{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,17]],"date-time":"2026-08-17T14:50:36Z","timestamp":1786978236960,"version":"build-2736575974"},"reference-count":17,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2025,4,24]],"date-time":"2025-04-24T00:00:00Z","timestamp":1745452800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"funder":[{"DOI":"10.13039\/100000002","name":"National Institutes of Health","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000055","name":"National Institute on Deafness and Other Communication Disorders","doi-asserted-by":"publisher","award":["R01 DC021714"],"award-info":[{"award-number":["R01 DC021714"]}],"id":[{"id":"10.13039\/100000055","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Muscle and Nerve"],"published-print":{"date-parts":[[2025,7]]},"abstract":"ABSTRACT<\/jats:title>\n \n Introduction\/Aims<\/jats:title>\n Speech intelligibility decline is a common in dysarthria secondary to amyotrophic lateral sclerosis (ALS). However, interventions that focus on improving speech may not be able to counteract decline as the disease progresses. Researchers have suggested interventions that help PALS's communication partners tune their speech perception systems to PALS's production. In the current study, we take a first step to establishing the need and enthusiasm for such interventions on the part of PALS and their caregivers (CPALS).<\/jats:p>\n <\/jats:sec>\n \n Methods<\/jats:title>\n PALS and CPALS recruited from the Greater Philadelphia chapter of the ALS association completed novel questionnaires probing their everyday speech communication and speech intervention experiences. Questions focused especially on changes in communication partners' ability to understand PALS' speech. Both quantitative and qualitative data were recorded.<\/jats:p>\n <\/jats:sec>\n \n Results<\/jats:title>\n \n PALS (\n n<\/jats:italic>\n \u2009=\u200921) and CPALS (\n n<\/jats:italic>\n \u2009=\u200922) reported speech as a primary mode of communication despite declines in intelligibility. However, most also indicated variability in PALS's speech intelligibility depending on the communication partner, indicating that frequent communication partners were better able to understand PALS's speech. Both groups reported interest in interventions supporting speech intelligibility and were most interested in speech interventions that included PALS and CPALS together.\n <\/jats:p>\n <\/jats:sec>\n \n Discussion<\/jats:title>\n PALS and especially CPALS in our study expressed interest in speech interventions that involved both parties. Thus, there is both a need for and a desire in the community for interactive speech interventions that support intelligibility. Additionally, our findings lend support to clinical approaches targeting frequent communication partners in addition to PALS.<\/jats:p>\n <\/jats:sec>","DOI":"10.1002\/mus.28412","type":"journal-article","created":{"date-parts":[[2025,4,25]],"date-time":"2025-04-25T02:25:28Z","timestamp":1745547928000},"page":"158-165","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":3,"title":["Everyday Communication Experiences of Persons With Amyotrophic Lateral Sclerosis and Their Caregivers: Implications for Novel Speech Interventions"],"prefix":"10.1002","volume":"72","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-3686-5922","authenticated-orcid":false,"given":"Annie J.","family":"Olmstead","sequence":"first","affiliation":[{"name":"Department of Communication Sciences and Disorders The Pennsylvania State University University Park Pennsylvania USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jimin","family":"Lee","sequence":"additional","affiliation":[{"name":"Department of Communication Sciences and Disorders The Pennsylvania State University University Park Pennsylvania USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sophia","family":"Skrzat","sequence":"additional","affiliation":[{"name":"Department of Communication Sciences and Disorders The Pennsylvania State University University Park Pennsylvania USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8574-5332","authenticated-orcid":false,"given":"Zachary","family":"Simmons","sequence":"additional","affiliation":[{"name":"Department of Neurology Penn State College of Medicine Hershey Pennsylvania USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2025,4,24]]},"reference":[{"key":"e_1_2_9_2_1","doi-asserted-by":"publisher","DOI":"10.3109\/21678421.2015.1125499"},{"key":"e_1_2_9_3_1","doi-asserted-by":"publisher","DOI":"10.1080\/17483107.2018.1498924"},{"issue":"4","key":"e_1_2_9_4_1","first-page":"231","article-title":"Timing of Speech Deterioration in People With Amyotrophic Lateral Sclerosis","volume":"10","author":"Ball L. J.","year":"2002","journal-title":"Journal of Medical Speech Language Pathology"},{"key":"e_1_2_9_5_1","doi-asserted-by":"publisher","DOI":"10.1080\/14417040600970606"},{"key":"e_1_2_9_6_1","unstructured":"American Speech\u2010Language\u2010Hearing Association \u201cDysarthria in Adults (Practice Portal) \u201dhttps:\/\/www.asha.org\/Practice\u2010Portal\/Clinical\u2010Topics\/Dysarthria\u2010in\u2010Adults\/."},{"key":"e_1_2_9_7_1","doi-asserted-by":"publisher","DOI":"10.1186\/1472\u20106815\u20101\u20101"},{"key":"e_1_2_9_8_1","doi-asserted-by":"publisher","DOI":"10.1155\/2011\/714693"},{"key":"e_1_2_9_9_1","doi-asserted-by":"publisher","DOI":"10.1080\/07434610600650276"},{"key":"e_1_2_9_10_1","first-page":"187","volume-title":"Motor Speech Disorders: Essays for ray Kent","author":"Liss J. M.","year":"2007"},{"key":"e_1_2_9_11_1","doi-asserted-by":"publisher","DOI":"10.1044\/2020_JSLHR-19-00233"},{"key":"e_1_2_9_12_1","doi-asserted-by":"publisher","DOI":"10.1044\/2017_JSLHR-S-17-0127"},{"key":"e_1_2_9_13_1","doi-asserted-by":"publisher","DOI":"10.1044\/2022_JSLHR-21-00567"},{"key":"e_1_2_9_14_1","doi-asserted-by":"publisher","DOI":"10.1044\/2024_AJSLP-23-00372"},{"key":"e_1_2_9_15_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.apmr.2010.08.026"},{"key":"e_1_2_9_16_1","doi-asserted-by":"publisher","DOI":"10.1080\/21678421.2020.1760889"},{"key":"e_1_2_9_17_1","doi-asserted-by":"publisher","DOI":"10.4135\/9781483384436"},{"key":"e_1_2_9_18_1","doi-asserted-by":"publisher","DOI":"10.1044\/2021_JSLHR-21-00012"}],"container-title":["Muscle & Nerve"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/mus.28412","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,6,5]],"date-time":"2025-06-05T03:19:20Z","timestamp":1749093560000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1002\/mus.28412"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,4,24]]},"references-count":17,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2025,7]]}},"alternative-id":["10.1002\/mus.28412"],"URL":"https:\/\/doi.org\/10.1002\/mus.28412","archive":["Portico"],"relation":{},"ISSN":["0148-639X","1097-4598"],"issn-type":[{"value":"0148-639X","type":"print"},{"value":"1097-4598","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025,4,24]]},"assertion":[{"value":"2024-02-28","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2025-03-28","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2025-04-24","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}