{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,17]],"date-time":"2026-07-17T17:14:10Z","timestamp":1784308450454,"version":"3.55.0"},"reference-count":26,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2024,2,14]],"date-time":"2024-02-14T00:00:00Z","timestamp":1707868800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100007423","name":"Duchenne Parent Project","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100007423","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Muscle and Nerve"],"published-print":{"date-parts":[[2024,4]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Introduction\/Aims<\/jats:title><jats:p>Young people with Duchenne muscular dystrophy (DMD) are at increased risk of obesity. Weight management is important to families; however, several barriers exist. This pilot study aimed to investigate the feasibility and acceptability of a co\u2010designed weight management program for DMD.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>The Supporting Nutrition and Optimizing Wellbeing Program (SNOW\u2010P) was a single\u2010arm diet and behavior weight management intervention delivered via weekly telehealth\/phone visits over 6\u2009weeks to young people with DMD and obesity (body mass index (BMI) \u226595th percentile) and their caregivers. Using an online survey, caregivers of boys with DMD were consulted on the structure and topics delivered in SNOW\u2010P. Primary outcomes were feasibility and acceptability; secondary outcomes were weight, physical function, and quality of life at 6\u2010 and 12\u2010weeks follow\u2010up.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Of nineteen eligible participants, eight were enrolled (median age 11.4\u2009years, range 4.9\u201315.8), and seven completed the program. Visit attendance was high (88%\u2013100%); most participants reported high satisfaction and that participation was easy. Suggested changes included online and visual DMD\u2010specific resources. At 6\u2010weeks, median change in weight z\u2010scores was \u22120.01 (IQR: \u22120.23, 0.17) indicating that on average, weight gain tracked as expected for age. Waist circumference measured by caregivers lacked accuracy and the completion rate of caregiver\u2010reported secondary outcome measures (e.g., food diaries) was low.<\/jats:p><\/jats:sec><jats:sec><jats:title>Discussion<\/jats:title><jats:p>A co\u2010designed, telehealth\/phone weight management program appeared to be feasible and acceptable in a small group of boys with DMD. An adapted, hybrid telehealth and face\u2010to\u2010face program is recommended for efficacy testing.<\/jats:p><\/jats:sec>","DOI":"10.1002\/mus.28065","type":"journal-article","created":{"date-parts":[[2024,2,14]],"date-time":"2024-02-14T11:49:00Z","timestamp":1707911340000},"page":"459-466","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":3,"title":["Pilot study of a virtual weight management program for Duchenne muscular dystrophy"],"prefix":"10.1002","volume":"69","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-8566-9341","authenticated-orcid":false,"given":"Natassja","family":"Billich","sequence":"first","affiliation":[{"name":"Department of Nutrition, Dietetics and Food, School of Clinical Sciences at Monash Health, Faculty of Medicine, Nursing and Health Sciences Monash University  Melbourne Australia"},{"name":"Department of Neurology The Royal Children's Hospital  Melbourne Australia"},{"name":"School of Human Movement and Nutrition Sciences The University of Queensland  Brisbane Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5874-1667","authenticated-orcid":false,"given":"Paula","family":"Bray","sequence":"additional","affiliation":[{"name":"Children's Hospital at Westmead Clinical School, Faculty of Medicine and Health The University of Sydney  Sydney Australia"},{"name":"Department of Neurology The Children's Hospital at Westmead  Sydney Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1992-1649","authenticated-orcid":false,"given":"Helen","family":"Truby","sequence":"additional","affiliation":[{"name":"School