{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,5]],"date-time":"2026-10-05T12:53:55Z","timestamp":1791204835443,"version":"4.1.0"},"reference-count":24,"publisher":"Wiley","issue":"S1","license":[{"start":{"date-parts":[[2026,7,16]],"date-time":"2026-07-16T00:00:00Z","timestamp":1784160000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,7,16]],"date-time":"2026-07-16T00:00:00Z","timestamp":1784160000000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"funder":[{"DOI":"10.13039\/100018748","name":"Argenx","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100018748","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Muscle and Nerve"],"published-print":{"date-parts":[[2026,9]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Introduction\/Aims<\/jats:title>\n                    <jats:p>Myasthenia gravis (MG) is a rare autoimmune disorder requiring individualized, specialized treatment, yet access to specialized care is limited and documentation fragmented. Several remote monitoring tools have emerged to address this gap, yet their integration into clinical care remains challenging. The aim was to better understand the nature and context of care\u2010related interactions in order to inform the development of clinically meaningful and patient\u2010centered digital health solutions for MG.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>We conducted a survey among physicians and nurses at a tertiary MG center over an eight\u2010week period regarding care\u2010related inquiries, documented using a structured report form that captured the topic, urgency, communication channel, processing time, and clinician involved.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>About 576 care\u2010related inquiries were recorded. Most inquiries addressed organizational (55.4%) or medical (41.3%) issues. Among medical topics, symptom worsening (30.7%) and treatment\u2010specific questions regarding FcRn and complement inhibitor therapy (19.3%) were most frequent. Organizational topics were most frequently about appointments (43.6%) and prescriptions (35.7%). A total of 115 inquiries (20.0%) were time\u2010critical (requiring same weekday response). Physicians answered 74.3% of inquiries. The most common communication channels were e\u2010mail (42.4%) and telephone (29.0%), followed by the hospital information system (13.7%) and a telemedicine platform (6.9%). Medical inquiries took twice as long to process\/respond as organizational ones (median 10 vs. 5\u2009min).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Discussion<\/jats:title>\n                    <jats:p>Our findings show that care\u2010related inquiries in MG are diverse and answered through various communication channels. Remote monitoring solutions hold promise to complement existing care structures in MG and could support timely and structured care but require human\u2010guided processes.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1002\/mus.70341","type":"journal-article","created":{"date-parts":[[2026,7,16]],"date-time":"2026-07-16T09:28:39Z","timestamp":1784194119000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Patient Communication Outside of Visits: Implications for Remote Monitoring and Digital Care Models in Myasthenia Gravis"],"prefix":"10.1002","volume":"74","author":[{"ORCID":"https:\/\/orcid.org\/0009-0002-1514-8385","authenticated-orcid":false,"given":"Maike","family":"Stein","sequence":"first","affiliation":[{"name":"Charit\u00e9\u2014Universit\u00e4tsmedizin Berlin, Corporate Member of Freie Universit\u00e4t Berlin and Humboldt\u2010Universit\u00e4t Zu Berlin, Department of Neurology With Experimental Neurology  Berlin Germany"},{"name":"Charit\u00e9\u2010Universit\u00e4tsmedizin Berlin, Corporate Member of Freie Universit\u00e4t Berlin and Humboldt\u2010Universit\u00e4t zu Berlin, Neuroscience Clinical Research Center  Berlin Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lea","family":"Gerischer","sequence":"additional","affiliation":[{"name":"Charit\u00e9\u2014Universit\u00e4tsmedizin Berlin, Corporate Member of Freie Universit\u00e4t Berlin and Humboldt\u2010Universit\u00e4t Zu Berlin, Department of Neurology With Experimental Neurology  Berlin Germany"},{"name":"Charit\u00e9\u2010Universit\u00e4tsmedizin Berlin, Corporate Member of Freie Universit\u00e4t Berlin and Humboldt\u2010Universit\u00e4t zu Berlin, Neuroscience Clinical Research Center  Berlin Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Yvonne J. M.","family":"Campman","sequence":"additional","affiliation":[{"name":"Department