{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,3,9]],"date-time":"2026-03-09T23:15:26Z","timestamp":1773098126997,"version":"3.50.1"},"reference-count":11,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2026,1,20]],"date-time":"2026-01-20T00:00:00Z","timestamp":1768867200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"},{"start":{"date-parts":[[2026,1,20]],"date-time":"2026-01-20T00:00:00Z","timestamp":1768867200000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Muscle and Nerve"],"published-print":{"date-parts":[[2026,4]]},"abstract":"ABSTRACT<\/jats:title>\n \n Introduction\/Aims<\/jats:title>\n Amyotrophic lateral sclerosis (ALS) affects military veterans at a higher rate than the general civilian population. The aim of the present study is to assess symptom burden and satisfaction with care among persons with ALS care enrolled in the US Veterans Health Administration (VA).<\/jats:p>\n <\/jats:sec>\n \n Methods<\/jats:title>\n \n A custom online survey was created with questions about symptom prevalence and management as well as care satisfaction. A survey link was sent by email to all veterans with an\n ICD<\/jats:styled-content>\n \u201010 diagnosis of\n ALS<\/jats:styled-content>\n in the\n VA<\/jats:styled-content>\n for whom an email address was available in the electronic health record.\n <\/jats:p>\n <\/jats:sec>\n \n Results<\/jats:title>\n \n Responses were received from 413 individuals (16% response rate). Respondents reported high care satisfaction and higher prevalence of treatment of symptoms compared to prior surveys of persons with\n ALS<\/jats:styled-content>\n in the United States. Self\u2010reported outcomes, including treatment, education, and satisfaction, were better for Veterans receiving care exclusively within the\n VA<\/jats:styled-content>\n compared to those receiving care at both\n VA<\/jats:styled-content>\n and non\u2010\n VA<\/jats:styled-content>\n facilities or receiving care exclusively at non\u2010\n VA<\/jats:styled-content>\n facilities. Areas for further improvement identified in the survey include education on genetic testing and research and management of non\u2010motor symptoms.\n <\/jats:p>\n <\/jats:sec>\n \n Discussion<\/jats:title>\n \n This survey indicates that, overall, veterans with\n ALS<\/jats:styled-content>\n receive comprehensive symptom\u2010based care within the nationalized\n VA<\/jats:styled-content>\n care system and report high levels of satisfaction. Furthermore, this study provides baseline data and findings that may be used for quality improvement efforts across a large healthcare system and may serve as a model for similar efforts in other health systems.\n <\/jats:p>\n <\/jats:sec>","DOI":"10.1002\/mus.70147","type":"journal-article","created":{"date-parts":[[2026,1,20]],"date-time":"2026-01-20T12:04:46Z","timestamp":1768910686000},"page":"623-629","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Symptom Burden and Care Satisfaction in US Military Veterans With ALS: Results of a National Survey"],"prefix":"10.1002","volume":"73","author":[{"ORCID":"https:\/\/orcid.org\/0009-0003-2498-7524","authenticated-orcid":false,"given":"Ileana","family":"Howard","sequence":"first","affiliation":[{"name":"Rehabilitation Care Service, VA Puget Sound Health Care System Seattle Washington USA"},{"name":"Department of Rehabilitation Medicine University of Washington Seattle Washington USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Michael","family":"Lyerly","sequence":"additional","affiliation":[{"name":"Division of Neurology, Birmingham VA Medical Center Birmingham Alabama USA"},{"name":"Department of Neurology University of Alabama at Birmingham Birmingham Alabama USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Richard","family":"Reimer","sequence":"additional","affiliation":[{"name":"Department of Neurology and Neurological Sciences Stanford University Palo Alto California USA"},{"name":"Division of Neurology, Veterans Affairs Palo Alto Health Care System Palo Alto California USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Huned","family":"Patwa","sequence":"additional","affiliation":[{"name":"Department of Neurology Yale University New Haven Connecticut USA"},{"name":"Division of Neurology, Veterans Affairs Connecticut Healthcare System West Haven Connecticut USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Leah","family":"Darling","sequence":"additional","affiliation":[{"name":"Social Work Service, Richard L. Roudebush VA Medical Center Indianapolis Indiana USA"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2026,1,20]]},"reference":[{"key":"e_1_2_12_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/bs.irn.2017.04.009"},{"key":"e_1_2_12_3_1","doi-asserted-by":"publisher","DOI":"10.1080\/21678421.2020.1760889"},{"key":"e_1_2_12_4_1","doi-asserted-by":"publisher","DOI":"10.1002\/mus.25712"},{"key":"e_1_2_12_5_1","doi-asserted-by":"publisher","DOI":"10.3109\/17482968.2011.607500"},{"key":"e_1_2_12_6_1","doi-asserted-by":"publisher","DOI":"10.3233\/JND-210687"},{"key":"e_1_2_12_7_1","volume-title":"VHA Handbook 1101.07: Amyotropic Lateral Sclerosis (ALS) System of Care Procedures","author":"Department of Veterans Affairs","year":"2014"},{"key":"e_1_2_12_8_1","volume-title":"Living With ALS","author":"Alper J.","year":"2024"},{"key":"e_1_2_12_9_1","unstructured":"U.S. Department of Veterans Affairs \u201cCorporate Data Warehouse (CDW) \u201daccessed November 13 2025 https:\/\/www.hsrd.research.va.gov\/for_researchers\/cdw.cfm."},{"key":"e_1_2_12_10_1","unstructured":"\u201cVHA Directive 1101.07 Amyotrophic Lateral Sclerosis System of Care \u201d2021 https:\/\/www.va.gov\/vhapublications\/ViewPublication.asp?pub_ID=9423."},{"key":"e_1_2_12_11_1","doi-asserted-by":"publisher","DOI":"10.1001\/jamanetworkopen.2018.7096"},{"key":"e_1_2_12_12_1","doi-asserted-by":"publisher","DOI":"10.1097\/MLR.0000000000001764"}],"container-title":["Muscle & Nerve"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/mus.70147","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1002\/mus.70147","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/mus.70147","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,3,9]],"date-time":"2026-03-09T12:46:48Z","timestamp":1773060408000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1002\/mus.70147"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,1,20]]},"references-count":11,"journal-issue":{"issue":"4","published-print":{"date-parts":[[2026,4]]}},"alternative-id":["10.1002\/mus.70147"],"URL":"https:\/\/doi.org\/10.1002\/mus.70147","archive":["Portico"],"relation":{},"ISSN":["0148-639X","1097-4598"],"issn-type":[{"value":"0148-639X","type":"print"},{"value":"1097-4598","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,1,20]]},"assertion":[{"value":"2025-10-10","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-01-05","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-01-20","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}