{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,7]],"date-time":"2026-10-07T16:21:16Z","timestamp":1791390076829,"version":"4.3.3"},"reference-count":37,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2021,11,30]],"date-time":"2021-11-30T00:00:00Z","timestamp":1638230400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/100014367","name":"National Palliative Care Research Center","doi-asserted-by":"publisher","award":["Kornfeld Scholars Program Award"],"award-info":[{"award-number":["Kornfeld Scholars Program Award"]}],"id":[{"id":"10.13039\/100014367","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Muscle and Nerve"],"published-print":{"date-parts":[[2022,2]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Introduction\/Aims<\/jats:title>\n                    <jats:p>Amyotrophic lateral sclerosis (ALS) is a neurodegenerative disorder characterized by progressive weakness. Survival is typically only a few years from symptom onset. The often\u2010predictable disease course creates opportunities to complete advance care planning (ACP) forms. The Physician Orders for Life\u2010Sustaining Treatment (POLST) is a broadly used ACP paradigm to communicate end\u2010of\u2010life wishes but has not been well\u2010studied in the ALS population.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>In this retrospective chart review study, patients diagnosed with ALS seen between 2014 and 2018 at an academic ALS center were identified. Demographic information, clinical characteristics, and ACP data were collected.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      Of 513 patients identified, 30% had an ACP document. POLST forms were competed in 16.6% of patients with 73.8% of forms signed by a neurologist. Only 5.1% of patients saw a palliative care physician. Palliative care consultation was associated with having an POLST on file (\n                      <jats:italic>P<\/jats:italic>\n                      \u00a0&lt;\u2009.001). Patients with completed POLST forms were significantly more likely to have been seen in clinic more frequently (\n                      <jats:italic>P<\/jats:italic>\n                      \u00a0&lt;\u2009.001) and have a lower ALS Functional Rating Scale\u2014Revised score on last visit (\n                      <jats:italic>P<\/jats:italic>\n                      \u00a0=\u2009.005).\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Discussion<\/jats:title>\n                    <jats:p>Less than one third of patients with ALS completed an ACP document, and only a small percentage completed POLST forms. The data suggest a need for greater documentation of goals of care in the ALS population.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1002\/mus.27462","type":"journal-article","created":{"date-parts":[[2021,11,17]],"date-time":"2021-11-17T07:59:44Z","timestamp":1637135984000},"page":"187-192","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":6,"title":["Documentation of advance care planning forms in patients with amyotrophic lateral sclerosis"],"prefix":"10.1002","volume":"65","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-8125-2987","authenticated-orcid":false,"given":"Sara M.","family":"Takacs","sequence":"first","affiliation":[{"name":"Department of Neurology, Indiana University School of Medicine Indiana University Health  Indianapolis Indiana USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6242-8940","authenticated-orcid":false,"given":"Amber R.","family":"Comer","sequence":"additional","affiliation":[{"name":"Department of Health Sciences Indiana University School of Health and Human Sciences  Indianapolis Indiana USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2021,11,30]]},"reference":[{"key":"e_1_2_10_2_1","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2020.0046"},{"key":"e_1_2_10_3_1","doi-asserted-by":"publisher","DOI":"10.1080\/23294515.2016.1234520"},{"key":"e_1_2_10_4_1","doi-asserted-by":"publisher","DOI":"10.1001\/archinte.166.5.493"},{"key":"e_1_2_10_5_1","doi-asserted-by":"publisher","DOI":"10.1080\/21678421.2017.1285317"},{"key":"e_1_2_10_6_1","doi-asserted-by":"publisher","DOI":"10.1001\/jamanetworkopen.2020.5179"},{"key":"e_1_2_10_7_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.amepre.2013.09.008"},{"key":"e_1_2_10_8_1","doi-asserted-by":"publisher","DOI":"10.1080\/146608201753275517"},{"key":"e_1_2_10_9_1","doi-asserted-by":"publisher","DOI":"10.1212\/WNL.59.3.428"},{"key":"e_1_2_10_10_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0025-6196(12)61577-8"},{"key":"e_1_2_10_11_1","first-page":"996","article-title":"End\u2010of\u2010life decision making in 42 patients with amyotrophic lateral sclerosis","volume":"52","author":"Munroe CA","year":"2007","journal-title":"Respir Care"},{"key":"e_1_2_10_12_1","doi-asserted-by":"publisher","DOI":"10.1212\/WNL.0b013e318247cc56"},{"key":"e_1_2_10_13_1","doi-asserted-by":"publisher","DOI":"10.1212\/01.wnl.0000180717.29273.12"},{"key":"e_1_2_10_14_1","doi-asserted-by":"publisher","DOI":"10.1136\/jnnp.74.9.1258"},{"key":"e_1_2_10_15_1","doi-asserted-by":"publisher","DOI":"10.1002\/mus.1208"},{"key":"e_1_2_10_16_1","unstructured":"National POLST. 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