of Neurology Leiden University Medical Center  Leiden the Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anna Rostedt","family":"Punga","sequence":"additional","affiliation":[{"name":"Department of Medical Sciences Clinical Neurophysiology, Uppsala University  Uppsala Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9412-7349","authenticated-orcid":false,"given":"Pushpa","family":"Narayanaswami","sequence":"additional","affiliation":[{"name":"Department of Neurology Beth Israel Deaconess Medical Center\/Harvard Medical, School  Boston Massachusetts USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7233-5342","authenticated-orcid":false,"given":"Andreas","family":"Meisel","sequence":"additional","affiliation":[{"name":"Charit\u00e9\u2014Universit\u00e4tsmedizin Berlin, Corporate Member of Freie Universit\u00e4t Berlin and Humboldt\u2010Universit\u00e4t Zu Berlin, Department of Neurology With Experimental Neurology  Berlin Germany"},{"name":"Charit\u00e9\u2010Universit\u00e4tsmedizin Berlin, Corporate Member of Freie Universit\u00e4t Berlin and Humboldt\u2010Universit\u00e4t zu Berlin, Neuroscience Clinical Research Center  Berlin Germany"},{"name":"Center for Stroke Research Berlin, Charit\u00e9\u2014Universit\u00e4tsmedizin Berlin  Berlin Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2929-0390","authenticated-orcid":false,"given":"Martijn R.","family":"Tannemaat","sequence":"additional","affiliation":[{"name":"Department of Neurology Leiden University Medical Center  Leiden the Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9007-027X","authenticated-orcid":false,"given":"Sophie","family":"Lehnerer","sequence":"additional","affiliation":[{"name":"Charit\u00e9\u2014Universit\u00e4tsmedizin Berlin, Corporate Member of Freie Universit\u00e4t Berlin and Humboldt\u2010Universit\u00e4t Zu Berlin, Department of Neurology With Experimental Neurology  Berlin Germany"},{"name":"Charit\u00e9\u2010Universit\u00e4tsmedizin Berlin, Corporate Member of Freie Universit\u00e4t Berlin and Humboldt\u2010Universit\u00e4t zu Berlin, Neuroscience Clinical Research Center  Berlin Germany"},{"name":"Berlin Institute of Health at Charit\u00e9\u2014Universit\u00e4tsmedizin Berlin, Digital Health Center  Berlin Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,7,16]]},"reference":[{"key":"e_1_2_10_2_1","doi-asserted-by":"publisher","DOI":"10.1177\/20552076231152989"},{"key":"e_1_2_10_3_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00415\u2010021\u201010891\u20101"},{"key":"e_1_2_10_4_1","doi-asserted-by":"publisher","DOI":"10.21203\/rs.3.rs\u20103960843\/v1"},{"key":"e_1_2_10_5_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10072\u2010021\u201005566\u20108"},{"key":"e_1_2_10_6_1","doi-asserted-by":"publisher","DOI":"10.1002\/mus.27260"},{"key":"e_1_2_10_7_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10072\u2010022\u201005918\u2010y"},{"key":"e_1_2_10_8_1","doi-asserted-by":"publisher","DOI":"10.1002\/mus.26987"},{"key":"e_1_2_10_9_1","doi-asserted-by":"publisher","DOI":"10.1097\/WNO.0000000000000413"},{"key":"e_1_2_10_10_1","doi-asserted-by":"publisher","DOI":"10.3390\/s23187744"},{"key":"e_1_2_10_11_1","doi-asserted-by":"publisher","DOI":"10.1159\/000531224"},{"key":"e_1_2_10_12_1","doi-asserted-by":"publisher","DOI":"10.1177\/22143602241296314"},{"key":"e_1_2_10_13_1","doi-asserted-by":"publisher","DOI":"10.2196\/58266"},{"key":"e_1_2_10_14_1","doi-asserted-by":"publisher","DOI":"10.2196\/26189"},{"key":"e_1_2_10_15_1","doi-asserted-by":"publisher","DOI":"10.2196\/21623"},{"key":"e_1_2_10_16_1","doi-asserted-by":"publisher","DOI":"10.1038\/s41746\u2010025\u201001586\u20102"},{"key":"e_1_2_10_17_1","doi-asserted-by":"publisher","DOI":"10.1177\/1352458518799629"},{"key":"e_1_2_10_18_1","doi-asserted-by":"publisher","DOI":"10.1038\/s41572\u2010019\u20100079\u2010y"},{"key":"e_1_2_10_19_1","doi-asserted-by":"publisher","DOI":"10.1002\/acn3.70293"},{"key":"e_1_2_10_20_1","doi-asserted-by":"publisher","DOI":"10.1002\/acn3.70257"},{"key":"e_1_2_10_21_1","doi-asserted-by":"publisher","DOI":"10.1002\/mus.70234"},{"key":"e_1_2_10_22_1","doi-asserted-by":"publisher","DOI":"10.1002\/acn3.51823"},{"key":"e_1_2_10_23_1","doi-asserted-by":"publisher","DOI":"10.2196\/43387"},{"key":"e_1_2_10_24_1","doi-asserted-by":"publisher","DOI":"10.3390\/bioengineering11090942"},{"key":"e_1_2_10_25_1","doi-asserted-by":"publisher","DOI":"10.1097\/WNO.0000000000001425"}],"container-title":["Muscle &amp; 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