{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,29]],"date-time":"2026-08-29T02:17:43Z","timestamp":1787969863471,"version":"build-2784847793"},"reference-count":28,"publisher":"Wiley","issue":"5","license":[{"start":{"date-parts":[[2013,11,21]],"date-time":"2013-11-21T00:00:00Z","timestamp":1384992000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"name":"Paediatric Oncology Group of Ontario"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Pediatric Blood &amp; Cancer"],"published-print":{"date-parts":[[2014,5]]},"abstract":"<jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Current options for location of end\u2010of\u2010life (EOL) care for children with cancer include home, hospital, and freestanding pediatric hospice (FSPH). However, access to these options varies greatly depending on geographical location. We aimed to determine bereaved parent and clinician preferences for location to EOL care and death.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Procedure<\/jats:title>\n                    <jats:p>We administered questionnaires to 75 bereaved parents (response rate 54%) and 48 pediatric oncology clinicians (response rate 91%) at a large teaching hospital. Main outcome measure was parent and clinician ranking for preferred location of EOL care and death if given the options of home, hospital or FSPH.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      Majority of parents and clinicians ranked home as their first choice for EOL care (70.2% and 87%, respectively) and death (70.8% and 89.1%, respectively). Compared to clinicians, parents gave a higher ranking to hospital (\n                      <jats:italic>P<\/jats:italic>\n                      \u2009&lt;\u20090.01) and lower ranking to FSPH (\n                      <jats:italic>P<\/jats:italic>\n                      \u2009&lt;\u20090.01) as the preferred location for EOL care and death. Congruence between actual and preferred location of EOL care was more likely when a palliative care team was involved (\n                      <jats:italic>P<\/jats:italic>\n                      \u2009&lt;\u20090.01) and less likely for children with haematologic malignancies (\n                      <jats:italic>P<\/jats:italic>\n                      \u2009=\u20090.03).\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Parents and clinicians prefer home as the location for EOL care and death for children with cancer. Hospital based palliative care is a preferred alternative if home is not desired. FSPH is a relatively recent phenomena and further research needs to be directed towards understanding its cost benefit in comparison to home and hospital\u2010based EOL care. Pediatr Blood Cancer 2014;61:859\u2013864. \u00a9 2013 Wiley Periodicals, Inc.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1002\/pbc.24872","type":"journal-article","created":{"date-parts":[[2013,11,21]],"date-time":"2013-11-21T08:03:19Z","timestamp":1385020999000},"page":"859-864","source":"Crossref","is-referenced-by-count":147,"title":["Parent and clinician preferences for location of end\u2010of\u2010life care: Home, hospital or freestanding hospice?"],"prefix":"10.1002","volume":"61","author":[{"given":"Alisha","family":"Kassam","sequence":"first","affiliation":[{"name":"Division of Hematology\/Oncology, Department of Pediatrics The Hospital for Sick Children University of Toronto Toronto Canada"},{"name":"Division of Palliative Medicine, Department of Medicine Southlake Regional Health Centre Newmarket Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Julia","family":"Skiadaresis","sequence":"additional","affiliation":[{"name":"Faculty of Social Work University of Toronto Toronto Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sarah","family":"Alexander","sequence":"additional","affiliation":[{"name":"Division of Haematology\/Oncology Department of Paediatrics The Hospital for Sick Children University of Toronto Toronto Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Joanne","family":"Wolfe","sequence":"additional","affiliation":[{"name":"Department of Psychosocial Oncology and Palliative Care Dana\u2010Farber Cancer, Institute, Harvard Medical School Boston Massachusetts"},{"name":"Centre for Outcomes and Policy Research Dana\u2010Farber Cancer Institute, Harvard Medical School Boston Massachusetts"},{"name":"Department of Medicine Boston Children's Hospital, Harvard Medical School Boston Massachusetts"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2013,11,21]]},"reference":[{"key":"e_1_2_5_2_1","unstructured":"Angel\u2010unaware.http:\/\/www.angel\u2010unaware.comAccessed April 19 2013."},{"key":"e_1_2_5_3_1","unstructured":"Childrens hospice week.http:\/\/www.childrenshospiceweek.org.uk\/hospices.aspAccessed April 19 2013."},{"key":"e_1_2_5_4_1","doi-asserted-by":"publisher","DOI":"10.1007\/978-94-007-2570-6_17"},{"key":"e_1_2_5_5_1","doi-asserted-by":"publisher","DOI":"10.1177\/0269216308096527"},{"key":"e_1_2_5_6_1","doi-asserted-by":"publisher","DOI":"10.1136\/adc.65.6.641"},{"key":"e_1_2_5_7_1","doi-asserted-by":"publisher","DOI":"10.1093\/pch\/13.5.369"},{"key":"e_1_2_5_8_1","doi-asserted-by":"publisher","DOI":"10.1056\/NEJM200002033420510"},{"key":"e_1_2_5_9_1","doi-asserted-by":"publisher","DOI":"10.1177\/104345420001700103"},{"key":"e_1_2_5_10_1","doi-asserted-by":"publisher","DOI":"10.1097\/00002820-199810000-00001"},{"key":"e_1_2_5_11_1","volume-title":"When children die: Improving palliative and end\u2010of\u2010life care for children and their families","author":"Field MJ","year":"2003"},{"key":"e_1_2_5_12_1","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2000.3.287"},{"key":"e_1_2_5_13_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.socscimed.2003.09.005"},{"key":"e_1_2_5_14_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1471-6712.2011.00870.x"},{"key":"e_1_2_5_15_1","doi-asserted-by":"publisher","DOI":"10.1017\/S1478951505050194"},{"key":"e_1_2_5_16_1","doi-asserted-by":"publisher","DOI":"10.1081\/CNV-100000151"},{"key":"e_1_2_5_17_1","volume-title":"Approaching death: Improving care at the end of life. 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