{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,30]],"date-time":"2026-09-30T01:40:32Z","timestamp":1790732432892,"version":"4.1.0"},"reference-count":26,"publisher":"Wiley","issue":"8","license":[{"start":{"date-parts":[[2021,9,13]],"date-time":"2021-09-13T00:00:00Z","timestamp":1631491200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/501100009891","name":"DENTSPLY Implants","doi-asserted-by":"publisher","award":["Wellspect Healthcare Educational Grant"],"award-info":[{"award-number":["Wellspect Healthcare Educational Grant"]}],"id":[{"id":"10.13039\/501100009891","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Neurourology and Urodynamics"],"published-print":{"date-parts":[[2021,11]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Aims<\/jats:title><jats:p>Patient satisfaction is paramount to health\u2010related quality of life (HR\u2010QoL) outcomes. High quality, quantitative data from the US describing patients\u2019 actual experiences, difficulties, and HR\u2010QoL while on an intermittent self\u2010catheterization (ISC) regimen is very scarce. Our objective was to better understand patient practices with and attitudes towards ISC.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>This is a cross\u2010sectional, multi\u2010centered, clinical study of adult men and women performing ISC in the United States. Data collected included demographics, medical history, catheter characteristics, specific self\u2010catheterization habits and two validated HR\u2010QoL questionnaires: The Intermittent Self\u2010Catheterization Questionnaire (ISC\u2010Q) and the Intermittent Catheterization Difficulty Questionnaire (ICDQ).<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Two hundred participants were recruited from six sites; 70.0% were male, 73.5% were Caucasian with a median age was 51.0 years (range 19\u201390 years). The ISC\u2010Q showed that the vast majority of participants reported ease with ISC (82.0% satisfaction score) had confidence in their ability to perform ISC (91.9% satisfaction score); yet, many felt self\u2010conscious about doing so (58.3% satisfaction score) and had concerns about long\u2010term adverse effects (58.1% satisfaction score). The ICDQ indicated little to no difficulty for most participants with all routine ISC practices. A small minority of participants reported some difficulty with a \u201cblocking sensation\u201d during initiation of catheterization, leg spasticity, and painful catheterization. Multivariate linear regression results are also reported.<\/jats:p><\/jats:sec><jats:sec><jats:title>Discussion\/Conclusion<\/jats:title><jats:p>Participants are confident with ISC and have little overall difficulty, which may be a product of successful education and\/or catheter design. urinary tract infections (UTIs) were common (yet variable) and may contribute to the noted long\u2010term ISC concerns. Limitations exist including various selection biases leading to concerns of external validity. Future educational interventions in this population may further improve HR\u2010QoL, optimize UTIs prevention, and diminish concerns with long\u2010term ISC.<\/jats:p><\/jats:sec>","DOI":"10.1002\/nau.24786","type":"journal-article","created":{"date-parts":[[2021,9,13]],"date-time":"2021-09-13T16:16:47Z","timestamp":1631549807000},"page":"2008-2019","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":21,"title":["Results of the patient report of intermittent catheterization experience (PRICE) study"],"prefix":"10.1002","volume":"40","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-6817-853X","authenticated-orcid":false,"given":"Daniel","family":"Roberson","sequence":"first","affiliation":[{"name":"Division of Urology, Department of Surgery University of Pennsylvania Philadelphia Pennsylvania USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Diane K.","family":"Newman","sequence":"additional","affiliation":[{"name":"Division of Urology, Department of Surgery University of Pennsylvania Philadelphia Pennsylvania USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Justin B.","family":"Ziemba","sequence":"additional","affiliation":[{"name":"Division of Urology, Department of Surgery University of Pennsylvania Philadelphia Pennsylvania USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Alan","family":"Wein","sequence":"additional","affiliation":[{"name":"Division of Urology, Department of Surgery University of Pennsylvania Philadelphia Pennsylvania USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Hanna","family":"Stambakio","sequence":"additional","affiliation":[{"name":"Division of Urology, Department of Surgery University of Pennsylvania Philadelphia Pennsylvania USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rita G.","family":"Hamilton","sequence":"additional","affiliation":[{"name":"Baylor Scott &amp; White Institute for Rehabilitation Dallas Texas USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Librada","family":"Callender","sequence":"additional","affiliation":[{"name":"Baylor Scott &amp; White Institute for Rehabilitation Dallas Texas USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Leah","family":"Holderbaum","sequence":"additional","affiliation":[{"name":"Baylor Scott &amp; White Institute for Rehabilitation Dallas Texas USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tamara","family":"King","sequence":"additional","affiliation":[{"name":"Shepherd Multispecialty Clinic Shepherd Center, Inc. Atlanta Georgia USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Angela","family":"Jackson","sequence":"additional","affiliation":[{"name":"Department of Urology University of South Florida Tampa Florida USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Thanh","family":"Tran","sequence":"additional","affiliation":[{"name":"Department of Urology University of South Florida Tampa Florida USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"George","family":"Lin","sequence":"additional","affiliation":[{"name":"Division of Urology, Department of Surgery University of Pennsylvania Philadelphia Pennsylvania USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9784-2559","authenticated-orcid":false,"given":"Ariana L.","family":"Smith","sequence":"additional","affiliation":[{"name":"Division of Urology, Department of Surgery University of Pennsylvania Philadelphia Pennsylvania USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2021,9,13]]},"reference":[{"key":"e_1_2_10_2_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11255-016-1236-9"},{"key":"e_1_2_10_3_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11255-020-02435-9"},{"key":"e_1_2_10_4_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00345-018-2301-z"},{"key":"e_1_2_10_5_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ncl.2016.06.016"},{"key":"e_1_2_10_6_1","doi-asserted-by":"publisher","DOI":"10.1159\/000445751"},{"key":"e_1_2_10_7_1","doi-asserted-by":"publisher","DOI":"10.1161\/CIR.0000000000000757"},{"issue":"10","key":"e_1_2_10_8_1","first-page":"s191","article-title":"The epidemiology and pathophysiology of neurogenic bladder","volume":"19","author":"Ginsberg D","year":"2013","journal-title":"Am J Manag Care"},{"key":"e_1_2_10_9_1","unstructured":"NewmanDK RovnerES WeinAJ. 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