of Human Movement and Nutrition Sciences The University of Queensland  Brisbane Australia"},{"name":"School of Primary and Allied Health Care Faculty of Medicine, Nursing and Health Sciences Monash University  Melbourne Victoria Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Maureen","family":"Evans","sequence":"additional","affiliation":[{"name":"Department of Nutrition, Dietetics and Food, School of Clinical Sciences at Monash Health, Faculty of Medicine, Nursing and Health Sciences Monash University  Melbourne Australia"},{"name":"Department of Metabolic Medicine The Royal Children's Hospital  Melbourne Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2519-3289","authenticated-orcid":false,"given":"Kate","family":"Carroll","sequence":"additional","affiliation":[{"name":"Department of Neurology The Royal Children's Hospital  Melbourne Australia"},{"name":"Neurosciences Group Murdoch Children's Research Institute  Melbourne Australia"},{"name":"Department of Physiotherapy, School of Primary and Allied Health Care, Faculty of Medicine, Nursing and Health Sciences Monash University  Melbourne Victoria Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1899-1415","authenticated-orcid":false,"given":"Katy","family":"de Valle","sequence":"additional","affiliation":[{"name":"Department of Neurology The Royal Children's Hospital  Melbourne Australia"},{"name":"Neurosciences Group Murdoch Children's Research Institute  Melbourne Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Justine","family":"Adams","sequence":"additional","affiliation":[{"name":"Department of Neurology The Royal Children's Hospital  Melbourne Australia"},{"name":"Neurosciences Group Murdoch Children's Research Institute  Melbourne Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1805-6937","authenticated-orcid":false,"given":"Rachel A.","family":"Kennedy","sequence":"additional","affiliation":[{"name":"Department of Neurology The Royal Children's Hospital  Melbourne Australia"},{"name":"Neurosciences Group Murdoch Children's Research Institute  Melbourne Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Daniella","family":"Villano","sequence":"additional","affiliation":[{"name":"Department of Neurology The Royal Children's Hospital  Melbourne Australia"},{"name":"Neurosciences Group Murdoch Children's Research Institute  Melbourne Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3985-9472","authenticated-orcid":false,"given":"Andrew J.","family":"Kornberg","sequence":"additional","affiliation":[{"name":"Department of Neurology The Royal Children's Hospital  Melbourne Australia"},{"name":"Neurosciences Group Murdoch Children's Research Institute  Melbourne Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6704-8402","authenticated-orcid":false,"given":"Eppie M.","family":"Yiu","sequence":"additional","affiliation":[{"name":"Department of Neurology The Royal Children's Hospital  Melbourne Australia"},{"name":"Neurosciences Group Murdoch Children's Research Institute  Melbourne Australia"},{"name":"Department of Paediatrics, Faculty of Medicine, Dentistry and Health Sciences Melbourne University  Melbourne Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6397-1910","authenticated-orcid":false,"given":"Monique M.","family":"Ryan","sequence":"additional","affiliation":[{"name":"Department of Nutrition, Dietetics and Food, School of Clinical Sciences at Monash Health, Faculty of Medicine, Nursing and Health Sciences Monash University  Melbourne Australia"},{"name":"Department of Neurology The Royal Children's Hospital  Melbourne Australia"},{"name":"Neurosciences Group Murdoch Children's Research Institute  Melbourne Australia"},{"name":"Department of Paediatrics, Faculty of Medicine, Dentistry and Health Sciences Melbourne University  Melbourne Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6955-7689","authenticated-orcid":false,"given":"Zoe E.","family":"Davidson","sequence":"additional","affiliation":[{"name":"Department