{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,20]],"date-time":"2026-06-20T05:50:33Z","timestamp":1781934633610,"version":"3.54.5"},"reference-count":13,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2026,5,18]],"date-time":"2026-05-18T00:00:00Z","timestamp":1779062400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"},{"start":{"date-parts":[[2026,5,18]],"date-time":"2026-05-18T00:00:00Z","timestamp":1779062400000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"funder":[{"DOI":"10.13039\/100009017","name":"ALS Society of Canada","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100009017","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100008572","name":"University of Ottawa","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100008572","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100000024","name":"Canadian Institutes of Health Research","doi-asserted-by":"publisher","award":["INS\u2010464765"],"award-info":[{"award-number":["INS\u2010464765"]}],"id":[{"id":"10.13039\/501100000024","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100000223","name":"Muscular Dystrophy Canada","doi-asserted-by":"publisher","award":["932196"],"award-info":[{"award-number":["932196"]}],"id":[{"id":"10.13039\/501100000223","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Muscle and Nerve"],"published-print":{"date-parts":[[2026,7]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Introduction\/Aims<\/jats:title>\n                    <jats:p>The benefits of initial palliative care (PC) consultation for patients with amyotrophic lateral sclerosis (ALS) have been previously described. The aim of this study was to explore the evolution of PC needs of patients with ALS over time through analysis of PC follow\u2010up visits.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Patients followed at a multidisciplinary ALS clinic received PC consultations and follow\u2010ups between October 2020 and April 2022. All patients who received at least one PC follow\u2010up visit were included in this study. Physician documentation of the visits was analyzed for sub\u2010themes and topics. Topics discussed during visits and visit frequency were examined in the context of patient variables.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      The 26 patients had at least one PC follow\u2010up visit (range 1\u201312 visits). Topics of discussion varied by individual rather than disease status and were often discussed repeatedly. Compared to initial consultations, follow\u2010up visits featured more frequent discussion of sialorrhea and less frequent discussion of constipation, pain, and prognosis (all\n                      <jats:italic>p<\/jats:italic>\n                      \u2009&lt;\u20090.05). Care coordination was discussed in 82% of follow\u2010ups. Time between follow\u2010up visits shortened as the disease progressed. Medical assistance in dying (MAID) was discussed by 31% of patients either at initial consultation or follow\u2010up.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Discussion<\/jats:title>\n                    <jats:p>Each individual with ALS has unique PC needs. PC specialist resource planning should anticipate higher frequency visits for patients later in the disease course. Given the importance of care coordination and the scarcity of PC specialists, we recommend further study of effective models of care coordination. We recommend that PC specialists be comfortable counseling patients on MAID.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1002\/mus.70283","type":"journal-article","created":{"date-parts":[[2026,5,19]],"date-time":"2026-05-19T03:03:47Z","timestamp":1779159827000},"page":"225-232","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Lessons Learned From a Feasibility Study of Longitudinal Palliative Care for Patients With Amyotrophic Lateral Sclerosis"],"prefix":"10.1002","volume":"74","author":[{"ORCID":"https:\/\/orcid.org\/0009-0001-0859-7847","authenticated-orcid":false,"given":"Jocelyn","family":"Zwicker","sequence":"first","affiliation":[{"name":"Department of Medicine, Division of Neurology The Ottawa Hospital  Ottawa Canada"},{"name":"Faculty of Medicine University of Ottawa  Ottawa Canada"},{"name":"Ottawa Hospital Research Institute  Ottawa Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5269-1710","authenticated-orcid":false,"given":"Ian C.","family":"Smith","sequence":"additional","affiliation":[{"name":"Ottawa Hospital Research Institute  Ottawa Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8907-1283","authenticated-orcid":false,"given":"Shirley H.","family":"Bush","sequence":"additional","affiliation":[{"name":"Faculty of Medicine University of Ottawa  Ottawa Canada"},{"name":"Ottawa Hospital Research Institute  Ottawa Canada"},{"name":"Department of Medicine, Division of Palliative