{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,3]],"date-time":"2026-09-03T14:07:11Z","timestamp":1788444431160,"version":"build-2803163510"},"reference-count":39,"publisher":"Wiley","issue":"3","license":[{"start":{"date-parts":[[2025,6,23]],"date-time":"2025-06-23T00:00:00Z","timestamp":1750636800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"funder":[{"DOI":"10.13039\/100000030","name":"Centers for Disease Control and Prevention","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100000030","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Muscle and Nerve"],"published-print":{"date-parts":[[2025,9]]},"abstract":"<jats:title>ABSTRACT<\/jats:title><jats:sec><jats:title>Introduction\/Aims<\/jats:title><jats:p>Pain is a recognized symptom of muscular dystrophy (MD), but little is known about prescription pain medications in this population. We describe pain experiences and pain medications prescribed for individuals with selected MDs using population\u2010based surveillance data collected by the Muscular Dystrophy Surveillance, Tracking, and Research Network.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Pain and prescription data were abstracted from medical records for 1282 individuals with Duchenne and Becker (DBMD) MD during 2000\u20132015 and congenital (CMD), distal (DD), Emery\u2010Dreifuss (EDMD), facioscapulohumeral (FSHD), limb\u2010girdle (LGMD), and myotonic (DM) MDs during 2008\u20132016. Percentages of individuals prescribed pain medications for \u2265\u20096\u2009weeks during follow\u2010up were estimated. Logistic regression was used to examine associations with selected demographic and clinical characteristics.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Moderate pain was observed among 34% of all people with available pain scores and varied by MD type (13%\u201353%). Pain medications were prescribed for 31.1%\u201340.2% of people 20\u2009years and older, but less frequently (&lt;\u200915%) among people less than 20\u2009years old. Among people prescribed pain medications, the first medication was typically a non\u2010opioid (57%), but both non\u2010opioid and opioid medication classes were prescribed during follow\u2010up (34%). Pain medications were typically prescribed for longer than 1\u2009year (&gt;\u200985%). Impaired mobility had the strongest association with prescription pain medication.<\/jats:p><\/jats:sec><jats:sec><jats:title>Discussion<\/jats:title><jats:p>The prescription of pain medication is common for people with symptomatic MD. Most people were prescribed only non\u2010opioids. These data highlight pain management as a frequent component of MD care. Understanding modifiable factors associated with MD\u2010related pain and effective interventions may help improve care.<\/jats:p><\/jats:sec>","DOI":"10.1002\/mus.28460","type":"journal-article","created":{"date-parts":[[2025,6,23]],"date-time":"2025-06-23T05:50:18Z","timestamp":1750657818000},"page":"475-484","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":2,"title":["Pain Experiences and Prescription Pain Medications Among People With Selected Muscular Dystrophies in the Muscular Dystrophy Surveillance, Tracking, and Research Network"],"prefix":"10.1002","volume":"72","author":[{"given":"Jonathan","family":"Suhl","sequence":"first","affiliation":[{"name":"Department of Epidemiology, College of Public Health The University of Iowa  Iowa City Iowa USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8633-966X","authenticated-orcid":false,"given":"Kristin 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