.25783"},{"key":"e_1_2_5_4_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jcv.2020.104366"},{"key":"e_1_2_5_5_1","doi-asserted-by":"publisher","DOI":"10.1007\/s15010-020-01427-2"},{"key":"e_1_2_5_6_1","doi-asserted-by":"publisher","DOI":"10.1097\/JCMA.0000000000000323"},{"issue":"4","key":"e_1_2_5_7_1","first-page":"422","article-title":"Coronavirus disease 2019 in Children \u2014 United States","volume":"69","author":"CDC COVID\u201019 Respsonse Team","year":"2020","journal-title":"MMWR Morb Mortal Wkly Rep."},{"key":"e_1_2_5_8_1","doi-asserted-by":"publisher","DOI":"10.1056\/NEJMc2001899"},{"key":"e_1_2_5_9_1","doi-asserted-by":"publisher","DOI":"10.15585\/mmwr.mm6914e1"},{"key":"e_1_2_5_10_1","first-page":"1","article-title":"Coding in the world of COVID\u201019: non\u2010face\u2010to\u2010face evaluation and management care","volume":"26","author":"Cohen BH","year":"2020","journal-title":"Continuum (Minneap Minn)."},{"key":"e_1_2_5_11_1","unstructured":"USFood&Drug Administration. 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