{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,19]],"date-time":"2026-09-19T16:01:55Z","timestamp":1789833715079,"version":"4.0.1"},"reference-count":23,"publisher":"Wiley","issue":"8","license":[{"start":{"date-parts":[[2021,9,9]],"date-time":"2021-09-09T00:00:00Z","timestamp":1631145600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Neurourology and Urodynamics"],"published-print":{"date-parts":[[2021,11]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Objective<\/jats:title><jats:p>To evaluate disease perception in a cohort of patients with interstitial cystitis\/painful bladder syndrome (IC\/PBS) using the Brief Illness Perception\u2010Questionnaire (BIP\u2010Q) and to evaluate how this might relate to disease severity.<\/jats:p><\/jats:sec><jats:sec><jats:title>Materials and Methods<\/jats:title><jats:p>The study is a cross\u2010sectional survey amongst members of Bladder Health UK who had previously received a clinical diagnosis of IC\/PBS. A hyperlink containing the questionnaire was sent to the patient group's website and interested members accessed and completed the survey. Participants' inclusion was based on a prior clinical diagnosis of IC\/PBS, current O'Leary Sant scores supportive of the diagnosis, and age between 18 and 80. A sample size of 171 was used in the study. The Brief Illness Perception Questionnaire (BIP\u2010Q) and the O'Leary\/Sant symptoms and problem indices questionnaire were used to collect data. A multivariable logistic regression analysis was used to test the relationship between items of BIP\u2010Q and severity of IC\/PBS. Content analysis was used for the causal domain and subsequently analysed as percentages.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Six hundred and one members accessed the questionnaire of whom 159 returned completed questionnaires. One hundred and twenty\u2010two of 159 (\u226575%) respondents believe that their illness will continue indefinitely. The majority of the respondents indicated that IC\/PBS had a negative impact on their daily lives, caused them worry and made them emotionally unstable. Of the 8 BIP\u2010Q items, those most predictive of disease severity were (adjusted odd ratio and confidence intervals): consequence 0.094 (0.023\u20130.386); treatment control 2.702 (1.256\u20135.812); identity 0.141 (0.033\u20130.600); concern 9.363 (1.521\u201357.632).<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>Our findings show that IC\/PBS negatively impacts participant's quality of life and emotional wellbeing. Higher expectation for treatment benefit and increasing levels of patient concern are predictive for severity of IC\/PBS.<\/jats:p><\/jats:sec>","DOI":"10.1002\/nau.24787","type":"journal-article","created":{"date-parts":[[2021,9,9]],"date-time":"2021-09-09T11:47:37Z","timestamp":1631188057000},"page":"2020-2025","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":3,"title":["The relationship between illness perception and worsening of interstitial cystitis\/painful bladder syndrome symptoms: A cross\u2010sectional study"],"prefix":"10.1002","volume":"40","author":[{"given":"Kamaluddeen","family":"Garba","sequence":"first","affiliation":[{"name":"School of Health Sciences University of Southampton Southampton UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Miriam","family":"Avery","sequence":"additional","affiliation":[{"name":"School of Health Sciences University of Southampton Southampton 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