of Nutrition, Dietetics and Food, School of Clinical Sciences at Monash Health, Faculty of Medicine, Nursing and Health Sciences Monash University  Melbourne Australia"},{"name":"Department of Neurology The Royal Children's Hospital  Melbourne Australia"},{"name":"Neurosciences Group Murdoch Children's Research Institute  Melbourne Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2024,2,14]]},"reference":[{"key":"e_1_2_13_2_1","doi-asserted-by":"publisher","DOI":"10.3390\/nu14163304"},{"key":"e_1_2_13_3_1","doi-asserted-by":"publisher","DOI":"10.1038\/ejcn.2014.93"},{"key":"e_1_2_13_4_1","doi-asserted-by":"publisher","DOI":"10.1186\/s13023-021-02158-9"},{"key":"e_1_2_13_5_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpeds.2013.08.004"},{"key":"e_1_2_13_6_1","doi-asserted-by":"publisher","DOI":"10.1002\/mus.27119"},{"key":"e_1_2_13_7_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.dsx.2017.08.006"},{"key":"e_1_2_13_8_1","doi-asserted-by":"publisher","DOI":"10.1111\/dmcn.14248"},{"key":"e_1_2_13_9_1","doi-asserted-by":"publisher","DOI":"10.1002\/mus.26340"},{"key":"e_1_2_13_10_1","doi-asserted-by":"publisher","DOI":"10.1111\/jhn.12987"},{"key":"e_1_2_13_11_1","doi-asserted-by":"publisher","DOI":"10.1002\/mus.28062"},{"key":"e_1_2_13_12_1","first-page":"3015","article-title":"Growth assessment and weight management in paediatric neuromuscular clinics: a cross\u2010sectional survey across Canada","volume":"1","author":"McPherson AC","year":"2020","journal-title":"Disabil Rehabil"},{"key":"e_1_2_13_13_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1469-8749.1984.tb04457.x"},{"key":"e_1_2_13_14_1","doi-asserted-by":"publisher","DOI":"10.1007\/BF03325295"},{"key":"e_1_2_13_15_1","doi-asserted-by":"publisher","DOI":"10.1080\/17518423.2017.1289271"},{"key":"e_1_2_13_16_1","doi-asserted-by":"publisher","DOI":"10.1111\/1747-0080.12698"},{"key":"e_1_2_13_17_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jand.2017.08.007"},{"key":"e_1_2_13_18_1","volume-title":"Weight Management: Lifestyle Services for Overweight or Obese Children and Young People","author":"National Institute for Health and Care Excellence (UK)","year":"2013"},{"key":"e_1_2_13_19_1","first-page":"1","article-title":"CDC growth charts: United States","volume":"314","author":"Kuczmarski RJ","year":"2000","journal-title":"Adv Data"},{"key":"e_1_2_13_20_1","doi-asserted-by":"publisher","DOI":"10.1177\/1357633X19865855"},{"key":"e_1_2_13_21_1","doi-asserted-by":"publisher","DOI":"10.1089\/chi.2020.0347"},{"key":"e_1_2_13_22_1","doi-asserted-by":"publisher","DOI":"10.1002\/mus.27557"},{"key":"e_1_2_13_23_1","doi-asserted-by":"publisher","DOI":"10.11124\/JBISRIR-2017-003695"},{"key":"e_1_2_13_24_1","doi-asserted-by":"publisher","DOI":"10.1186\/1471-2458-14-140"},{"key":"e_1_2_13_25_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2007-2329C"},{"key":"e_1_2_13_26_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpeds.2016.02.067"},{"key":"e_1_2_13_27_1","doi-asserted-by":"publisher","DOI":"10.1177\/0884533614546696"}],"container-title":["Muscle &amp; Nerve"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/mus.28065","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,3,6]],"date-time":"2024-03-06T05:01:51Z","timestamp":1709701311000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1002\/mus.28065"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,2,14]]},"references-count":26,"journal-issue":{"issue":"4","published-print":{"date-parts":[[2024,4]]}},"alternative-id":["10.1002\/mus.28065"],"URL":"https:\/\/doi.org\/10.1002\/mus.28065","archive":["Portico"],"relation":{},"ISSN":["0148-639X","1097-4598"],"issn-type":[{"value":"0148-639X","type":"print"},{"value":"1097-4598","type":"electronic"}],"subject":[],"published":{"date-parts":[[2024,2,14]]},"assertion":[{"value":"2023-05-27","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2024-01-26","order":1,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2024-02-14","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}