{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,28]],"date-time":"2026-04-28T00:30:57Z","timestamp":1777336257558,"version":"3.51.4"},"reference-count":28,"publisher":"Wiley","issue":"8","license":[{"start":{"date-parts":[[2023,9,13]],"date-time":"2023-09-13T00:00:00Z","timestamp":1694563200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Neurourology and Urodynamics"],"published-print":{"date-parts":[[2023,11]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Objective<\/jats:title><jats:p>To understand the availability and content of patient support groups on social media platforms.<\/jats:p><\/jats:sec><jats:sec><jats:title>Materials and Methods<\/jats:title><jats:p>Five prevalent benign, urologic conditions affecting adult women were selected for analysis. Facebook support groups for these conditions were identified. Groups specific to one urologic condition and with at least 400 members were included, and groups for pediatric and malignant conditions were excluded. Each support group was analyzed for member count, posts per month, and period of activity. The 100 most recent posts in the largest support groups were manually reviewed and further categorized into content subsections.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>A total number of 56 Facebook support groups were identified that satisfied the inclusion\/exclusion criteria. Interstitial cystitis (IC) had 25 groups (68\u2009466 members; 4825 posts), pelvic organ prolapse (POP) had 14 groups (72\u2009342; 3067), UTI had nine groups (36\u2009414; 3204), overactive bladder and\/or urinary incontinence (OAB\/UI) had seven groups (8246; 306), urinary retention had one group (1168; 118). Across all groups, post content was predominantly informational support (77.6%). Remaining post content was both informational and emotional support (10.0%), emotional support only (7.6%), or unrelated to either informational or emotional support (4.8%).<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>Individuals with benign urologic conditions are utilizing social media support groups predominantly to seek and share informational support from patient peers. The number of existing groups as well as the level of activity and number of members within individual support groups varies significantly between different urologic conditions. This suggests that there is an unmet need for accessible informational content for patients who suffer with benign urological conditions.<\/jats:p><\/jats:sec>","DOI":"10.1002\/nau.25283","type":"journal-article","created":{"date-parts":[[2023,9,14]],"date-time":"2023-09-14T13:09:33Z","timestamp":1694696973000},"page":"1795-1801","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":5,"title":["The role of facebook support groups for women with benign urologic conditions"],"prefix":"10.1002","volume":"42","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-2799-7002","authenticated-orcid":false,"given":"Omar K.","family":"Farah","sequence":"first","affiliation":[{"name":"Columbia University Vagelos College of Physicians and Surgeons New York New York USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3835-4053","authenticated-orcid":false,"given":"Connie N.","family":"Wang","sequence":"additional","affiliation":[{"name":"Department of Urology Columbia University Irving Medical Center New York New York USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1177-3458","authenticated-orcid":false,"given":"Doreen E.","family":"Chung","sequence":"additional","affiliation":[{"name":"Department of Urology Columbia University Irving Medical Center New York New York USA"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2023,9,13]]},"reference":[{"key":"e_1_2_6_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.sbspro.2014.10.271"},{"key":"e_1_2_6_3_1","unstructured":"RubyD55+ Facebook Statistics For 2023 (Users Revenue & Trends). Demand sage. February 10 2023. Accessed March 30 2023.https:\/\/www.demandsage.com\/facebook-statistics\/"},{"key":"e_1_2_6_4_1","doi-asserted-by":"publisher","DOI":"10.1089\/cpb.2007.0118"},{"key":"e_1_2_6_5_1","doi-asserted-by":"publisher","DOI":"10.1046\/j.1464-5491.2001.00443.x"},{"key":"e_1_2_6_6_1","doi-asserted-by":"publisher","DOI":"10.1089\/cpb.2005.8.580"},{"key":"e_1_2_6_7_1","doi-asserted-by":"publisher","DOI":"10.1111\/bju.13846"},{"key":"e_1_2_6_8_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.euf.2019.07.004"},{"key":"e_1_2_6_9_1","unstructured":"NIDDK. National