{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,10]],"date-time":"2026-09-10T15:20:19Z","timestamp":1789053619952,"version":"build-2803163510"},"reference-count":23,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2022,12,15]],"date-time":"2022-12-15T00:00:00Z","timestamp":1671062400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/100000002","name":"National Institutes of Health","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100007735","name":"American Urogynecologic Society","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100007735","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Neurourology and Urodynamics"],"published-print":{"date-parts":[[2023,2]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Objective<\/jats:title><jats:p>To develop a patient\u2010centered text message\u2010based platform that promotes self\u2010management of symptoms of interstitial cystitis\/bladder pain syndrome (IC\/BPS).<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Adult women with IC\/BPS interested in initiating a first\u2010 or second\u2010line treatments per American Urological Association guidelines (recategorized as \u201cbehavioral\/non\u2010pharmacologic treatments\u201d and \u201coral medicines\u201d in the 2022 version) participated in rapid cycle innovation consisting of iterative cycles of contextual inquiry, prototype design and development. We delivered treatment modules and supportive messages using an algorithm\u2010driven interactive messaging prototype through a HIPAA\u2010compliant texting platform. Patients provided feedback through narrative text messages and an exit interview. Feedback was analyzed qualitatively and used to iteratively revise the platform until engagement\u2009\u2265\u200985% and accuracy\u2009\u2265\u200980% were achieved. The final version consisted of four treatment module categories (patient education and behavioral modification, cognitive behavioral therapy, pelvic floor physical therapy, and guided mindfulness practices) and supportive messages delivered through an automated algorithm over 6 weeks.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Thirty IC\/BPS patients with moderate symptom bother (median IC Problem Index score 9, range 6\u221212) participated in five cycles of contextual inquiry. Qualitative analysis identified three overarching concepts that informed the development of the platform: preference for patient centered terms, desire to gain self\u2010efficacy in managing symptoms, and need for provider support. Patients preferred the term \u201cinterstitial cystitis\u201d to \u201cbladder pain syndrome\u201d which carried the stigma of chronic pain. Patients reported greater self\u2010efficacy in managing symptoms through improved access to mind\u2010body and behavioral treatment modules that helped them to gain insight into their motivations and behaviors. The concept of provider support was informed by shared decision making (patients could choose preferred treatment modules) and reduced sense of isolation (weekly check in messages to check on symptom bother).<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>A patient centered text message\u2010based platform may be clinically useful in the self\u2010management of IC\/BPS symptoms.<\/jats:p><\/jats:sec>","DOI":"10.1002\/nau.25115","type":"journal-article","created":{"date-parts":[[2022,12,15]],"date-time":"2022-12-15T13:08:48Z","timestamp":1671109728000},"page":"510-522","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":13,"title":["Development of a patient\u2010centered text message\u2010based platform for the self\u2010management of interstitial cystitis\/bladder pain syndrome symptoms"],"prefix":"10.1002","volume":"42","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-5719-334X","authenticated-orcid":false,"given":"Edward K.","family":"Kim","sequence":"first","affiliation":[{"name":"Department of Obstetrics and Gynecology, Division of Urogynecology and Pelvic Reconstructive Surgery University of Pennsylvania Perelman School of Medicine Philadelphia Pennsylvania USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lily A.","family":"Brown","sequence":"additional","affiliation":[{"name":"Department of Psychiatry University of Pennsylvania Perelman School of Medicine Philadelphia Pennsylvania USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Emily K.","family":"Seltzer","sequence":"additional","affiliation":[{"name":"Center for Health Care Innovation University of Pennsylvania Perelman School of Medicine Philadelphia Pennsylvania 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