Care The Ottawa Hospital  Ottawa Canada"},{"name":"Bruy\u00e8re Health Research Institute  Ottawa Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jill","family":"Rice","sequence":"additional","affiliation":[{"name":"Faculty of Medicine University of Ottawa  Ottawa Canada"},{"name":"Ottawa Hospital Research Institute  Ottawa Canada"},{"name":"Department of Medicine, Division of Palliative Care The Ottawa Hospital  Ottawa Canada"},{"name":"Bruy\u00e8re Health Research Institute  Ottawa Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rebekah","family":"Murphy","sequence":"additional","affiliation":[{"name":"Faculty of Medicine University of Ottawa  Ottawa Canada"},{"name":"Department of Medicine, Division of Palliative Care The Ottawa Hospital  Ottawa Canada"},{"name":"Bruy\u00e8re Health Research Institute  Ottawa Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ari","family":"Breiner","sequence":"additional","affiliation":[{"name":"Department of Medicine, Division of Neurology The Ottawa Hospital  Ottawa Canada"},{"name":"Faculty of Medicine University of Ottawa  Ottawa Canada"},{"name":"Ottawa Hospital Research Institute  Ottawa Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Usha","family":"Buenger","sequence":"additional","affiliation":[{"name":"Faculty of Medicine University of Ottawa  Ottawa Canada"},{"name":"Department of Medicine, Division of Physical Medicine and Rehabilitation The Ottawa Hospital Rehabilitation Centre  Ottawa Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Belinda","family":"Zehrt","sequence":"additional","affiliation":[{"name":"Faculty of Medicine University of Ottawa  Ottawa Canada"},{"name":"Department of Medicine, Division of Physical Medicine and Rehabilitation The Ottawa Hospital Rehabilitation Centre  Ottawa Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0187-2199","authenticated-orcid":false,"given":"Jodi","family":"Warman\u2010Chardon","sequence":"additional","affiliation":[{"name":"Department of Medicine, Division of Neurology The Ottawa Hospital  Ottawa Canada"},{"name":"Faculty of Medicine University of Ottawa  Ottawa Canada"},{"name":"Ottawa Hospital Research Institute  Ottawa Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Christine L.","family":"Watt","sequence":"additional","affiliation":[{"name":"Faculty of Medicine University of Ottawa  Ottawa Canada"},{"name":"Ottawa Hospital Research Institute  Ottawa Canada"},{"name":"Department of Medicine, Division of Palliative Care The Ottawa Hospital  Ottawa Canada"},{"name":"Bruy\u00e8re Health Research Institute  Ottawa Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,5,18]]},"reference":[{"key":"e_1_2_11_2_1","doi-asserted-by":"publisher","DOI":"10.3109\/17482968.2010.487532"},{"key":"e_1_2_11_3_1","doi-asserted-by":"publisher","DOI":"10.1002\/mus.26607"},{"key":"e_1_2_11_4_1","doi-asserted-by":"publisher","DOI":"10.1002\/mus.27194"},{"key":"e_1_2_11_5_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2024.03.024"},{"key":"e_1_2_11_6_1","doi-asserted-by":"publisher","DOI":"10.3389\/fmed.2023.1204816"},{"key":"e_1_2_11_7_1","doi-asserted-by":"publisher","DOI":"10.1212\/CPJ.0000000000001124"},{"key":"e_1_2_11_8_1","doi-asserted-by":"publisher","DOI":"10.1212\/WNL.0000000000010831"},{"key":"e_1_2_11_9_1","doi-asserted-by":"publisher","DOI":"10.1002\/mus.27239"},{"key":"e_1_2_11_10_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0022-510X(99)00210-5"},{"key":"e_1_2_11_11_1","doi-asserted-by":"publisher","DOI":"10.1002\/mus.27562"},{"key":"e_1_2_11_12_1","doi-asserted-by":"publisher","DOI":"10.3109\/21678421.2014.971811"},{"key":"e_1_2_11_13_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2021.03.008"},{"key":"e_1_2_11_14_1","doi-asserted-by":"publisher","DOI":"10.1001\/jamainternmed.2024.6643"}],"container-title":["Muscle &amp; Nerve"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/mus.70283","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1002\/mus.70283","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/mus.70283","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,6,20]],"date-time":"2026-06-20T05:03:04Z","timestamp":1781931784000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1002\/mus.70283"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,5,18]]},"references-count":13,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2026,7]]}},"alternative-id":["10.1002\/mus.70283"],"URL":"https:\/\/doi.org\/10.1002\/mus.70283","archive":["Portico"],"relation":{},"ISSN":["0148-639X","1097-4598"],"issn-type":[{"value":"0148-639X","type":"print"},{"value":"1097-4598","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,5,18]]},"assertion":[{"value":"2025-11-23","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-05-11","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-05-18","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}