Institute of Diabetes and Digestive and Kidney Diseases. Urologic diseases. Accessed August 3 2022.https:\/\/www.niddk.nih.gov\/health-information\/urologic-diseases"},{"key":"e_1_2_6_10_1","doi-asserted-by":"publisher","DOI":"10.1177\/1077558703257000"},{"key":"e_1_2_6_11_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jeoa.2018.09.002"},{"key":"e_1_2_6_12_1","unstructured":"PHA of Canada. Refining the measurement of the economic burden of chronic diseases in Canada. May 9 2004. Accessed July 21 2022.https:\/\/www.canada.ca\/en\/public-health\/services\/reports-publications\/health-promotion-chronic-disease-prevention-canada-research-policy-practice\/vol-25-no-1-2004\/refining-measurement-economic-burden-chronic-diseases-canada.html"},{"key":"e_1_2_6_13_1","doi-asserted-by":"publisher","DOI":"10.1177\/014107680109401103"},{"key":"e_1_2_6_14_1","doi-asserted-by":"publisher","DOI":"10.1001\/jamapsychiatry.2015.2688"},{"key":"e_1_2_6_15_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jad.2007.01.015"},{"key":"e_1_2_6_16_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.juro.2011.03.132"},{"key":"e_1_2_6_17_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00192-010-1215-0"},{"key":"e_1_2_6_18_1","doi-asserted-by":"publisher","DOI":"10.1080\/13697137.2018.1543263"},{"key":"e_1_2_6_19_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0022-5347(05)64075-X"},{"key":"e_1_2_6_20_1","doi-asserted-by":"publisher","DOI":"10.1023\/A:1021447612079"},{"key":"e_1_2_6_21_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0022-5347(05)65195-6"},{"key":"e_1_2_6_22_1","doi-asserted-by":"publisher","DOI":"10.1177\/1359105314522084"},{"key":"e_1_2_6_23_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00345-002-0301-4"},{"key":"e_1_2_6_24_1","doi-asserted-by":"publisher","DOI":"10.1046\/j.1464-410x.1999.00397.x"},{"issue":"10","key":"e_1_2_6_25_1","first-page":"10","article-title":"Pelvic floor muscle training versus no treatment, or inactive control treatments, for urinary incontinence in women","volume":"2018","author":"Dumoulin C","year":"2018","journal-title":"Cochrane Database Syst Rev"},{"key":"e_1_2_6_26_1","unstructured":"American Urological Association. Diagnosis and treatment of interstitial cystitis\/bladder pain syndrome (2022). 2022. Accessed March 30 2023.https:\/\/www.auanet.org\/guidelines-and-quality\/guidelines\/diagnosis-and-treatment-interstitial-of-cystitis\/bladder-pain-syndrome-(2022)"},{"key":"e_1_2_6_27_1","unstructured":"For Patients | Society of Urodynamics Female pelvic medicine & urogenital reconstruction. Accessed April 26 2023.https:\/\/sufuorg.com\/resources\/patients.aspx"},{"key":"e_1_2_6_28_1","unstructured":"Online Support Groups | Interstitial Cystitis Association. October 7 2021. Accessed March 30 2023.https:\/\/www.ichelp.org\/living-with-ic\/support-community\/online-support-groups\/"},{"key":"e_1_2_6_29_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.urology.2004.09.032"}],"container-title":["Neurourology and Urodynamics"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1002\/nau.25283","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,12,27]],"date-time":"2023-12-27T10:15:54Z","timestamp":1703672154000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1002\/nau.25283"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2023,9,13]]},"references-count":28,"journal-issue":{"issue":"8","published-print":{"date-parts":[[2023,11]]}},"alternative-id":["10.1002\/nau.25283"],"URL":"https:\/\/doi.org\/10.1002\/nau.25283","archive":["Portico"],"relation":{},"ISSN":["0733-2467","1520-6777"],"issn-type":[{"value":"0733-2467","type":"print"},{"value":"1520-6777","type":"electronic"}],"subject":[],"published":{"date-parts":[[2023,9,13]]},"assertion":[{"value":"2023-06-17","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2023-08-31","order":1,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2023-09-13","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}