{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,7]],"date-time":"2026-10-07T16:21:42Z","timestamp":1791390102088,"version":"4.3.3"},"reference-count":29,"publisher":"Wiley","issue":"5","license":[{"start":{"date-parts":[[2024,7,29]],"date-time":"2024-07-29T00:00:00Z","timestamp":1722211200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"},{"start":{"date-parts":[[2024,7,29]],"date-time":"2024-07-29T00:00:00Z","timestamp":1722211200000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Muscle and Nerve"],"published-print":{"date-parts":[[2024,11]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Introduction\/Aims<\/jats:title>\n                    <jats:p>Multidisciplinary care for patients with amyotrophic lateral sclerosis (ALS) is recommended in international guidelines, but reaches its limits when immobility increases. This pilot project addresses this gap by delivering home\u2010based, specialized, multiprofessional support to ALS patients who are not able to attend outpatient care. The study assessed the feasibility of this model of care and the satisfaction of both patients and caregivers.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>This was a longitudinal cohort study of patients with ALS and their caregivers in the surroundings of Munich, Germany. Patients were regularly visited at home by a multiprofessional team (neurologists\/palliative care physicians, nurse, social worker, chaplain).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>A total of 94 patients with ALS were included in the homecare project and 88 patients and 74 caregivers were enrolled in the accompanying study. The mean care duration was 221\u2009days, enabling 61% of the 49 deceased patients to die at home. Notably, 20% of patients chose a way to hasten death. Patient satisfaction (ICECAP Supportive Care Measure [SCM]: 23.7\/28, CollaboRATE: 10.6\/12) and caregiver perception of the end\u2010of\u2010life phase (Caregiver Evaluation of the Quality of End\u2010Of\u2010Life Care [CEQUEL]: 24.9\/26) were high.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Discussion<\/jats:title>\n                    <jats:p>This pilot project successfully implemented specialized, home\u2010based multidisciplinary care for ALS patients and caregivers, demonstrating both feasibility and high satisfaction. The program enabled a large proportion of patients to remain in their homes, reducing the need for hospital care. The multiprofessional approach, including neuropalliative, psychosocial and spiritual support provided comprehensive care that addressed needs of patients and caregivers. Further research is warranted to explore cost\u2010effectiveness.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1002\/mus.28218","type":"journal-article","created":{"date-parts":[[2024,7,29]],"date-time":"2024-07-29T05:24:52Z","timestamp":1722230692000},"page":"937-943","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":17,"title":["Homecare amyotrophic lateral sclerosis (ALS): A multidisciplinary, home\u2010based model of care for patients with ALS and their caregivers"],"prefix":"10.1002","volume":"70","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-3258-543X","authenticated-orcid":false,"given":"Sarah Kristina","family":"Bublitz","sequence":"first","affiliation":[{"name":"Department of Neurology and Palliative Care Krankenhaus Agatharied  Hausham Germany"},{"name":"Institute of Palliative Care, Paracelsus Medizinische Privatuniversit\u00e4t  Salzburg Austria"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Magdalena","family":"Eham","sequence":"additional","affiliation":[{"name":"Department of Neurology and Palliative Care Krankenhaus Agatharied  Hausham Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Helena","family":"Ellrott","sequence":"additional","affiliation":[{"name":"Department of Neurology and Palliative Care Krankenhaus Agatharied  Hausham Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Benno","family":"Littger","sequence":"additional","affiliation":[{"name":"Department of Neurology and Palliative Care Krankenhaus Agatharied  Hausham Germany"},{"name":"Archdiocese of Munich and Freising  Munich Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jana","family":"Richter","sequence":"additional","affiliation":[{"name":"Department of Neurology and Palliative Care Krankenhaus Agatharied  Hausham Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Stefan","family":"Lorenzl","sequence":"additional","affiliation":[{"name":"Department of Neurology and Palliative Care Krankenhaus Agatharied  Hausham Germany"},{"name":"Institute of Palliative Care, Paracelsus Medizinische Privatuniversit\u00e4t  Salzburg Austria"},{"name":"Department of Palliative Medicine University Hospital, LMU Munich  Munich 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